I found out today that my breast cancer is now attached to my spine. I know there are multiple Mets, but I don’t know how many or How Deeply they are entrenched. I don’t know if this is one patch on my lower spine or if it’s spread throughout my body. I’ll find out more Monday. Monday seems like forever from now and I’m frightened. I’m four and a half years out from my diagnosis, and I’ve not been this frightened ever.
Is anybody out there? is there anybody looking at this it has been through this and can give me an idea of what to expect?
And can anybody tell me when it gets a little less frightening?
Hello Deansmom, so sorry to hear that you are suffering. I had several radiation treatments done urgently as my bone mets were right down my vertebrae amd the rest of the bones. The treatment has kept the bones stable ever since, you will probably be put on Denosumab to strengthen your bones. I hope you get a good report on the rest of your organs. Most of us long timers on here including me have a lot more spread but are kept going by all the different treatments.
Hope this helps.
Ramade x
Hi Deansmom,
Appreciate how you’re feeling, I’ve got mets in my upper spine, diagnosed straight to stage 4 over three and a half years ago now and things, luckily, have gone well so far.
Once you get over the huge shock and get your treatment plan in place, I think things will settle down for you.
I cut the hedge, which is taller than me, (with a battery operated trimmer, wouldn’t trust myself with a cable!) earlier this week, something I didn’t think would be possible prior to my diagnosis because then I was getting pain in my neck, but since starting on treatment it doesn’t bother me at all.
Good luck on Monday and let us know how you get on.
Kate x
So sorry you are going through this. It can be terrifying i know but once your onc discusses treatment you might start to feel.a little more in control. This is so hard isnt it . You are not alone x
hi like the others have said quite scary and devastating for us. I was 14 years b4 secondary diagnosis initially told lump was scar tissue then 5 months later told I had recurrance and secondaries in chest not bones then yes it was in bones spine and pelvis. After initial shock now have been on letrozole ibrance and denosumab for bones changed to zometa now which is cheaper and apparently as effective. 4 out of 6 tumours smaller and things stable been on treatment for a year, get 3 monthly ct scans due next one at end of month. There is hope and successful outcomes.Its a lot to take in keep asking questions and its good we can pass on info here.hope your appt goes ok x liz
If I’ve done what I if I’ve done what I think I’ve done, this should reply to everyone - I hope! First, I want to thank you all for your kind words. I let my fear over-rule me. That was unacceptable and I apologize. My oncologist has been saying for two years that this is hopeless, it would continue to spread, and once I failed chemo, there was nothing more he could do except pain management. Apparently, the drugs you spoke of are not available in my area, or he is unaware of them. Thank you again for your kindness. I hope the best for all of you.