I have just unbelievably been diagnosed wit has secondary breast cancer in my bones 10 months after breast cancer diagnosis.l gave been taking letrozole for 8 months so how can this happen l am scaredelighted and confused
It’s such a shock. There are many ladies who cope with bone Mets and there seem to be many treatments. Join the bone Mets please join in thread. There are loads of posts there and I read all of them curled up under a rug. Very helpful. Be kind to yoursel
Hi LCM
It is very scary to have a secondary BC diagnosis and obviously totally unexpected only a few months after having had primary BC. There will be other treatments options available to you, it could be that your BC doesn’t respond to the type of hormone treatment you were on. We are here to help and share our experiences of various treatments and general questions that will come up. As I’ve said to Anne30 on the main ‘Bone Mets ‘ thread, try not to Google, it will scare you! Stick to websites like this where they provide support and information sheets rather than quoting statistics and the members are all ladies going through the same things and can therefore support you once you know your treatment plan.
Nicky x
I feel for you & my case is simpler. 11 months out of treatment for BC & I’ve got secondary to the lungs. The sad thing is it’s takeb them 3 months to finally diagnose & I feel very let down. Just about to start the treatment this week. Hopefully we can do our best to not let this cancer win this fight! All the very best to you xx
I feel for you very deeply. So disappointing after only 11 months. I was diagnosed stage 4 from the start and have three small areas on the bone. I am very low today which is unfamiliar territory for me. You seem to have been very unlucky only to have had 11 months. Some people are clear for years and years. I am very recently diagnosed but there are women on this forum who have been coping with this for years and they have generously offered advice and support to me and I’m sure they will to you too
Hello sandy
Welcome. .nothing in the world of hospitals seems to move fast does it ? I feel a bit let down too as November 2017 my scan showed stable bones only. Had scan Feb 2018 …waited 6 weeks for results and to see oncologist to be told now progression to lungs and liver …I have now changed treatment .
Please keep in touch as we all can support u.
Hugs xxx
Oh dear that is disappointing and alarming. Cancer seems to be see unpredictable. I very much hope your next treatment works well x
Thank you so much for your support xx
How are you getting on? Hope you’re okay? It’s all very difficult and shocking x
I’m due another ct scan on Monday & I can’t help feeling very nervous about it. The last scan was January 18 & that’s the one they reported nothing sinister. Struggling with fluid in plural but they want me to continue with chemo (tablet form) in the hope this will slow the fluid down until we have the ct results. Then they may re-evaluate the fluid problem. Small mercy’s the sun is out today & we sitting in the garden having a small beer.
Cheers Sandy x
Hi sandy
Waiting for scan results is such an anxious time isn’t it? I had a ct scan yday results in 2 weeks - trying to keep myself busy until them. Making the most of the sun too just back from bike ride now basking in garden! Are you having a lot of symptoms from the fluid - perhaps they would consider a chest drain until chemo kicks in if you are struggling ??
Sarah x
Hi ladies
I was diagnosed with a secondary on my sternum 3 months after primary, back in October. At the time I was halfway through 8 rounds of chemo before surgery, had had a blood clot so had PICC line removed and was starting 3m of Tinzaparin. Unsurprisingly the implication of the secondary didn’t even register at the time.
Am now post mx and SNB, with 15 shots of radiotherapy which included the sternum, finished yesterday, and the horror of diagnosis is now just starting to sink in.
I am HEP2+ so am having Herceptin and Pertuzumab 3 weekly but the doctors have indicated that they might stop this in October, after 12m, if my PET scan is then clear. This is causing me huge anxiety as I feel that if the scan is clear it means the treatment is working and keeping the cancer under control. And therefore don’t understand why it should be stopped? Equally if it’s not clear, then something else needs to offered as it clearly didn’t do its job.
Has anyone else continued with Herceptin and Pertuzumab beyond the 12 months? Thanks xx
I have just done my first cycle of palbociclib. I haven’t had any side effects and my breast lump has gone down a bit. I hope it’s working on my bones. It’s worrying to heat about all the side effects. I hope they get better