Have had what I consider to be good news and just wanted to share - I really don’t want to upset anyone who’s having a hard time at the moment so have been in two minds whether or not to post …
Had an appointment with my onc yesterday and feeling pretty upbeat - I had a breast ultrasound three weeks ago which has shown ‘massive shrinkage’ of the primary and no sign of the two infected lymph nodes which were showing on dx at Xmas - this is following 6 sessions of EC and I’m now on Arimidex and Zoladex. A few weeks ago mastectomy was being touted as an option for me but this is apparently not really a viable option as I have mets to too many bones
However, my onc now wants me to go for five or six weeks of daily radiotherapy - which she says she knows is totally against the grain when it comes to treating Stage IV - but she seems confident that this will rid the breast and axilla of any nasties and leave the disease ‘just’ in the bones.
I haven’t heard of anyone else having this course of treatment following secondary dx but she seemed so positive and cheerful about the whole thing that I’ve come away feeling cautiously optimistic. She says the bones can take ‘years’ to start showing signs of healing and to therefore continue on the Pamidronate for the forseeable future.
A strange course of action but one that I’m feeling quite happy about (I think!)
It’s great news Lesley and I don’t think anyone should hold back on sharing good news along with the bad. That is what these forums are all about. We will all be at different stages at different times, so let’s share the good and the bad news together.
I wonder if we are going to see more of this sort of move towards treating primary problems when 2ndaries are diagnosed. While that primary of yours is under control I think it is well worth throwing a bit more at it.
Hi Lesley,
well it sounds like good news that should be shared with all. Never ever feel you have to tippy toe with any news.
I think it makes good sense to treat a primary as you would even if the secs have gone to the bone. I know over the past 10 years since I was diagnosed the thinking has changed and then changed again and that is only because women like us share our experiences on these forums.
Enjoy your good news and I shall have another glass of red and say cheers to you.
Love Debsxxx
Thanks Dawn and Debs - I’m feeling quite encouraged by the whole thing, I have to say. My onc is very young and forward-thinking and I think she has some fairly radical ideas on treatments - I have a lot of confidence in her anyway which is the main thing I suppose!
hey thats great news and you shouldnt worry about posting whether its good or bad we are here to support each other no matter what and its nice to hear good news ,long may it continue for you ,its such a sham,e i cant make the meet upo next week (im house sitting ) but i hope to be at the next one .
saw the consultant on monday and hes pleased with how things are ,just trying to get my pain under control so im waiting for an appointment for pain clinic,my liver is behaving itself at the moment so biopsy put off for a while yet ,thank god!!! anyway take care.xx
