Does anyone else suffer badly from fatigue in their week off ribociclib and do you have any tips please
Might worth posting your question here https://forum.breastcancernow.org/t/kisqali-ribociclib-primary-breast-cancer-just-started-dec24/125728
I struggle SO much with fatigue from Ribocilib! I work full time and that’s about all I can do ie. no energy for aelse. I’m often in bed between 7.15pm-8pm because I’m so exhausted. ‘I. I think people think it’s just ‘tiredness’ but it’s way different. I try to ‘get on with it’ but sometimes it’s overwhelming and I feel like I can’t plan to do anything. The other week I was out for tea with friends and had to leave at 6.45pm, got home and then in bed by 7.15! I rarely moan to others - I’m lucky to be here!
This is exactly like me! I’m in bed at 7/730 every night where I’m so tired
Awh thanks for your reply xx I don’t think people ‘get’ fatigue. Sometimes I just go to bed in the clothes I’ve got on because I haven’t got the energy to get undressed! Also…embarrassing but…absolutely noxious farts!! No wonder they say don’t touch the tablets…I pity anyone downwind from me!
Hey, I’m 3 months in now & it’s been up & down.I work 4 days a week - by Friday I’m on my knees.
But I force myself to do some exercise as honestly it really helps. I joined the local leisure centre & asked what their lowest rank of fitness class was. So I go to Walkfit
twice a week - it’s just walking around a room, sometimes forward, sometimes back or sideways, with a little kick or clap ![]()
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As a non exerciser before, I was purple & steaming on way out. An older lady told me to take a paracetamol before as I said my hips hurt (joint pain).
It’s half an hour 2 or 3 times a week during my lunch hour, & honestly it just lifts me. So all these experts who said movement fights fatigue, it kind of does.
That said, if I do too much or have 2 social things on consecutive days, I’m done in & can’t move off sofa. That’s a right pain in the butt. I’m heading to Spain in a couple of weeks (first hol in 2 years), wondering how I’ll get on - or will just get up early to bag a sunbed !!!
Don’t let it rule you. But go easy around it.
Take care x
Lovely to hear from you and glad that the exercise is helping you
xx I’ve had a cold the past few days so was advised to come off the Ribo til it clears up When I can - the weekends mainly - I try to get in some exercise and fresh air walking my 2 fur babies. I think my main problem is doing too much in the mornings and early afternoons and then I’m goosed for the rest of the day! But we live to fight another day! Poppy (without the tongue out)and Paddy!
PS…hope you have a lovely holiday in Spain xx
Oh my, Poppy & Paddy are adorable - I’d just want to sit & snuggle with them all day!!!
Interesting re your cold. Have one just now actually (first ailment in this whole saga) & it’s wiped me out. Have oncologist phoned call tomorrow so I’ll ask about having a break. You never know ….
Have a lovely Easter @mc7 & everyone else. Sometimes there’s nothing for it but to hit those cadburys eggs & hot cross buns (roll on Sunday!!!).
Bless you @mabelmarm xx hope you feel better soon xx you take care and sending love to all us BCNers!! Xx![]()
