Well Ive just finished my 3rd xeloda cycle and had a liver mri today, now got the long wait till wednesday for scan results, has it worked???
Feeling aprehensive because Ive tolerated the xeloda pretty well so far no side effects really and the thought that it isnt working and I may have to go back onto a tougher regime is just crap! also at the back of my mind is that I may be running out of treatment options you know Ive had so many over the last few years, is there an endless supply to try??
Asked my onc to put me back onto the zoladex injections for peace of mind really, he agreed so maybe the hormones or lack of them is making me feel pretty down at the moment, who knows.
Thanks for listening, I needed a good moan,
take care
sue xx
Hi Sue,
Can appreciate where you are coming from, had to change meds myself because of further spread (also have mets to the liver), got a scan scheduled for the end of april and then onc appointment on the 14/5 to discuss whether this med is working (aromasin) or if I need to go to Xeloda. It’s hard, but I struggle to get on with things and not dwell as I am sure you do.
kiwi
Wishing you all the best with your scan results Sue. I am having one next week to find out if xeloda is still working (hardly dare even write it for fear of rocking the boat) so know how you feel.
Will be thinking of you,
Jenny
xx
Hi
I totally relate to scanxiety!!! Especially when it comes round every 3 months plus I’ve an MRI scan soon on top of my CT scan.
I remember my oncologist telling me a while back that I probably know before her if I felt unwell (I’ve liver mets as well). Not sure how true this is but it certainly was for me back in 2006 - I started to feel unwell in the May and it wasn’t until the September when the scan showed a deterioration.
Pinkdove
The problem for me is that I haven’t yet had any aches or pains that are identifiable as cancer related so I have this picture of this nasty thing growing silently and undetected. Must try not to be paranoid. I know what you mean about measuring your life out in teaspoons though - even when the result is good it still feels like being given permission to live for a few months more.
Barbara
Thanks ladies,
Still feeling aprehensive but trying to push it away, Im on the countdown till wednesday now!
My last scan showed a new 11mm lesion so am hoping things have improved just the waiting that annoys me, Im one of these people who likes to have plans in place and know whats happening and when, hate the thought that the results are sitting on a desk somewhere and I dont know them!!
Take care all
Sue xxx
Well results are in… and they show progression to at least 5 other sectors of my liver, so xeloda didnt work for me - this is the first chemo Ive had that hasnt worked, so next week Taxol, seeing as how my cancer responded well to Taxotere my onc wants to put me on weekly cycles this time, its been 18 months since I finished taxotere and from what I can remember it wasnt too kind to me, cold cap here I come again.
Hope all who are waiting on results get good news, Im off for another good cry
take care
Sue xx
Oh Sue, I’m so sorry. I think we just have to find the chemos that work for us. Taxol just kept me stable, while it sounds as though taxanes work really well for you.
Hope you feel a little bit better after a weep…
Jenny
xx
Sue I’m so sorry it was bad news. What a pig. And going back to the chemo’s no joke.
At least they’re getting you started quickly on the Taxol.
Treat yourself gently, and make sure you get lots of kindness and hugs from those around you
love Jacquie x
oh so sorry sue . i have heard lately that xeloda has not worked for a few i know . i dont know if its working for me yet as i have had no scan yet . think about it every day and worry . i hope the next treatment will be the one .
love Tracy xxxx
Oh Sue
That is an absolute b!**!!!. You must be so disappointed. As Jenny says though, it is a matter of finding the treatments that work well for us as individuals and just because xeloda hasn’t worked well, doesn’t mean Taxol won’t. And at least you don’t have too long to wait until the Taxol starts. I had 18 (weekly) sessions of Taxol (and Avastin) last year and it worked pretty well for me on my liver mets.
Fingers crossed for you. And lots of cyber hugs
Kay x
Sue ((((((((((mega hugs)))))))))
What an absolute b*stard!!!
Hopefully the Taxol will have good results - fingers crossed for you!!!
And, if you are sitting at one of the Cold Cap machines that have been donated by Anne Milne, then thats a real Good Luck hug from me!!!
(I did fundraising to purchase 2 of them for Countess of Chester, they didnt want them so they are used at Clatterbridge!!)
Take care of yourself
Love and best wishes
Anne xx
Thanks girls,
Still feeling on a real downer about it all, Forgot to ask how many sessions, didnt want to cry in front of onc just wanted to get out of there quickly, he did mention steroids and weight gain - GREAT have lost 2 stone on vinoralbine last year (the only good side effect i had!) and was managing to keep it off so am p*****d off about that aswell!!
Goto get roots done before any cold cap so a possible 18 weeks without will have me properly 2 tone (or should it be 3 tone with the grey!!)
Well am now on the countdown again to the dreaded Wednesday, I hate that day!
Take care all, have a good weekend Im going to eat and drink myself silly!!
Anne - will specially ask for your machine!!! When did you donate?? Ive probably been using it all along I do usually have the same one, I kind of remember a couple of years back looking particularly attractive tied into one and being introduced to ladies from countess who’d donated new machines could of been yours!!!
Hugs back at you all, thanks for being there
Sue xxxxx
Sue
I havent actually been to Clatterbridge to see the machines in their new homes - but my cousin had sat next to one last year and she sent me a photo. (Sad hey but I was too raw and p1ssed off to go there even though I was invited)
They have a brass plaque on them with The Anne Milne Cold Cap Appeal engraved.
I had a mega run-in with Countess over them - and was only too happy for Clatterbridge to house them so that lovely ladies could benefit 
Even more hugs!!!
Love Anne xx