I am just a year post diganosis of IDC, my treatment has finished and I am doing ok. Mentally probably not so well, but physically I’m one boob down but hey I’m here and more than well. I intend to see my daughter grow up, graduate uni and get married - nothing will stop me, try though it may. There are lots of ladies/men on here that are many years down the road from their initial diagnosis. So yes it is very frightening, but take comfort from the fact that this rotten disease is put in it’s place by so many people.
Sending hugs to you and your family.
You cry all you like on the bad days and smile for the whole world to see on the good days.
hi everyone, reading all ur posts has brought tears to my eyes. im at home having had the operation. my right breast having gone. have not seen the scar yet but dont feel as bad as i thought i would. the worst bit was taking the drain out! im now in the waiting game again. get the results on thursday and im really scared about that. i cling on to the hope that its as the first two biopsies were which was dcis. i now understand what that means. i have had a couple of positive days but now am moving towards thurs am getting the fears come back. im just praying that this can be over this time thursday. i hope i dont sound selfish in saying that to you all. ive had to take sleeping tablets to sleep and need tostop soon or im going to get hooked.
Surgeon came to see me on Friday ( i came out on Sun) and made me feel better , said he felt the tissue and it did not feel abnormal so he felt positive about the results. thats what im grabbing onto. this is so hard. i am really really grateful for your posts and hope that in some way i am helping you too (i dont know how).
Best of luck, markd. I have my MRI on Thursday to see how bad my lobular cancer is, surgery is scheduled for 1 November. I’m at the stage of waiting, waiting that you were when you wrote your first post.
I’m glad you are home and have had a couple of good days. Hang on to the thought of seeing your children grow up. That is a great motivator. I’m lucky. My consultant said we caught mine early and we will beat it. I’m holding him to his word. I’ve got two kids to see grow up, too. Heck, I’m only 40 and otherwise healthy. I should have the strength for this. So should you!
I’m so pleased to hear you are now at home and recovering from your op. Be sure to take things easy and allow yourself to be waited on. I found that really hard at first but its sooooo important! I know what you mean about having the drains out, I hated that!! Made me feel really queasey!!
Anyway, I wish you well for your results appt tomorrow. Your surgeon sounds really positive so fingers and toes crossed! Do let us know how you get on,
Glad the op is over and done with and you’re back home again with your family. You’ve been in my thoughts so much.
I know it’s hard for you men, but you take it easy now and get plenty of rest. You’ve just had major surgery, your body needs time to recover. And give your brain plenty of time to recover too. This is a life changing thing that you are going through. Don’t expect too much of yourself, and don’t allow others to put pressure on you to run before you can walk. As for the sleeping tablets, I was on them for about a month when I was first diagnosed. I just couldn’t switch my brain off and get to sleep. And everything seems so much worse in the middle of the night. If you need them, and your doc is happy to prescribe them, then you keep taking them. They’ll soon take you off them if they think you’ve been on them too long and you’re at risk of getting addicted. Besides, becoming addicted to sleeping tablets is the least of your worries at the mo! You need sleep to be able to cope during the day and to remain as strong as possible for your children… You need to have that rest and that break from thinking about all that is going on for you at the moment. So stop giving yourself a hard time!!
I know what you mean about the drains by the way. I had a bloody student nurse take mine out! Now I know they all have to start somewhere, but jeez did it hurt!!
I really do wish you lots and lots of luck for tomorrow. You will be in my thoughts, and I look forward to hearing how you got on.
Hi everyone sorry I have not posted for a while. I got the results from my doc. DCIS only in the nipple area, 7mm of the bad guys , no invasive seen. Obviously i was over the moon. Still recovering from the surgery. Had some fluid taken away 10 days ago. Still have fluid but they tell me that will go in a few weeks (hopefully).
I want to thank you all so much for helping me through this. I really needed your support from this site and also the american site breastcancer.org. Chat room there has been great too.
I wish all of you every success in your treatments too. I will always check back here to see how u r all getting on. I will leave my email address if allowed. Perhaps the moderator can confirm if I can so we can all keep in touch.
Thank you again so much. I have to have a check up in Jan and every 3 months. They say they will give me a mammo then. That will be interesting. Surgeon told me that my breast tissue is prob only about an inch. My scar is quite large around 5 inches so that really surprised me.
I now keeo looking at my other nipple and every crack or bit of redness I panic about but guess that will ease with time. The surgeon looked at that for me and said nothing is worrying him.
I guess I have to get on with things now as I am sure you all know too.
I didn’t see your thread until today and I just wanted to say I’m glad things are going well for you. Yeah, this place is great for finding the support one needs.
I get the feeling from your latest posting that you are feeling much more up-beat, that’s so good. Thanks for getting back to us to let us know how well you are doing now just get back to those two children of yours and enjoy!
I have not posted on here for along time since I went through treatment in Oct 2007. I was recently asked to talk atmy local hospital about my experience and came across one of the regional reps for BC Care.
I have been reading posts again on here and came across my original thread.
So I wanted to say hi and hope you are all beating this and living life to the full. BC certainly has changed me.Im 3 yrs out now and (touch wood) doing OK. Less fears but as we all know when check up time approaches it gives us a gently reminder.
I have been asked to consider applying for the Fashion Show next year. Not sure if they want a 40 yr old man in that tho ha ha.
I hope to particiapate more on here again but as someone on here once toldme most people who dont come back on here are living life again so if I dont catch up with any of you I hope it means you are living life to the max.
To steal Lance Armstrongs slogan, “Live Strong”… god bless…Mark xx