Ribociclib and fulestrant starting today

So I had my final bit of biopsy result back yesterday. Was very relieved that it was Her2 negative which means I can start the plan today. I was told on the 31st of October that the cancer was possibly back. Since then it’s been scans and tests and turmoil. My husband and I don’t even remember November! I know it could still be a rollercoaster ride ahead but feel positive now treatment is beginning. Love and luck to all. ?

I wish you all the very best Nellie with your treatment and glad you feel positive.  As you say, it may be a rollercoaster, as for any of us, but you and your hubby have had weeks of tests and not knowing and now you can start the treatment.

Very best wishes to you xxxxx 

Hi Nellie,

How are you getting on with fulvestrant and Ribociclib? I have had 3 fulvestrant and am on my second course of Ribociclib, I am also on denosumab which I have had once. I have minimal side effects, was sick once then nauseous but cyclizine deals with this. 

I also have a pulmonary embolism for which I have been giving myself daily injections. I was feeling really down because of the breathlessness this caused, but now after 6 weeks I am starting to breathe easier, which making the world of difference to me, as I feel and look well. It is only just 2 months since my secondary diagnosis, so I am still getting my head around it whilst working full time and keeping things as normal as I can for my teenaged daughters.

Hope you, and anyone else reading this, are doing well

Kinden x