Hello,
I’m new to this forum. I have recently been diagnosed with DCIS stage 2. I had biopsies taken. The lymph nodes came back inconclusive, so these were repeated & currently waiting on my next appointment to receive the results!
I’m extremely anxious, my anxiety is sky rocketing. Still waiting on HER 2 results which were taken 5 weeks ago.
I’ve been informed by the consultant my surgery is scheduled for later this month. I spoke to my nurse who informed me depending on the HER 2 results my surgery could possibly be delayed & I will need chemotherapy as the first start of treatment.
Family & friends are trying their hardest to keep me busy/lifted. All I can think about is this is a death sentence any ladies going or has been through this. Any advice would be greatly appreciated 
xx
Hey lovely lady, sorry you are joining the club. I was diagnosed with high grade DCIS in June and had my mastectomy on the 9th August.
Please try not to google and go down those horrible thought processes. Take one day at a time. It’s bloody scary and so overwhelming but this is very treatable and although the treatment is tough you have made a really positive step in posting here.
I did the same when diagnosed. I thought this is it! You will learn to accept and to live through these feelings. Make a bubble with your closest and be sure to be honest on how you are feeling.
I think I’ve told my best friend and my husband over 100 times I’m scared of dying, I’m scared they’ve missed something. It’s natural to feel like this.
Always feel free to message me if you have queries. Each journey is different but we are all in this together. You are not alone.
Stop thinking of the death sentence and promise not to google. Just one day and one appointment at a time. Patience is something you really learn in this journey and will be your best friend.
Lots of big hugs and love xxx
Thank you 🩷 xx
Are you only DCIS or is there IDC as well? I’m a tad confused about your description as DCIS is not measured as a number as its not got the ability to spread. Its usually low, medium or high risk. IDC is graded, and a 2 in that case could involve lymph nodes, whereas DCIS doesn’t usually so doesn’t require chemo.
This is all incredibly new to me, apologies if I stated the incorrect diagnosis! I still don’t know an awful lot. Trying to find questions to my answers is so hard!
It’s a grade 2 ductal carcinoma 15mm, which is strongly oestrogen receptor positive. I was informed the lymph node biopsy was inconclusive & I had that repeated. They also inserted a “seed” which helps the surgeon locate the exact position of the cancer. They were also awaiting my HER 2 results. I was told if these came back positive I would need chemotherapy first.
I have an appointment with the surgeon tomorrow to discuss results/surgery. I’m not convinced this is going to be a positive outcome. As my post-op appt has been cancelled in a few weeks time!
Ah, thanks that makes it clearer. Treatment is different between IDC and DCIS, so its an important distinction.
My IDC was strongly ER8 positive, but PR negative - is yours maybe? If you do turn out to be Her2 positive, know that you are not alone. I was, though had an unusual path without chemo as it was only grade 1 -very rare for Her2.
There is a great suportive thread on here for Her2 positive that I recommend you joining if it turns out to be the case. Too early to jump to that yet though and though we all read into signs, its impossible to know if your cancelled post-op appointment is to do with results or something as simple as a surgeon taking annual leave then.
Sorry you have been left hanging on a result for 5 weeks, that is a long time. Mine came back quick, as all my results did last year. Somehow, I suspect that it was to do with being an employee of the trust and not typical.
Unfortunately my results were positive. They have found cancer in my lymph nodes & I’m HER2 positive. My surgery has been cancelled. I also have to have an MRI scan next week to see if the cancer has spread elsewhere, I’m also being booked in for an ECG.
To be honest, I’m in absolute pieces. I’m fearful of my future I’m struggling to see the positives currently.
The consultant asked me if I wanted a fit note for work. Work have been so supportive & it helps my mindset if I’m busy. Consultant said to prioritise myself & spend time with my family. Is this a way of saying my condition is worse than I think it is? Or, am I just overthinking everything.
Has anyone else been in this situation?
Any replies would be greatly appreciated 🩷
Helo Fairycake .Its very easy to overthink and convince yourself of the outcome. I know I’ve done it.
I was dx with breast cancer 15 years ago with heavy lymph involvement. I had so many scans but it hadn’t spread. I hope that helps you that lymph involvement doesn’t mean it has spread.
Please don’t google. Often the info on the Internet is out of date.
I hope you get some answers and appointment soon, but in the meantime try and distract yourself by doing something you enjoy. Take care and pkease keep in touch. x
Hi @fairycake I’m so sorry that you have been plunged into this bewildering situation. You will find lots of support here.
I would hope that your consultant was trying to be sympathetic by suggesting that you spend time with your family and to take care of yourself until all tests are done, results are in and a treatment plan can be devised. In truth the consultant will not know whether your cancer has spread until he/she has the results of the MRI so isn’t giving you coded messages. Please remember that people do not die from Stage 1-3 BC and these days many, many women who live with Stage 4 cancer can live for many years, as if it is a chronic disease. But it is a big stretch at this moment to even think about Stage 4 although it is only natural to worry about it until the MRI is done.
Treatment for HER2+ is extremely effective and there is a lively community of ladies on the forum which you can find here HER2+ and need some buddies when you’re up to it. This is the worst time whilst data is being captured but it will end and you will be able to face the treatment with positivity.
Sending you a massive bear hug.
Thank you so much @Tigress for your positive comments.
I think I’m just whipping myself into a frenzy. Even though I’ve received some results, further tests are still required. It’s the waiting & aspects of the unknown that is crippling me. There is history of breast cancer in the family (Mum & maternal Aunt) Initially they informed me IDC & HER2 wasn’t genetically related.
I’ve now received an appointment to be tested for the gene. I know I shouldn’t google information, but I can’t stop myself. I fear the treatments, losing my hair, which in the grand scheme of things - does this really matter. As long as I survive this terrible disease 
Don’t be hard on yourself @fairycake, the vast majority of us have considered worst case scenarios, particularly at the stage you’re at. I won’t say don’t Google as it is hard not to and I did so myself over three years ago when I was diagnosed - all I will say is, stick to credible, responsible organisations such as MacMillan, Cancer Research, the NHS and, of course, Breast Cancer Now. The AI responses we get to generic questions on Google aren’t particularly helpful., I’ve tested it and a lot of responses are out of date. You may already know but if not, find Dr Liz O’Riordan on YouTube, she was a BC surgeon but has had BC three times and she has a raft of no nonsense videos and also updates her followers each time there is news about new treatments or she needs to debunk nonsense claims on social media. Keep us updated on how you go - your odds are good 