hi there everyone , havant posted for a while as have been up and down , mainly up recently as the new anti dep seem to of worked really well .
just looking for encourgment really , i have a scan on monday the 15th and i am getting the jitters as per usual although this time more so as the 2 oncologists seem to expect progression due to rising tumour markers ( up to now they have been reliable) , they started to rise after chemo ended and i started on aromasin. they say if progression it will be taxol and then maybe RFA , although they have warned me it does come with risks but i THINK i would be willing to try it .
I am upset also as i hear you lose your hair with taxol and mine has started growing back nicely now .
anyway any encourgment would be most welcome .
thanks and love to all xxxx
Hi Tracey
Just sending you my love- even if the next scan does show progression, at least you already know that there is more potentially effective treatment.
Good luck
india
thaks india , as the time approaches i think we all get so scared i know i get physically sick after and cant bear that phone call from the oncologist . i would be thriled for stable but am getting ready for the other .
Good Luck Tracy…I hope all will be well…the waiting is too, too stressful…Take Care…xx
Hi Tracy,
Just sending love, hugs and luck your way.
Val x
Good luck Tracy it is all the waiting… and it does take time for the anti deps to work… big cyber hug
Thinking of you Tracy - it’s the uncertainty that I hate. And I’ve decided I loathe scans as they have never (as yet - I must have a good one sometime surely!) brought positive results. But you will know what is happening, give yourself a while to adjust to whatever that means, seek the support/information you need to get you through whatever the new plan is and then try and enjoy what you can. Easier said than done but it’s the pattern of what I’m trying to do - with more success some days than others.
Good luck on Monday - and let us know how you’re doing. Lots of hugs Kay
thanks kay and everyone , where are yur mets kay? mine are liver and bone . last time i must admit i had 2 large wines before going in for results (and i dont drink hardly ever now ) not sure if appriopate with liver mets anyway . it really is one rollarcoaster ride all this , doubt i will ever get used to it .
love Tracyxxxx
Hi Tracy
I’ve just got one largish met in the liver (started at over 5cm). I’ve seen a liver surgeon - surgery is possibly an option for me if they can get it to shrink away from the main vein - and the oncologist and both have said to carry on as normal, including drinking (don’t think they mean to excess but am sure a little red wine won’t do you any harm). Is it an ultrasound or MRI? Don’t want the world to be spinning though as you lie down in the MRI tube trying to keep still and not get a headache from the noise!!! Sorry - got an odd sense of humour.
I don’t think I’ll ever get used to the rollercoaster either but I am trying very hard to accept that that is what I’m riding at the moment at least and that I don’t have the option of getting off it. Accepting it rather than fighting the rollercoaster itself seems to give me more strength to deal with the treatments and with battling the cancer itself. Sorry - had chemo today and my brain’s pretty addled!
Take care Kay xxx
I’m trying not to think about my scan due Thurs as you say never any good news… I can feel my liver is getting bigger by the minute …maybe its just fluid… who am i kidding>
Back to positive thoughts…it’s raining outside where is the sun?
well had the scan yesterday although it took forever as the doc couldnt find a vein , tried foot even , but ended up going through wrist yukkkkkkkkk .
wont know results until tomorrow so i feel like hiding under the douvet , am shaking already .
didnt know they read it so fast tho , i had just got changed and was sitting for 10 mins and the nurse came in and told me all done and the report is just going upstairs to be typed ! of course you read all kinds into that eh . if jennywren is about please come and calm me down !
Waiting is the the pits aint it!!!
Hi Tracy,
I’m with you under the duvet! I get my scan results this Thursday. I’m afraid it is very seldom scanxiety doesn’t get us all, so can I have some of your wine please??
Will be thinking of you and wishing you great results.
Jenny
xx
thanks jenny , will be thinking of you also and hoping for good results . what scan did you have a ct?
Dear Jenny and Tracy,
Good luck with your results. Scanxiety is a very good word. I’m having a bone scan on Friday due to the last CT showing a broken rib-no pain, not a clue how I did it, so the worry is I now have bone mets.
I’m finding chocolate a very good treatment, but a bit worried about the side effects!
India
xx
Hi India,
I think the side effects of chocolate are considerably lessened if taken with a glass of red wine…
Jennyxx