Reluctant to take Tamoxifen

Is anyone else reluctant to start Tamoxifen? I’ve had surgery and radiotherapy, I had a strongly positive oestorgen and progesterone tumour, I’m pre menopausal at 46. I’m fearful of the side effects of Tamoxifen, everyday I say I will start it tmrw…each day I havent. 

Is anyone else in a similar boat or am I just being over anxious re side effects? I know I should talk to my oncologist but I keep puting that off to as I’m feel I’m just  being silly. It’s getting me down :frowning:

Hi NettieC

I understand exactly how you feel - that was me about 2.5 years ago! You are not at all silly to worry about the potential side effects - if you read the leaflet or google who would want to take Tamoxifen. But everyone is different when it comes to side effects. If you read the various threads you will find a lot more negative stories about Tamoxifen because people tend to come on here to chat/get advice if they have a problem. However, many people get on ok with Tamoxifen. Touch wood, so far I have been ok - some hot flushes, but that could have been a result of now being menopausal. If you are concerned then you should speak to your oncologist, it’s not at all silly - I asked many questions.

 

One day I just took the plunge and took a tablet. I keep telling myself that the benefits outweigh the side effects. Please feel free to ask me any further questions if you think I might be able to help.

Best wishes to you

Evie xx

 

Hello Nettie

 

Completely understand your fears and am in similar situation, ER + and PR + tumour, lumpectomy, chemo and rads at 39 ?. Luckily my children are grown up and my family is complete.

 

I started Tamixofen on Dec 2nd, so 7 weeks ago and I can homestly say I have no new symptoms (chemo has caused joint pain and blasted my ovaries so have night sweats). I was incredibly concerned about potential sife effects but so far Im happy to be able to take a pill daily which will help protect me against breast cancer.

 

Talk to your onco team

 

Good luck

 

Helly xx

Hi

 

I feel the same. I have the prescription but have yet to give it in to the pharmacy. I know I have to. I think I will start this weekend. How have you been on it so far? I know it’s only been a few days for you X

I could have written your words just a few days ago, I felt exactly the same. But I bit the bullet 4 days ago and started it. I don’t feel happy about it and hate that I don’t really have much of a choice but I do feel better for having taken the plunge, if that makes any sense. At least it’s not hanging over my head any more.