Hi all,
I had breast cancer in 2010, which was Grade 3 hormone sensitive ER 7/8 and progesterone receptor 6/8, I had chemo and radiotherapy and finished treatment in 2011, my medication was Tamoxifen. Because I was getting pains in my lower back stiffness it was requested that I have a bone scan which was clear.
I moved to New Zealand in December 2011 with my husbands work 3/5 yr contract with the RAF.
I have been experiencing lower back back, but put it down to the bed and can you believe it shorts I was wearing in bed. In the beginning of February I stumbled and felt a clonk in my lower back, thought nothing of it at the time, but in the morning my back was really sore, after a week, I made an appointment with my GP, who said it was nerve damage and can take anything up to 4/6 wks to get better. During March I made another appointment with my GP (because it wasn’t getting any better and as a family are due to return to the UK in April) he referred me to have xray and to see spinal surgeon. The xray showed arthritis in my hips and a L5 disc that was thinning. My appointment with the surgeon confirm this however because I mentioned that I’d had breast cancer was told to have MRI, the MRI report was widespread bony metasteses and multiple liver metasteses.
Prior to my stumble I had no symptoms, so am hoping i’ve caught it early.
I am waiting for CT and Bone scan and biopsy of the liver and have been told it would be wise for me not to return to the UK due to clots.
I have changed my nutrition, a friend mentioned Dr Budwig, very interesting read on her work with cancer, and another friend has mentioned Salvestrols.
This has been a massive shock to me and the family getting cancer again, so thought i’d beat it, and being told I have secondary cancer which is classed as incurable is hard to take in.
I’m a fighter, as I expect most of us cancer sufferers are, but would love to hear from anyone else who has similar cancer as me.
In a way it’s lucky I did stumble otherwise it would have gone undetected.
xx Karen xx
Hi kaz1967
I’m sorry to read of your recent diagnosis. Whilst you are waiting for the other users to reply with their experiences you may find it useful to have a look at the BCC information page on secondaries. Here there are details of the publications and support that is available. Just click on the link below and it will take you to the page:-
I hope you find this helpful.
Best wishes Sam, BCC Facilitator
Hi Karen
I also live in NZ (Wellington), and have BC with bone mets.
One NZ organistaion you may find helpful is “Sweet Louise” (sweetlouise.co.nz/). They offer information, advice, support and a range of practical and therapeutic services that will help women and men with secondary breast cancer lead more positive lives.
Karenp