Thankyou! I am still in shorts! I did try some wigs but I donāt have a big budget and none really suited me. I was able to put my hair in a pony tail to hide some of the loss but when it got really bad, I wore a baseball cap. My hair is everything to me so that is more upsetting to me than losing part or all of my boob.
I hope your neuts return to normal soon. As for the pain, can your team not recommend anything? There are supplements for joint movement and pain but I donāt know which ones we are allowed.
Good luck ![]()
Just to add, make sure you are drinking plenty if water. Something Iāve struggled to do on abema is to keep my fluids up. Iāve had quite severe cramp a few times and I know those are the days I havenāt drank enough. I do find if I gulp the water down, it almost instantly gives me pains and give me cramps - even if I donāt need the loo. Sipping throughout the day is better. I did think about getting those āsweetsā for dementia patients but never have. Xx
Hi Melanie
To start with mine is now Stage 4 but it took 24 years after the primary breast cancer for the tumour in the chest wall to be found even though I pointed the lump out to my GP year before that and she put me on a two week urgent appointment for an ultrasound. Unfortunately the radioligist could only see the distorted rib (the tumour is growing under the rib) and didnāt refer me for any further investigations. A year later it was found by CT scan for something else!
Anyway, my oncologist would not put me on Ribociclib as I have diverticular disease and Palbociclib is kinder on the bowels. Even that was cut to the lowest dose after a few months. I also take Letrazole and monthly injections of Denosumab for the bones as the tumour spread to the sternum. I have been on this regime for 2.5 years now.
As for side effects, I have the brittle and thinning hair, brittle and breaking nails (Iām currently trying dr.organic tea tree nail solution from Holland and Barrett), muscle and joint pains which come and go, so not continuosly, feel like Iām on the brink some days, but my neutrophils have only been low twice and then not low enough to stop the treatment. (It was stopped when I was in hospital with diverticulitis and again at the beginning of this month when I had Covid). The Letrozole causes hot sweats but not as badly as when I was on it with the primary cancer. The bowel issues are mainly under control with the Cosmicol.
My weight fluctuates as sometimes I just need ājunkā food to feel better and at others I canāt be bothered to cook a good meal. It is higher than when I started treatment and I have had to buy some clothes in bigger sizes just to feel comfortable.
I keep hand gel in the kitchen and wash my hands a lot, especially after shopping. I also wear a mask if the shops are very crowded, but not usually. I use vinyl gloves if I have to touch raw meat but try not to and gloves for any gardening, not that Iāve had any energy to do much other than dead head flowers.
I try to walk a little most days - weather and energy permitting.
Best wishes to you. xxx
Sooooo happy to hear you are one of the merry band of posties in shorts
it is a proud group you are in company with ![]()
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even my posties in Scotland wore shorts, but they were bonkers too ![]()
Ok so you did try wigs out⦠Iāll look into that further then⦠just to get my head round it all.
I do drink quite a lot of water
each day, but weirdly I DID have foot cramps the other day, even though I was wearing socks.
so it must have been the lack of water
Interesting, I will up my game with that too. ![]()
Thank you for all your help and I totally get how you feel about your hair⦠it is our crowning glory.
Much love and enjoy this beautiful sunny day ![]()
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I am in Hampshire btw. M xxx
Itās a pre requisite to be bonkers when applying to be a postie
Hampshire how lovely, Iāve family in Dorset so occasionally drive through on my way to visit them. Enjoy the colours this autumn
xx