After fifteen years clear from breast cancer, it has decided to revisit in my lungs and pelvic bone. Consultant is starting me with ribociclib and letrolole, can find plenty of clinical reviews but struggling to find reviews from people who are going through treatment. Anyone able to help please
Chowchow
go to forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/Kisqali-ribociclib/m-p/1203481#M75971
Bon xx
I am on letrozole and palbociclib for secondaries in lungs and bones been on treatment for almost a year scans show 4 of 6 tumours smaller things stable had inital treatment 14 years ago. Minimal side effects on oral treatment take astragalus and turmeric to help with white cell count .liz
Hi I am on this drug combo and so far so good.
Yes, the Letrozole does cause some joint pain but keep well hydrated.
When you take the Ribociclib, definitely take it with food and take your time.
Thankfully my WBC have been pretty stable. Minimal diarrhoea, more like soft stool.
I am also on calcichew and monthly Zometa.
I was diagnosed stage 4 from the beginning in March 2018.
ER+ mets in hip and sacrum.
Gina