Rural communities and small towns missing out ……. Again!

Is anybody else as fed up as I am that lots of support is available is available in major centres but not in rural areas and small towns.  In major centres there are secondary breast care nurses, psychologists/counsellors, dieticians/nutritionists, specialist physiotherapists and Maggie’s centres. I live in the country and have to travel to my nearest town for treatment where we secondaries have none of the above. I’m afraid to say that Breast Cancer Now is no better. I’ve just investigated their face to face groups and whilst I accept not all are up and running after Covid all the ones that are, are in big cities. Meanwhile we country-bumpkins are left to deal with everything on our own. I suggested to my hospital that secondary breast cancer patients need a specialist nurse I was more or less ignored and 18 months on there still isn’t one. Even the helpline doesn’t operate locally at the weekend. I was told I’d be put in touch with the on-call doctor for my area when I had cystitis one Sunday. When he rang some 6 hours later he revealed he was in Manchester, 50 miles from where I live. I had to research which chemist offered a 24 hour service because it was now too late to go to the on-call chemists who closed at 5 or 6. I then had to ring him back with their phone number. What a farce!

It makes me quite depressed to think I might have a better quality of life or even a longer life if I had access to professionals who understand what secondary breast cancer patients are going through. Contact with local ladies in a similar situation, to share info etc would be great too but how do I find them?

Rant over but I would love to hear what other rural ladies and gents who feel isolated think, and any suggestions as to how we can highlight our lack of support.

LLass :bouquet:

Lancashire Lass I don’t know if you’ve spoken to bcn directly over a phone about this, might be worth trying if not, bcn does hear our voices and could advise if you should write to your MP who could raise your concerns in parliament.  Also have you looked up metupuk website? The very beautiful amazing feelthefear from the forum was involved with metupuk, might be something to look at too if you have not already. :two_hearts: :two_hearts: :sparkles: :sparkles: Shi xx

Hi all,

Thanks for sharing your thoughts, it’s always really important to discuss those things.

We do run UK wide online groups each month that are peer to peer support groups (like our in-person groups but on Zoom). If you want, you can sign up here: breastcancernow.org/living-secondary-breast-cancer-online-registration

Also, a coordinator could phone the person, if they wanted to talk about the groups in more detail and find out more.

Separately, we run monthly online Speakers Live sessions which people can also sign up to at the same time, in the above link and we’ll keep them updated with what’s coming up.

I hope that’s helpful. Once again, thanks for raising this issue, it’s really important for the whole  community that these things are discussed.

Sending you all our best wishes,

Zoe