2014 Had bi-lateral breast cancer Left Grade 3, Right Grade 2. Lumpectomy on both. All cancer removed with clear margins but found HER2 positive so had Chemo (Docetaxel and Carboplatin plus Herceptin. Followed by radiotherapy.
Annual mamograms have been all clear.
6 weeks ago started to feel unwell. Urine infections diagnosed. Blood test came back showing raised enzyme levels. Investigated further, found to be liver rather than bone. Pain under right breast moved to lower side.
Yesterday had ultrasound - diagnosed with Liver Cancer. Gutted!
Awating CT scan then results will got MDT at breast care when they will decise what happens next…
We all know exactly how you feel when you get a secondary diagnosis, the shock and fear is awful. We do all learn to come to terms with this diagnosis and this often happens once you have a treatment plan in place. At the moment there doesn’t seem to be an active liver mets thread, there used to be, but we do hang out on the Bone mets please join in thread, even if we don’t have bone mets.
I have been living with bone mets since 2008 and liver mets were added into the mix in 2013 so I do have experience of liver mets. Depending on your receptor status for your primary you will follow a treatment path for that unless the oncologist thinks that your secondary is not the same as your primary. As you’ve mentioned HER2+ you will have a treatment plan based around that, unless anything is different. Once you know what that plan is you can look down the list of thread topics to see if there is an active thread where you may be able to find out more about that particular treatment. Otherwise asking other questions etc works. Hopefully you get some other responses as well and you also find out what your treatment will be quite soon, although it sometimes seems to take a while for the oncologists to get everything organised as extra scans can sometimes be needed.
I am so sorry to read this and it sounds like you’ve had such a shock. I was diagnosed originally in July 2013 and with my secondary January 2017 of which it also has spread to my liver. I was put on an oral chemo Capecitabine of which I think is a much more doable chemo from the intravenous ones. I’ve had some side effects but not horrendous, my hair thinned a lot but it hasn’t gone completely this time. I’m am lucky to be still on my first line of treatment after 3 years and at first my lesion reduced in size considerably but I thhink I’ve been stable now for nearly 2 years. I hope this reassures you a little and once you’ve got your head around things you will learn to live with this as your new normal. If you have any other questions don’t hesitate to ask or private message me, sending lots of love.