I was diagnosed with lobular breast cancer in 2020. I had a mastectomy and node clearance followed by chemo and radiotherapy. It was suggested I go on the TrackER trial 18 months ago as I could be high risk of recurrence. Unfortunately CT-DNA was detected in my bloods. Although I am being monitored it’s obviously worrying. I have a gynea appointment tomorrow to discuss whether to have a hysterectomy to remove my ovaries Just wondering if anyone is in a similar position and what they have done. This is obviously precautionary.
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Hi there.
My first BC in 2006 was Lobular but triple positive. At the time, it was considered that the AIs were better for triple positives than Tamoxifen but because of my age, post chemotherapy they couldn’t properly ascertain if I was post menopausal. I elected to have my ovaries removed to settle the argument! Day surgery laparoscopically and home the same evening, so don’t worry about the surgery per se. It does mean instant menopause if you’re not there already. I had another Primary BC in 2022 but according to the Oncologist that was because I was HER 2 positive, which thankfully you’re not.
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I had breast cancer & mastectomy in 2004 followed by hysterectomy and oopharectomy in 2007. Last year I had a recurrence which was surprisingly ER 8/8 & PR 6/8 HER2 -low.
I thought i had no risk of hormone positive bc after hysterectomy etc. What Im trying to say is Im guessing you may still need hormone therapy.
Apparently the body finds other ways of making the missing hormones through fat cells I believe!
Good luck with any decisions you have to make xx