So since my last update I’ve had more biopsies on the right breast and also a PET scan. Just had a phone call from the hospital, they want to do another MRI to focus on the right breast more. PET scan results today at 2pm. I dont know what to do with myself. Im absolutely freaking out that im gonna be riddled and its gonna be everywhere. Ive managed to hold it together reletively well so far and today I’m just falling apart at the seams. I was ok until they called and said I had to have another MRI. So far I’ve had an MRI, 3 ultrasounds, 1 mammogram, a mammogram guided biopsy ×2 on left breast, 2 biopsies on left lymph nodes, 7 biopsies on right breast (this was 6 samples taken in one day and then another one 3 days ago) and now i need to have another MRI. I feel like a bloody colander. Full of holes. Im grateful theyre looking into it all dont get me wrong but im just exhausted. Sorry for the long rant. I just know youll all understand xx
I don´t blame you for ranting, that is an awful lot of poking and prodding and I just hope you have had some good news from your pet scan because the worrying and waiting is just awful for the mind. Sending you lots of love and strength xxx
Dear Zara
I am sorry you have had so many biopsies. I found the ones I had pretty painful although they did fine needle aspiration in 2003 when I was first diagnosed. I think it was the fear that was worst. I was terrified of having breast cancer at 47. I don’t know how old you are but I thought that was too young. I haven’t got children but it must be very hard to be upbeat with young children. There are no guarantees, but I hope you will recover and I shall be sending positive thoughts in you direction. Good luck
Seagulls
PET scan results were clear everywhere other than where we already knew it was 
thank goodness!! Sorry for the late update. Im still waiting for a treatment plan and some more results from the MRI i had to have again. My biopsies have been sent off for some more testing elsewhere so again, waiting for those results too. Im hoping to get my treatment plan in 2 days time but we shall see! Thank you all for your lovely words of support!
Great news re PET scan. It is such an emotional rollercoaster as we try and navigate our way through all of this. I found the wonderful people on here so supportive when I was having my darkest moments. You will feel more in control once you have a plan in place, we are all routing for you .
Ok so, i have half my treatment plan kind of… so results on my right side still havent come back but im due to get those on the 11th. The left breast with the DCIS and IDC, and also in the lymph nodes will require a complete removal of lymph nodes, and a mastectomy. Then chemo and hormone blockers. If the right side comes back as pre cancerous, theyll remove that one too. Im having an immediate rebuild with the tummy skin and fat (DIEP?)
I’ve never had surgery of any kind and I am TERRIFIED.
I’m putting on a brave face for 99% of the people I come into contact with but my poor husband gets to see how frightened I am. Hes my absolute rock and I feel most comfortable around him, so when I cry, unfortunately its always to him (the poor guy lol)
I still dont know how our son will cope with all these new changes (possible hair loss, being in hospital recovering etc) hes only 8 and hes on the spectrum. He doesnt handle change well.
Anyway. I should be thankful that its all being sorted now shouldn’t I? Sorry to rant.
I just wanted to message to wish you really well with everything. It’s good to have your treatment plan in place. My diagnosis is different to yours. I haven’t had chemo but had radiotherapy and have been in Tamoxifen for six weeks. I am also starting Zoladex on Monday.
Like you my children are at the fore front of my mind all the time. I have two boys aged six and eight. My youngest is also on the spectrum and he is easily unsettled and anxious. Sending lots of love