Hello here I am again and in a right tizzy ( to put it very mildly ), please bare with me.
Because of trouble I have with meds ect I finally had my biopsy last Wed. The previous weeks had been spent visitng the hospital to have hypnotherepy once a week so I could undergo the core biopsy without anaesthetic. The biopsy was done successfully and an appointment made for me to go for the results this Wed. From what I have been told by the Dr at the hospital when they had their meeting to initially discuss my case they all agreed that from what they could see on my mamagram tended to make them think that the calcium deposits were on the benign side but they could not be definate. My mind is going into overdrive thinking would they have phoned by now if it was o.k or is it normal for them to wait untill your app. before saying anything. From what I understand the hospital I am under has differant days for dealing with each breast matter and Wednesdays are results day. I have been too scared to phone the b.c nurse to try and find out in case she tells me something that will make this knoring feeling worse. The only times I have spoken to her was when the appointments were being arranged I did not see her at the biopsy last week or at the previous weeks hypno session. I feel such a wimp whining on like this when there are so many on here that have been through so much more than this.
Well to-morrow won’t be long now eh . Thanks for your time in reading this rant. xx
Hi,
I know exactly how you feel. I had 2 needle biopsies done on my left breast before xmas followed by u/s and mammo and then he took a full biopsy and I was told on 23rd Dec all benign, lump just caused by normal hormonal change (I am 40). On new years eve I found another lump this time in my right breast. My consultant told me to wait for 6 weeks and if it was still there then then he would ‘stick another needle in me’ - nice! It was and he did… on Friday and said he would ring with the results on Monday - HE DIDNT RING nor has he done yet today (though when he rang me before xmas it wasn’t until 9 at night). I am going stark raving bonkers with the wait - can I just assume that if he hasn’t rung me all must be well? Or not? How can he be so arrogant not to ring - he must know that I would be worrying!
I do feel a complete fraud lurking and reading the threads but to be honest they are keeping me sane (its a relative thing of course).
Fingers crossed - all will be well (If my husband says that one more time I will scream!!!)
I know I could scream when talking to my mum and she says the same thing bless her she means well. I’ve no family around me they all live miles away and try to keep my husband sheilded from my upset as his health is not too good. My poor moggie is taking all the flack, I cannot understand how we can be left worrying if they already have results. Protocol with the way the hospitals are run or maybe they are so overwhelmed with their general workload they just cannot resonably get in touch with everyone personally so to speak. Best wishes x
Hi ladies
Please do not feel a fraud about being on here. Many of us have been in your shoes and we know exactly how you are feeling. Waiting for results is very hard but being on this site helps you feel that you are not the only ones by far.
Annielen - Start hounding your consultant and leaving messages for him to ring you. Get hold of his secretary and start nagging her as well. Crying down the phone also helps and expressing noisyly how you are feeling (I did this) and also I got my hubby to ring (I know, you really shouldn’t have to) but I did get a reply!!!
Duckess - Don’t feel a wimp and a whiner. Ring your BC nurse - it’s her job to explain the result procedure and keep you informed of what it going on. My BC nurse isn’t the greatest but lots of ladies on here have brilliant ones.
Keep posted, how you get on
xx
Rachel
I took your advice - why am I being such a wimp? I phoned the hospital - didnt’ cry and the receptionist said she would phone him right then… He called - BENGIN…PHEW. He said he left a message on my mobile yesterday - he had not. I hate him but have to go back in 6 weeks for a check up - don’t quite know why - didn’t ask - there’s that wimp again.
Thank you ALL SO much for all your help. You are all amazing (and very funny!) ladies!
annielen so pleased you had good results well done you for phoneing. Thanks also for the advice pinkrose wish I had done when I had time but be there to-morrow at 11. Have had a good cry and a shower so crossing fingers and toes now.
Best wishes to you x
Annielen and duckess, I so sympathise with you. For the last two tests I had, I waited and waited and waited and climbed the walls so high I was running around on the ceiling. I’ve only just had my results this morning (another thread) but I really do feel for you. It doesn’t get easier, but I don’t think it gets any tougher than this either.
Glad annie has had the results we all pray for, and halos are being polished ready for duckess.
Don’t worry that you didn’t get told on the phone. Some hospitals have a direct policy that says resuits may not be given on the phone, even good ones. (I can understand that, people think that because they haven’t had results then it must be bad - policies become known.)
Hello there. Well not long got back with results. Bit confused and will call b.c in the morning as I’m a bit emotional at the moment. Was told I have pre- cancerous cells DCIS. The surgeon wants to do a wire guided wide excision to remove rest of area they did not get in the biopsy under local aneashtic ( a very light dose because of probs I have with it ) and see where we go from there plus a few bouts of radiotherepy. This has been provisionaly arranged for next Thurs. They said it was up to me if I wanted it done, if left 50 50 per cent chance of it turning nasty in comming years. Also as they only have a part of the area biopsied cannot be hundred per cent that other changes have not occured in whats left in there. ( sorry if I’m rambling a bit still thick headed from it all.) So many what ifs going round in my head. Just having a very tearfull afternoon. xx
Hi duckess. Sorry you haven’t had a completely all clear. I was going to say something like “could’ve been worse” but that’s no help at all, as you already know this but what you’ve got is still crap! You go right ahead and be weepy if that’s how you feel.
Radiotherapy isn’t brilliant because of the side-effects that some people get, but the good thing is that it has been caught really early before it turned invasive and so is VERY treatable with very good outcomes.
Small comfort, I know, but I hope it is SOME comfort.
CM
x
Thanks ChoccieMuffin ( hope I’ve spelt it right ) I suppose we all at times have the habbit of thinking the worst outcomes especially when you are new to all the differant terms and conditions mentioned. It’s that old boggie called fear and of course the reaction of loved ones ( always hard to see them upset is’nt it). Determined to have a good nights sleep and wake up more possitive to-morrow. As I said it’s all the what ifs flying around my head, also husband is’nt very good at handling this sort of thing ( more weepy than me but then again he has his own health probs too so feels as if he can’t protect me if you know what I mean bless him. Thanks again for your reply much apprieciated. Best wishes x
Great news Annilen - you haven’t been a wimp, it’s difficult sometimes to make that phone call as you might not want to hear what is said. I’m so glad it’s benign and good on you for having this all checked out.
Duckess - you are bound to feel emotional. Write down all your questions, however small, before you ring your BC nurse in the morning so you don’t forget what you want to ask. It’s good that they’ve found this really, really early.
Watch some crap tv tonight and have a glass of wine.
Keep us posted.
Rachelx
Hi all
I had a diagnosis of highgrade DCIS in Dec 10 and was v emotional etc. Had WLE-wire guided and sentinel node biopsy on 21 Jan. On my discharge from hospital surgeon told me he thought he had got clear margins and that as the hospital does touch imprint cytology while you are under the general he could tell me that the one node the removed appeared to be clear. However full results are not available until I attend clinic on 17 Feb-nearly 4 weeks after surgery. I am driving myself crazy worrying about ‘what ifs’! More specifically what if they find that there is some invasive cancer or if the node wasn’t clear. I know this is not helping me but it is so hard waiting so long for results!!! Help… K
Two years ago I had a WLE-wire guided and 4 nodes removed I went through torture waiting for test results - nearly four weeks waiting to find out if it had spread - thankfully no - nearly a year YES a year to find out if it was hereditary, apparently they only test when they have a big enough batch, thankfully again no. Last Monday I went for my 6monthly check up and the Doc found a suspect area on ultra sound now I find myself waiting again till Friday!!! In the meantime I am imagining all sorts! When I had finished having the biopsy and a tear escaped the really helpful BC nurse tutted and told me she would find me a room where I could have a weep on my own!!! The Doctor and staff nurse looked at her in disbelief! They were truly lovely I cannot believe how unsympathetic this individual is she has now upset me four times - I dread her being around! The worst one was her drawing the curtains round my bed 1st day post op and discussing the size of my boobs, my blue nipple and types of Bra. This was all done in a ward with four male patients!!! Sorry about the rant ladies!
Emather
That must have been horrible for you. I have also had an experience of a bc nurse who was unsympathetic, less than reassuring at at original diagnosis seemed intent on handing me a leaflet on my ‘condition’ and getting me out of the door as soon as possible. It makes me wonder why they do jobs like this when they are so unhelpful, sometimes hurtful and unsympathetic!
Anyway, I really feel for you having to wait all over again to get the scan results. It is the worst just waiting and unfortunately we tend to imagine the worst.
I really hope you get good news on Friday and that you can walk away reassured and get on with your life. Maybe it would help to ring the support line and have a chat with someone?
Take care and all the best. x
Do Not Put Up With This Individual!!
The fact that she has managed to upset you 4 times and clearly other professionals found her manner distasteful suggests that you aren’t being over sensitive and she is being UNprofessional.
Having had dealings in the past with the health service (grandparents, Ma in law with cancer) I have found a number of staff to be unpleasant and frankly not doing their job.
I would have a word with your Doctor and possibly the Sister of the ward and explain that the way you were dealt with wasn’t very nice.
It makes my blood boil the way patients are sometimes treated and i really could rant for England.
Having now found myself at the receiving end of the NHS i ensure that I ask every question and chase up things people have promised. There can be a tendency to lose oneself once in the system but we need to remember that these people are doing a job, it’s not a ‘calling’, it’s not voluntary, it’s their profession that they have chosen and trained for. Sure, everyone has off days - but 4 times??
Blimey - sorry, not sure if this was the response you wanted, but really!
The thing i always remind myself is the fact that it is just a ‘person’, i wouldn’t ask them to look after my children cos i don’t know them, i wouldn’t give them my bank details so why do i have to take shoddy treatment just because they are administering the medicene?
GRRRRRRR
Emather
Is there only one Bcn at your hosp? We have a team so if you don’t get on with one you can change. I found mine quite abrupt and that she didn’t listen to me so changed to one who I felt was more empathetic.
A few people I know have found the first one a bit unapproachable but also have spoken to other whole like her ‘matter of fact’ attitude.
I guess we are all different but a bit of compassion is what is needed. I do think you need to find another nurse you feel you can relate to better. And you can report the Bcn if you feel she is lacking the basic skills as a nurse… Everybody can have an off day but 4 times just doesn’t sound like she is very good.
Sending you extra special hugs and if I can be of any help do get in touch xxxx
Thank you ladies for your kind words - yes there are other BCNs and I am going to take advice about complaining - I am a retired nurse with 32 years experience behind me and it makes my blood boil when I come up against people like this. Thanks for listening to my rant - still worrying about Fridays biopsy results - but worry changes nothing so I am trying to be positive - once again thank you ladies XX