Hi - I have been on letrazole for 9 months. I had 5 days of radiotherapy too. A couple of months ago I started to get a red rash (red dots) on my legs and thought it was from shaving with a lady shaver. I went back to a razor and it was still happening but not as bad and would die down after a few days after shaving. I am now on holding in Cyprus and the rash is also on my thighs so can’t be from shaving. Anyone else experience this taking letrazole? My body generally feels dry so chapped lips, dry mouth, thirsty in the night which I believe is also due to the letrazole. Checked blood glucose and I am not diabetic so I also suspect that this is a side effect of letrazole
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When I got it I was told it was my white blood cells getting low. I was on nab-pacitaxel, phesgo and carboplatin (I’m starting to forget the names so apologies if I’ve spelt them wrong, the joys of chemo brain).
Let the BC nurse or your oncologist know asap as you might need your chemo dose reduced.
You could even call the hotline for advice.
Don’t ignore it though or keep it to yourself.
I got it several times and a couple of times I got quite sick soon after and ended up in a&e.
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Hi eve17
Strangely enough I was reading about something similar only last night. I was waiting for blood results (today) mainly to do with liver, but as I’m tired all the time, they wanted to check for anemia. Anyhow, while browsing the web, there were a couple of articles about red blotches under the skin, relating to drop in white blood cells. A lot of medicines used for cancer treatment can have this affect, so as @sez suggests, it would definitely be worth speaking to your medical team. It may be nothing but worth checking.
Best wishes x
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Thank you sal1. Really helpful
Thank you sez very helpful
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Hi Eve17, I was thinking if you’ve been on Letrozole for 9 months you’re probably finished chemo (if you had it)?
I think the rash that can occur when you’re neutropenic is more like purple dots?
I’ve been on Tamoxifen for 4 years, it is also an estrogen blocker. Everything! is dry and my skin is so sensitive, I am forever getting rashes. I feel like I’m in someone else’s skin. I have seen my GP who says it’s a very common side effect. Have you tried E45 or calamine lotion?
If you can speak to your BCN or GP when you get home they might be able to suggest something to try to soothe it when it flares up.
Lynne xx
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Just remembered when it was at its worst with me I ended up needing a platelet transfusion as they were low. Could be something similar (though hopefully not so dramatic)?
When I first started taking letrozole, my hands would turn red when I had a hot flash and later my thighs would as well. It is a bit better now. Hope you are doing well!
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Thank you. I am back home now. Had to cover up totally when on holiday so eiseek help before I go away again.