I’ve just had lumpectomy and sentinel node biopsy three weeks ago and was given the all clear, no spread to nodes, but the doctor says I still have to have radiotherapy and letrozole. I’ve heard that radiation to the left breast is damaging to the heart and also letrozole has many horrible side effects and since there was no spread I’m considering declining the further treatment. Had anyone else done this and, if so, how are they doing?
I really don’t know what to do so any advice would be really helpful.
I’m just letting you know about my experience with letrozole as there are so many scare stories out there. I’ve been on letrozole for 6 years and apart from a few joint, mainly knee aches, I’ve had no problems. I find walking helps the knees so that it has become a negligible complaint. It is an amazing drug and I’m sure it has helped me stay cancer free for so long. I was grade 3 with lymph node involvement so I had the works - mastectomy, chemo, radio etc. Good luck with your decision.
When you say you were given the ‘all clear’ could you explain that further please? What were the results of the surgery? Have you spoken to your BCN about your worries regarding your recommended treatment?
I had a lumpectomy in May, clear margins, 0/3 nodes, ER+ 8/8 PR+ 8/8 HER-, currently having radiotherapy after which I will start Letrozole. The radiation is to ‘mop up’ any stray cancer cells (despite clear margins), letrozole to prevent recurrence. I’m not looking forward to 5 years of hormone therapy but it’s for my benefit.
As for radiation given on the left breast, there is a breath hold technique done during the treatment which ‘lifts’ the breast, also radiotherapy measurements are very precise.
I’m sure there will be others replying to your post in more detail.
Hi Wendy, It appears that I am in the same situation as you and need to make a decision re- radiotherapy and Letrozole treatment. I had a therapeutic lt mammoplasty and " matchy matchy right mammoplasty 2 weeks ago. at my follow up appt yesterday, I was told clear margins and no lymph / vascular involvement.
My offered treatment plan is 5 sessions of Rad and the 5 years of Letrozole - not sure re - side effects and has all happened really fast ( I am still in a state of shock) Need to look on the positive side an NHS boob job - reduction of “heavy breasts” !!! trying to retain my sense of humour and keep in control.
Best wishes for your recovery and decision making xx