Hi everyone this is my first post although I have followed the threads on this site for almost 2 years since I was diagnosed with secondary BC in the bone, with just a mm nodule on my lung which hasn’t changed. However, I have just been told that the BC has infiltrated the bone and is attacking my healthy blood celIs. I start chemo tomorrow. Epirubicin, weekly for 6 months and if this is successful, which I was told is hopeful. I understand this is rare, but I thought I would be able to find at least a thread about it, but I can’t. Is there anyone out there with the same or similar diagnosis as me? Someone I can just exchange threads with. I’m really scared and my family don’t know how scared I am. Tetalove x
Hi tetalove
I’m sorry to read of your recent diganosis. Whilst you are waiting for the other users to reply you might find it helpful to talk things through with a member of staff on the helpline. Here you can share your thoughts and concerns with someone who will offer you a listening ear as well as emotional support and practial information. The number to call is 0808 800 6000 and lines are open weekdays 9 to 5pm and Saturday
10 to 2pm.
Best wishes Sam, BCC Facilitator
Hi there again, I’m sorry to see that I haven’t had any responses to my post except from the moderator, (thank you). I think I feel more isolated now than before I wrote my post. I’ll let people know how it’s going for me and perhaps someone might join in as time goes by?
Take care, Tetalove (Chris) xx
Hi Tetalove. I saw your post and wondered how you are doing. I too have secondary breast cancer infiltration in bone marrow. I’ve been told this is rare for it just to come back there. I posted originally in March 2017 when I got diagnosed and again I was disappointed as nobody was in the same boat as me. I had weekly taxol for 18 weeks and it helped with my bloods tremendously. Platelets have recently started to drop again and on Xmas eve started weekly Epirubicin. It’s such a roller-coaster of emotions. It would be good to share posts. Take care