Trying again! I think Cowden syndrome is rare and I can find no mention of it on this site. However, it is a problem with the PTEN gene and I’ve seen a few comments about PTEN a few years ago on the site and I’m hoping someone may be able to let me know what happened when they were tested. I’ve had a recall for an appointment with a consultant for next month after my meeting with the genetic counsellor last week. Thank you - I should say I hope to hear from someone but also hope I don’t, as I don’t want any of you to have it!! X
Hi Janey2,
Thank you for your post. I am sure some of our users will be along to share their experiences with Cowden syndrome and show their support soon.
In the meantime you can always post on our Ask the Nurse board or call our helpline on 0808 800 6000, who will be able to talk you through any questions you have about PTEN and offer a friendly ear. The opening hours are below:
Monday-Friday, 9am-5pm
Late opening Wednesday, 9am-7pm
Saturday, 9am-1pm
Best wishes,
Bonita
Thank you