I’ve been prescribed Ribociclib after Stage 2 breast cancer and ‘may’ be starting it next week but… although I had my diagnosis and lumpectomy under the NHS, I was advised by two cancer surgeons to ‘have the radiotherapy privately if you can…’ not because the treatment is any different, but you can for the most part, pick a time which suits you, which you can’t on the nHS.
So I had 15 days of radiotherapy, which was easy ( for me) and thankfully did not need chemo. I’m 62.
But, I was prescribed Ribociclib two weeks ago… a week before it had been approved for the NHS and NICE. It is a HUGELY expensive targeted treatment (don’t feel I’m worth it…) but my husband says that’s “why he pays for private insurance…”
Has anyone had any experience of taking this new treatment? Does anyone know how it will pan out on the NHS , or will it essentially remain in the private insurance market for the foreseeable until the NHS/Government can negotiate a lower price tag…? M x
For your question about Ribociclib on the NHS, our specialist nurses may be able to give you more insight into that. You can get in touch with them here on the forum on the Ask our Nurses your questions board or on our helpline 0808 800 6000 which is open Monday to Friday 9am-4pm and 9am-1pm Saturday.
There is a chat about Ribo that has been ongoing since lt December and a lot of good info/how people are getting on. Can answer your questions and discussion on NHS. The link is
Ribo has just been approved by Nice for NHS in England for early breast cancer (with same requirements as privately). Being reviewed by Wales, Scotland and NI
did not need chemo. I’m 62.