Scared and desparate
Scared and desparate Where do I start??? I’m a 40 yr old mum of 2 (3 & 5). I was diagnosed with breast July last year and underwent chemo, surgery and rads. I finished my treatment on 23rd April but three weeks ago started having severe headaches and last week dealt a double whammy of brain and liver secondary occurence. I had the brain tumour removed within two days and was out of hospital the next day, since then I have been weaning off the anti inflammatories slowly (about halfway thru) but I feel like my functions are ebbing away, everything is still working, but I have a “absence” in my feet which I just can’t shake off. I have spoken to the neuro ward without much success to be honest, because I’ve not lost any function. I feel like I’m losing my mind quite frankly and I can’t sleep which is obviously really not helping at all.
I saw my GP today and the surgery nurse and they gave me every reassurance they could be I just cant shake this feeling off.
I know no-one out there can help but just typing my fears in gets them out without scaring the hell out of my husband.
Thanks
Further Support Dear Alli
I would firstly like to welcome you to the forums, I am sure you will find support here.
I am sorry to hear you have been diagnosed with seondary breast cancer. You sound like you are having a tough time.
If you would like to talk to someone in confidence about how you are feeling at the moment please don’t hesitate to call our free helpline on 0808 800 6000 for confidential support, a listening ear and any information that you may need during this difficult time. The team can talk through the complexities of different treatments and conditions and I am sure you would be able to answer some of the questions you have.
The helpline is open Monday to Friday 9am-5pm and Saturday 9am-2pm.
Kind regards.
Forum Host
Breast Cancer Care
it is still very early days i was in hospital a week and a half after i had a tumour removed from my brain and it does take time for the body to regain its strength i had radiotherapy then a follow up brain scan try and take each day at a time but if you are worried at any time ask your oncologist mine is always reassuring but gets things done if need be x -rays scans etc. by the way i know what you mean about scaring the hell out of hubby!
RE: SCARED & DESPERATE DEAR ALLIW,
HI ALLI, HAVING READ YOUR POST, MY HEART GOES OUT TO YOU.
ITS ALL HAPPENED SO QUICKLY FOR YOU. NOW YOU HAVE THE DOUBLE WHAMMY ( AS YOU CALL IT).
PLEASE BE ASSURED THAT (ALTHOUGH I HAVE SEC BONE METS)
HOPEFULLY WE, AS YOUR FRIENDS CAN HELP IN ANYWAY WE CAN, SO THAT YOU CAN UNLOAD YOUR PROBLEMS AND IRRITATIONS ON THIS SITE. AS FOR YOU LOSING YOUR MIND, I FEEL THAT ITS VERY EARLY DAYS YET, SINCE THE OP FOR YOUR BRAIN TUMOUR. AND IF IT HELPS AT ALL, I ALSO HAVE AN ABSENCE IN MY FEET (WHICH I WAS GOING TO POST TONIGHT)
THEY DO NOT FEEL PART OF ME!! STRANGE THOUGH IT MAY SEEM. BUT I HAVE LOST SOME FEELING. YET I HAVE NOT HAD THE SAME AS YOU. WE ARE ALL SO DIFFERENT BUT MANY OF US HAVE THE SAME THINGS HAPPENING. SO MY SWEET PLEASE BE ASSURED THAT LOTS OF THESE THINGS HAPPEN TO MANY OF US
SO TRY NOT TO PANIC YET!! PLEASE KNOW THAT YOU CAN ALWAYS PHONE CANCER BACUP, THEY ARE WONDERFUL THEIR NO IS: 0800 800 1234 (I HOPE THIS IS THE CORRECT NO)BUT I AM SURE SOMEONE WILL CORRECT ME IF NOT!! THEY ARE VERY EMPATHETIC. THEY ALSO ARE VERY HONEST WITH YOU TOO.
I DO HOPE THIS HELPS YOU, IF NOT I AM A CHRISTIAN, I PRAY TO GOD THROUGH GOOD TIMES AND BAD. HE WILL HELP YOU ALLI. I WILL PRAY FOR YOU TONIGHT. TAKE CARE, I WISH YOU GOOD SLEEP TONIGHT. GOD BLESS. LOVE & HUGS. POPLARLADY XXX
Thanks guys Thanks guys for your reassurances. Still have the absence but got my hubbie to take me to see an emergency gp who said that he thought the anti inflammtories are actually to blame. So trying to take that and hold it tight.
I know it’s early days and everything happened really quickly so my head is really not in a good place. But today was a better day.
love to you all