Hi Ladies, not really sure where to post this so thought may be here.
I had BC nearly 5 years ago age 28. Grade 3, no lymph nodes, ER+. On Monday I am having a brain/skull CT scan and am absolutely petrified. I have been getting this odd pain in my head now for some weeks. Its always on one side and feels not like a head ache but more like i’ve banged my head on something, an uncomfortable soreness.
After getting not very far at the docs I made an appointment with my breast surgeons team and now have a scan booked. The doc wasn’t overly worried and I think is being cautious but I am convinced something is going on.
I get the results next Monday 3rd Oct. Waiting for the results has to be one of the hardest parts of this rubbish disease.
I am 9 months away from finishing Tamoxifen and Zoladex and was planning on getting pregnant next xmas. Everything was going so good for me and now I am faced with this.
How do you ladies cope when your told you have mets, i’m terrified and can think of nothing else,
Really sorry to hear you’ve so much anxiety Mandy and hoping for reassuring results for you. Somehow you will “cope” with whatever treatment you need but the waiting is soooo hard. There are lots of treatments for secondaries now and along with the medical chemo approaches there are the latest stereotactic radiotherapy methods that seem to work very well for brains - and new treatments are coming out all the time. I’'m sure that once you have the results and if you need a treatment plan you will be able to focus again.
Thinking of you and hoping you have some support to help to divert your mind some of the time but the timing does seem so unfortunate…
Fran
x
I am so sorry that you are having to play the waiting game at present. It’s probably the worst time of all. Nothing anyone can say will make you feel better as no one knows the answer for you. All you can do is to fill your time as much as you can until the 3rd. How about starting on Christmas, buying presents, writing cards, making a cake, anything to take your mind off the scan.
Hi Mandy, I think we all agree the waiting is the worst ! I must be honest and say I found my diagnosis of secondaries harder to take than the primary one ! It didnt help that my GP called in one evening to personally tell me - that made it feel all very serious and scary. After I calmed down I discovered it wasn’t as bad and final as I first feared! I am on Bondronat and some pain relief and now Arimidex and two years on, I am stable and getting on with life. Back in July, my tumor markers had dropped to within “normal” levels. Should I deteriorate, my onc assures me there are other things they can offer me such as radiotherapy to the affected areas or possibly an op on one of the vertabrae that has a larger tumor on it. Many of us with mets live long and normal (whatever that is) lives. Also, have a read of the thread called “bone mets please join in” there are some very inspiring stories on there. Having said all that, I hope you have great results and your scans are clear and your worries dashed. Very best wishes, Debbie xx
Hi Mandy,
I know this is a thread from years ago, but i am experiencing the same symptoms you describe. What was the outcome/diagnosis of your head issue?
Wishing you the best!
Mandy