Anyone have experience of IDC with micopapilliary growth pattern?
recently diagnosed. clinic NO help.
Hi Caz
I had both lobular and ductal tumours but I didn’t pay much attention to the details - I just wanted it sorted. I’m sorry you haven’t yet had a response but I wanted to reassure you that the details of your cancer become increasingly irrelevant as treatment progresses. Some women need to understand all the details, to feel in control, but that can cause increased anxiety. Others want to just get on with it and don’t bother much with details, playing ostrich. This means learning to trust your team and you haven’t got off to a great start by the sound of it. Write down your questions for your next consultation and expect answers. But remember, you may be told what you don’t want to hear. I for example have never asked about my prognosis. It changes so often, according to what treatments you’re having or have had. Once heard, worrying details are hard to forget! For this reason, I will add what we always say to new members - please do NOT google anything at this stage. It’s disastrous - it can’t know the details of your unique breast cancer and can be pretty alarming when you need reassurance. It cannot care.
In the meantime, you’ll have noticed your anxiety levels or stress levels may have increased. This is a good time to concentrate on your emotional health and do things that may prove helpful to you during treatment - yoga, running, meditation, mindfulness. There are NHS-approved apps like Calm and Headspace. I use Progressive Hypnosis videos on Youtube daily (currently cell and nerve healing - I just want to relax to the point of not thinking about breast cancer and it serves me well).
Wishing you all the best for a good recovery
Jan x
I am sorry to hear you were given no help at your initial clinic. I wonder whether you have breast care nurses at the hospital ? If so you may be able to phone one of them and get some positive helpful advice. I have several times rang them with things that have worried me , they have always come back to me and even when you are waiting on results of tests etc it is reassuring to be able to speak to someone who cares and really understands what you may be going through.
i totally agree with the advice not to google stuff and to keep as busy as possible for your mental well being, I hope you get some more helpful support soon. Meantime do come on here to find others who get what you are going through.
Hi Caz0, I too have recently been diagnosed with invasive micropapillary carcinoma GRADE 3 hormone positive and HER2 negative. You are right its rare and I’m struggling to find much info on it online.
I had a lumpectomy of a 13mm tumor and sentinel node extraction. 2 out of 3 nodes were affected. I’m heading for axillary node dissection in a couple of days.
Did you find out much more about IMPC? It seems it pretty much has the same overall survival rate as IDC but tends to have a higher rate of regional recurrence. So they tend to give the lump larger margins and more aggressive treatment. I’m yet to talk to an oncologist so will pick their brains when I do.
Go well. Let me know if you find anything more about IMPC.