Ribociclib and hair loss 😕

Hello girls (and I guess a few boys as they have boobs too!)
For those of you on Ribociclib and aromatise inhibitors (I’m on Anastrazole) can you say if you have lost any hair, and, if so, after how many cycles, how much hair and where from please :pray:t2:?
I have only completed two cycles and have been saying that I haven’t lost any hair … BUT… this evening I was looking at my hair and suddenly realised why I haven’t been able to get it to look right… my hair is thinning at the peaks (?) either side of my forehead!! I cut my hair short in February after diagnosis of BC, simply because I wanted to be different’ facing this state. But this thinning, right at the front, so noticeable has knocked me sideways… I am supposed to be on this medication for three years… and I’m dreading it thinning more. I’ve always had a lot of hair and it’s kind of my signature (not much else to see) so it’s upset me a lot. I saw the oncologist today following my blood tests on Monday just, and he has given me another week off before starting Cycle 3 and has also said he will reduce the dose to one a day, instead of two… Do any of you have a similar experience and if your dose was reduced, was the hair loss reduced too? My husband has gone straight onto Amazon and bought the Regaine for women PLUS Plantur 39, so I’ll see what they do. Would be so interested in your own experiences of hair loss. Also, it’s not like it’s falling out in lumps,’or clogging the shower or my comb… just this sneaky thinning. :confused:
Huge love and strength to all your BC gals and guys out there! :fist:t2::fist:t2::fist:t2::fist:t2: we will prevail, even if we look like Jason Statham! :joy: m xxx

I will be on this 3 years after my chemo has finished and I am worried about the hair side effects too. How will it ever get a chance to grow back if it does all come out. I’ll be interested to see your journey and how you get on. Good luck.

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Hi there @mels. I’m on Abemaciclib and have had exactly the same thinning as you. I noticed it after about 3 cycles. I’m now on the 6th cycle. I’m also on Letrazole. After the natural menopause I had some overall hair thinning so I’m not sure if the Letrazole is contributing as well. One of my eyebrows has gone thin as well. I lost both during chemo and neither came back totally, and the right one was always worse but it’s thinner now.

I haven’t reduced the dose. My hair generally is growing back ok and I have now had about 4 or 5 cuts since chemo finished and the style I have now, think electrocuted hedgehog, covers the thinning bits at the sides :roll_eyes:

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Exactly :+1:t2: I have no idea what will happen to our hair and its ability to grow back… the sites say it’s just hair thinning, but that’s hardly an answer. I know we are all different, but, perhaps vainly, stupidly, I am finding this side effect the most difficult. I’ve been able to dress, make up, adjust bras etc to look ‘normal’ (horrible word) but losing my hair is so visual, so obvious. :pensive: I also sound totally shitty about this effect in the face of all the girls who have had to go through chemotherapy and had NO choice about their hair loss and to them, I apologise for sounding so childish. It’s all so horrible and it doesn’t seem to stop.
Thank you for your response, the time you took to do it means a lot right now. :pray:t2: m x

Hi and thank you for responding . So you are four cycles ahead of me… it’s all so interesting how we all react. I am 62 and was on the full gamut of HRT. Which is now cut off. Therefore, no HRT, impacted further by Letrozole etc , then Ribociclib knocking six bells out of our bodies… :disappointed: the hair thing has upset me and umm of you all if you are my age, have you noticed a difficulty pooing? I can remember my mother (who is 93 and still lives with us) desperately trying to poo when she was rising 50. She was taken off HRT at 60 and not long after, her womb prolapsed, her bladder prolapsed and her rectum prolapsed. Therefore, for the last thirty years, she has felt the ‘need’ to wee almost constantly due to her prolapsed bladder, she has had to use a ring to hold up her cervix which affected her sex life (she’s an Aries :aries:… I believe being hyper sexed is a thing … but I’m Pisces :pisces: so I’m still busy building a beautiful creative home :house_with_garden:) and her ability to simply have a daily poo has been upsetting. I now feel myself as if my rectum has dropped and is just enveloping my poo and crushing it in place, rather than pushing it through. It’s all so distressing :pensive: sorry for going off piste, but one idea follows another and I guess I need to offload… love to you all m xx

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