I actually don’t know if its lobular or ductal. I haven’t heard either of those words yet. My surgeon said the word invasive? But I think that can come with either.
When I got told it was ER positive HER2 negative I didn’t know there was more to it than that and so far it just hasnt come up. I’m guessing at the final treatment plan I will get a lot more information because treatment will be based on those details.
I was told 4 to 6 weeks wait I was dreading the wait but I’m halfway and I’m hoping that was just a very generous time frame because of the Christmas break
Thanku all so so much x reading all your posts and how strong u all are is keeping me as positive as I can be x its the unknown and the waiting lists here are mad x im so worried x my 18 yo daughter knows something not.right and keeps asking me what’s going on x im scared to tell her and have her worry until I know the score x I just dont know whether to tell her or not x hubby I dont think honestly realises just the reality of the what if and although I can talk to.him he just not getting it the same x thanku all again for the warm welcome im ao glad I’ve found this and know I can talk and listen anytime x hope everyone is OK
@pollyanna2 I think I’d tell my daughter if I were you. I know you don’t want her to worry, but equally you need support while you’re waiting. I found it so much easier once I’d told everyone around me. (Disclaimer: my natural tendency is always to over share anyway) I also think that part of the reason cancer seems so scary is because we don’t talk about it. Once I’d started talking, so many people started telling me their positive stories. I’ve lost count of the number if people who told me they were 10/15/20 years cancer free, which I found really reassuring. (And without exception every single one of them said the initial waiting was the worst.)
Hi Pollyanna, I don’t know if I’ve mentioned this here in this thread but my daughters are 12 and 15 and I told them every step of the way. I told them I was getting a lump checked and I told them when the news wasn’t great. We only have a small house and it just didn’t feel realistic to keep things from them.
It broke my heart a little bit I cant lie. One of the worst days of my life. But equally, their positive attitudes and support has made it so much better for us all. No secrets, we are all in it together. This is life. It has actually normalised things a little bit. I’ve tried not to have too many bad days but it meant I was given some space to have those bad days. And I think its the same for them. We’ve had some wonderful open and honest conversations that I’m very grateful for
Thanku both I’ve 4 children my eldest is 20 with autism learning difficulties so not sure if she would cope x I’ve an 18 yo girl 14 yo boy and a 12yo girl xx I think ill tell my 18 yo for now x as u say would be good for the support xx im honestly not sure how the younger 2 would cope with this news x my son has been selected to represent n. ireland in the pool u15 championships and I would be scared of having this over him would affect him xx he going to gibraltar to play in the Nations Cup in April x I think I’ll wait and tell him if results show something xx thanku all again I really am so grateful for the support and advice
Jidty checking in to see how you’re doing @enia1703 you were the first person I spoke to on here back back in late November. Hope you’re ok and soon to start your treatment? I’m still in the post durher Waiting room
Hi @anxiouslyawaiting thanks for checking in, hope your recovery is going well? Fingers crossed it’s not too much longer before you have results and can progress with treatment. I am just in the waiting room now for my pre-chemo review. I have my first cycle starting tomorrow, ready to get going and see how it’s going to be. I went wig shopping on Friday and found it so much worse than I was anticipating, basically just in autopilot and got in and out as quickly as possible! Other than that I’m feeling really positive and mentally doing quite well. What’s the next step for you? X
How are you doing @enia1703 ? Hope it’s all going okay? I’ve heard that they like to go in strong for the first dose of chemo, so I hope you’re not feeling too awful. Thinking of you anyway.
Hey @al1kat I’m doing ok, had a Really good experience in the hospital and everything went smoothly, first evening was a bit rubbish and was tired for a few days there, feeling good so far today and hoping I’ll be feeling back to normal after another few days! How are you doing? X
Oh that’s good to hear! I had my contrast MRI this morning, so an hour of lying down trying not to breathe too hard in case the movement meant they couldn’t get a clear picture (though the radiographer told me not to worry about that because you have to breath🤣) and keeping everything crossed that they don’t see anything new that they want to biopsy. The Breast Nurse told me that they’d phone if they see anything suspicious that needs to be checked, and otherwise I have an appointment with the consultant on Tuesday 27 January for results and treatment plan. I really really hope that that’s the case - the waiting to know what we’re dealing with seems interminable.
I’m also knee deep in boxes for our move - We’re paying the movers to pack for us, but my husband decided to empty the attic on Friday so I am busy giving away as much as I can on the street WhatsApp group. That’s hard for a natural squirrel like me, but although our new house is a bit bigger than our flat (and it will be the first house I’ve lived in since I was a child ) I don’t think the attic has much in the way of usable storage space whereas here the attic is 80m2 and almost as large as the flat.
Glad you’ve had the MRI and hopefully you don’t hear anything until the 27th although the waiting really is awful. Just to pass on something I learned after my MRI the next two days my shoulders/arms were painful, I panicked so much and thought I had cancer spreading in my bones and they’d be telling me after my CT scan, only realised that it was due to the position for such a prolonged period in the MRI scanner, tense with my arms above my head I was fine when I was able to rationalise it but the initial panic was awful so just incase it helps you as I wasn’t expecting it.
Hopefully all going well with the move, what date are you moving? I’m sure it’s a nice distraction although sounds like hard work!
That’s really useful @enia1703 thank you. My arms were wedged down by my side, but face down with everything sticking through the various holes in the trolley so neither elegant nor comfortable!
We move on 30 January, but the packers start on Wednesday 28, so cats are going to my friend on Tuesday night until we’ve moved. We’ve got so many people rallying round to help, that actually I don’t think I’m going to have to do very much!
Just catching up with u all and hope everyone is doing as well as csn be x I’m still in limbo rang and been told there is no cancellation list and I have to wait as it wouldn’t be fair to give me a cancellation appointment infeont od someone else which is understandable x ao I’ve another 5 weeks roughly before ill prob get offered my first appointment x hope everyone treatment is going OK etc xx im not on here that much but would like to keep checking in
Hope everything going well with packing @al1kat and that your move goes well this week!
@pollyanna2 I wasn’t put on a cancellation list as such, I asked them what date of referral they were booking people in for and tried to call back so that I would be first booked for my date, it just happened when I called back on the day they weee starting to book my date that someone had cancelled for the Monday (this was Friday afternoon) so I got an immediate appointment rather than booking for weeks in advance if you see what I mean? I also let them know that I lived a 2 minute drive from my local hospital as if there were no shows or something the appointment wouldn’t need to go to waste. It’s so hard when you don’t even have the date to work towards so I really feel for you!
@myboobsmybusiness to be totally honest I didn’t cope with sleeping (or eating really) and I had to go to my GP who prescribed beta blockers for my anxiety, they helped so much! She didn’t want to give me anti depressants or anything as it wasnt the mental aspect we needed to address(that was normal for what I was going through) but the tablets really helped me relax and get out of fight/flight! Really hope you are able to sort something and that you get good news at your appointment when it comes x
Hi @myboobsmybusiness nice to meet you. So sorry you find yourself here but know that there is such support and advice.
I am weeks ahead of you, I was diagnosed on 3rd November but I’ll be honest, my sleep is still affected. I have learnt and I am still learning that I have to pay close attention to myself. It is very easy to get caught in a dark loop of what ifs and why me. That doesnt help. You get to the point where you have to pass over all the major thinking to your doctors and nurses and put all your concentration into what you can do for yourself.
None of us asked to be here or deserved to be here but now we are. Waiting for results is by far the hardest part of it all but you will get through it.
Remember until you are told otherwise, you are ok and you are safe. Try not to write yourself off unnecessarily. Even if you get bad news, breast cancer is very treatable now.
Big hugs
Oh and for anxiety, the beta blockers like @enia1703 suggest are very helpful. Especially if like me your anxiety is very physical. I needed them to calm my body for an MRI because I couldn’t stop shaking and it was awful. Proud to say that I weaned myself off them in preparation for my op and ive not gone back
Small wins everyday
Please remember that the vast majority of breast lumps are benign! Although that is not the experience of most of the ladies on this forum, we are a minority, but today’s treatments are amazing and improving all the time.
One other thing to bring to people’s notice on this forum is that if you can afford it, you can self- refer to a breast clinic at your local private hospital. I did that a few years ago when I had a lump ( which was a cyst on that occasion). I was seen in 3 days by a consultant breast surgeon and had a mammogram and ultrasound by a consultant radiologist. It cost about £500. This was a clinic in Wirral. I’m not advertising private care ( I worked for the NHS for 37 years) but sometimes you just need to get an answer and some ladies on this forum are describing very long waits for a clinic appointment. I had fabulous care through the NHS when my BC last year was picked up by routine mammogram. I was seen in 5 days on that occasion.
I was dreading the wait but I’m halfway and I’m hoping that was just a very generous time frame because of the Christmas break 
) I don’t think the attic has much in the way of usable storage space whereas here the attic is 80m2 and almost as large as the flat.
I was fine when I was able to rationalise it but the initial panic was awful so just incase it helps you as I wasn’t expecting it.