Hi ladies
I’m coming up to 9 months after my diagnosis. Large mixed ductal and lobular cancer not seen on mammo. Initially node negative, ER+ve and 6cm. Chemo upfront. At mastectomy discovered 13cm of residual lobular cancer (didn’t know my breast was that big!) and both sentinel nodes were positive, so I had a clearance.
I’ve had to wait over 3 months to start radiotherapy due to problems with cording and not being able to get my arm above my head. I was finally started on Tamoxifden and Zoladex whilst waiting, but that was a good 2 months after my mastectomy.
For the last month I’ve been getting niggling pains in the middle of my second rib, just below my collar bone. It feels different to the costochondritis pain that I’ve read about. My radiotherapy CT plannings can has been looked at by my onc who said it’s not diagnostic but there’s nothing obvious. My BCN said to try ibuprofen gel for a month and then see my GP.
When do you trust your gut and ask for a bone scan, and when do you trust your team, even though they haven’t seen you? I hate all of this. Don’t want to be seen as a ‘worrier’