Does anyone else suffer badly from fatigue in their week off ribociclib and do you have any tips please
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Might worth posting your question here https://forum.breastcancernow.org/t/kisqali-ribociclib-primary-breast-cancer-just-started-dec24/125728
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I struggle SO much with fatigue from Ribocilib! I work full time and that’s about all I can do ie. no energy for aelse. I’m often in bed between 7.15pm-8pm because I’m so exhausted. ‘I. I think people think it’s just ‘tiredness’ but it’s way different. I try to ‘get on with it’ but sometimes it’s overwhelming and I feel like I can’t plan to do anything. The other week I was out for tea with friends and had to leave at 6.45pm, got home and then in bed by 7.15! I rarely moan to others - I’m lucky to be here!
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This is exactly like me! I’m in bed at 7/730 every night where I’m so tired
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Awh thanks for your reply xx I don’t think people ‘get’ fatigue. Sometimes I just go to bed in the clothes I’ve got on because I haven’t got the energy to get undressed! Also…embarrassing but…absolutely noxious farts!! No wonder they say don’t touch the tablets…I pity anyone downwind from me!
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Hey, I’m 3 months in now & it’s been up & down.I work 4 days a week - by Friday I’m on my knees.
But I force myself to do some exercise as honestly it really helps. I joined the local leisure centre & asked what their lowest rank of fitness class was. So I go to Walkfit 
twice a week - it’s just walking around a room, sometimes forward, sometimes back or sideways, with a little kick or clap As a non exerciser before, I was purple & steaming on way out. An older lady told me to take a paracetamol before as I said my hips hurt (joint pain).
It’s half an hour 2 or 3 times a week during my lunch hour, & honestly it just lifts me. So all these experts who said movement fights fatigue, it kind of does.
That said, if I do too much or have 2 social things on consecutive days, I’m done in & can’t move off sofa. That’s a right pain in the butt. I’m heading to Spain in a couple of weeks (first hol in 2 years), wondering how I’ll get on - or will just get up early to bag a sunbed !!!
Don’t let it rule you. But go easy around it.
Take care x
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Lovely to hear from you and glad that the exercise is helping you 
xx I’ve had a cold the past few days so was advised to come off the Ribo til it clears up When I can - the weekends mainly - I try to get in some exercise and fresh air walking my 2 fur babies. I think my main problem is doing too much in the mornings and early afternoons and then I’m goosed for the rest of the day! But we live to fight another day! Poppy (without the tongue out)and Paddy!
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PS…hope you have a lovely holiday in Spain xx
Oh my, Poppy & Paddy are adorable - I’d just want to sit & snuggle with them all day!!!
Interesting re your cold. Have one just now actually (first ailment in this whole saga) & it’s wiped me out. Have oncologist phoned call tomorrow so I’ll ask about having a break. You never know ….
Have a lovely Easter @mc7 & everyone else. Sometimes there’s nothing for it but to hit those cadburys eggs & hot cross buns (roll on Sunday!!!).
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Bless you @mabelmarm xx hope you feel better soon xx you take care and sending love to all us BCNers!! Xx
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Hi Stafford, how are you getting on? I’m in same boat, 200ribo, 6 months in… I find an afternoon sleep for 40 minutes helps, but obviously can’t do this when I’m work.., only working 2 days at the moment….
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Hi there I’m doing ok but the fatigue hits me late afternoon. But some days I’m ok! They’re changing me from letrozole to anastrazole due to hot flushes!
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Ok. How many months are you on ribo now? I’m 6 down… so 1 year 1/2 to go. I’m the same, it’s difficult adjusting to less energy… it’s good to hear others feeling it too… I’m on anastrazole and leuproreline. I find a sleep for even just half an hour in afternoon helps. I try to either exercise or walk 4 days…. If we can just stick at it … I’m on ribo for 2 years….. 
Hey mc , How are you doing ? Still on the Ribo?
It’s good we’re similar. I’m on rib for 3 years and I’ve done a year so far! 2 years to go!
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Hello newbie xx sorry for the late reply…I don’t always check the site xx
I’m still on the ribo and coping ok apart from the fatigue. Got some very awkward itching in the unmemtionsble area but not sure if it’s the ribo or the letrozole! The joys of sude effects 
still…we’re here and keeping ‘our game face on’! How are you doing? Xx
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Going ok mc. Doing 25 minutes exercise at home… squats etc. it really really helps. Still shattered by 7. Joint pains still but I’m keeping going! One more cycle done! 8 down. 16 to go … I joined the facebook ribo group. It’s very helpful.
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Hello newbie x sorry for the late reply - I haven’t checked in properly for a few weeks. Glad your doing ok on the Ribo and finding the exercise helpful…if not knackering!
Any other side effects yet? Hope you’re doing ok xx I’ve had a rough week tbh - a very nasty skin infection at the top of my thigh (looked like something from ‘the x files’, if you remember that?).10 days of antibiotics which are starting to kick in but then…yesterday I started with a cold so currently off both the ribo and the letrozole till things clear up. First time I’ve been off work since going backafter the radiotherapy so I think I’ve done fairly well despite the ‘clobbered’ immunity.
Sorry for moaning on!! Hope you have a good week and look after yourself xxx
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Hey mc7 ! All going well. I think it’s panning out. I collapse in a heap after work as I’m standing most of the day… the other days I’m doing ok …. I think after the first 6 months it’s getting easier.
Yeah that’s awful about the x-files thingy. I got an blister on my foot a few months ago which needed some strong antibiotics…
The exercises are going ok. Some days I only do 15 minutes. But I find it helps. I shower twice a day in really warm water and I think it helps the joints.
got a review for my next scan/ultra sound one year since my last surgery. Looking forward to getting through that.
Just went to a wedding in France. A number of people got campylobacter , but I didn’t get it thankfully!!! Thank God for small mercies…. Glad you’re keeping it positive! When the going gets tough….. the tough get going…
Lovely to hear from you, newbie and glad you’re doing ok. I’m currently off all the meds due to the infection. Weirdly, despite the side effects, I feel more vulnerable without them so hoping this clears up soon.
The wedding in France sounds gorgeous but so glad you didn’t end up with food poisoning ! Not nice at all!
Hope the scan goes well - let me know xx
Look after yourself - by the way, my name’s Sue. Xxx
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