Ali and Mishy
So true! I do have a large supportive network and thats only 3 out of the crowds,hahaha but b4 this I would have tolerated them…not now!!!
I’m enjoying Merlot the cat for company at the moment…although he’s an attention seeker too??
Survived day 6 - thanks for all the sharing that some of you had teary days at this point too… it means a lot that you share the challenges and it all helps.
Weird day involved taking photos of wounds for the care team! The joys of rural living. Luckily the sickness is away so maybe this FECer is going to turn a corner after all…
Loving the ass kicking feedback too! Power to you all - have a great night! X
Fairy dust ???
thank you shi xx
Deep breaths Mrs meow. It does pass but it is totally horrible when you’re going through it. I think I read on one of the other chemo monthly threads someone describing themselves feeling like roadkill! I’ve robbed that fab description which I now use at home so my husband & boys know how **bleep**ty I feel!
on a similar note Mrs Meow, I had ‘before’ photos took of my boobs the other day in readiness for double mastectomy in January. Not my best moment! from every angle too! with my Bridget Jones knickers on which were hiked up that high under my boobs, the photographer gently asked if I could fold them down a bit for a ‘clearer shot!’??
Fairy dust the thank you was for what you put on Oct thread, really helps us chemo starters a lot knowing there is such lovely people on the forums who kindly share all their knowledge and experience on this journey, a journey that would be impossible without the amazing people on these forums. ??shi xx
Ha ha ChasnDave that made me laugh ? and reminded me that a friend of mine had a melonoma removed just before my op in August, after my op she showed me pictures she’d taken of her leg and scar and asked if I’d taken a picture of my boob after the op ? Not sure who she thought I’d be showing it to!
CK, just scrolled down and read your post! Well done you! When I was diagnosed I wondered how I’d cope as I don’t have a huge support network (my family all live 2 hours away apart from OH). I have been surprised how many people have rallied round though.
Hi All, after being totally wiped out on day 6, today, day 7 has been a much better day for me. I had an upset tummy a couple of yimes but i think that is just a result of all the drugs!!
The main difference with this 2nd cycle is how using the mouthwash and oral gel from day 2 has headed off my sore mouth. By this time last cycle my mouth was so sore and bled when brusing my teeth. This time it isnt. My mouth is still dry and tongue a bit rough but although the soreness started it has not developed xx
Morning all, day 8 for me and feeling ok!! CK how are you?
Mrs meow i hope you are feeling better today and Fairy on the horrible days i think ‘I am not doing this any more!!!’
We will get there ladies! Hope its a nice day where you are as its lovely here in Liverpool xx
Hi ladies. Thanks for asking Ali.xx
Chemo 3 day 9 today and feeling pretty normal apart from tired legs. I braved it and attended a charity function last night and did a lot of walking and actually danced! Usually I’m over chemo daze by day 6/7 & yay, yesterday last GCSF injection til next cycle!
For 5 hours I actually put BC aside, practically forgot about it and I think my friends who know were more emotional than me!
I did get a lot of ‘You look really well!’ and when I told them I had a wig on they actually did look shocked! But the wig did start hurting a bit as the fastener is a little too tight! Next time Im going to use tape instead. I asked my friends if they would luke to see my bare head on the way home but they said no! Its strange really as it wouldnt have bothered me, but would them and they said ‘Its not you then!’ ? erm , but it is me!!! It was a scream when we left the Hotel as it was really windy and I had to hold on to it for fear of it blowing off?Next time I go out I am going to take a hat to change into for the journey home!
We stopped off at McDonalds at 12 midnight and a Fillet of Fish and Vanilla Milkshake went down very well! Funny though as had a top 3 course meal at the Hilton Hotel earlier on!!Just chomping all of the time helps the funny feeling in rhe stomach!
Anyway, apart from a few aches and pains as usual cycle 3 has been simular to the first 2 cycles. My V pillow has been fab for my neck and back! You deffo need one!
I did invest in a hand and arm squeezer which helped a small ache which went up my arm and I assume its from the treastment as I have it through a cannula. I just sweeze this sqeezer when Im watching TV! It has helped!
Coconut wax on my bare head has helped as it was really dry at one stage!
No rash on cycles 2/3 and maybe because Ive been covering myself with Diprobase ointment in evening b4 bed and cocout wax during the day! I love the smell of it and Merlot the cat licks my legs and hands! He likes it too!!
Another thing which has helped me tremendously is Chinese Chi Gung 18 steps breathing exercise!
Whenever I’ve felt breathless, tight chested, can’t sleep, headaches, anxious or panicky at home these exercises help. They are not just helping your lungs and heart through breathing but the moves also help as easy exercise and especially after I had a lumpectomy I needed to do arm exercises, this helps the whole body! In Hong Kong and China crowds go to the park in the morning to do Chi Gung and Tai Chi! These xan be done and help even if not ill. I will certaily carry on doing them!
Anyway, mentioning food has started my tummy rumbling.
Hope you ladies are feeling ok and getting plenty of rest. I’m most certsinly going to rest today and habe a soak with my Epsom friends.xx
oooops! just to clarify in case some of you think I’m slightly mad…the hospital was taking the photos of my boobs!
IIs funny how quickly ‘almost bald’ has become normal CK. When people call to.mine i have no hair on and i am still.saying do you mind seeing me like this? I forget that i am used to it now but its a shock for them. I honestly prefer to be bare!! The people i definitely make an exception for are my children’s friends and my little nieces.
Xxx
ChasnDave, I realised that but it reminded me of my friend asking I’d taken pictures of my own boob after surgery, i mean who wants to do that? Who would you show it to as I doubt anyone else would want to see it!
CK interested in your Chi Gung 18 steps, where can I find out about that? I’ve been meditating and doing yoga to combat the anxiety I felt after stopping all my meds on day 5 of my first cycle. Would be interested in trying that too. Also what is the coconut wax you refer to is that different to coconut oil?
I’m day 2 chemo 2 now and doing ok after feeling a bit rough after chemo yesterday.
hope everyone is having a good day!
ChasandDave and Meesh - just to show we are all slightly mad in this new normal - I did mean my own photos as sending them by email to the team for review saved me from a long sore drive - maybe I should remember to delete them off my phone haha. After 2 ops and drain etc I did actually take a photo diary so I could see some progress to cheer me up - but understand that wouldn’t be everyones cuppa -
Hope you all have a good day - managed a walk today in the autumn sunshine - is all progress xx
Ha ha MrsMeow, perhaps now I understand the purpose! It’s probably not such a mad idea as my own healing seemed to take forever and I couldn’t see any change. Although I did end up with a haematoma week 4 after surgery (think it’d been there from the start personally as the swelling didn’t go down at all in that time) ended up bursting with a trip to A&E but all was well in the end and it cleared up really fast after that. So perhaps if I’d taken pictures I’d have known there was no progress! How’s the healing going?
I actually took preop pics too which I’m glad I have but not looking at them at this stage! Anyone with the blue dye may feel the same need to see that going - have always called it baboon boob haha.
Seeing doc soon re healing - actual wounds are great but still rebruising every time I dare move far or drive - not great for rural living haven’t driven for months and I usually do over 1000 miles a month! At least the chemo cycle is turning a corner and apart from sore mouth and dramatic flushing am almost in one piece…
So glad people are rallying round Meesh- it makes all the difference xx take care x
MrsMeow, when did you have your surgery? Mine was 7 August, my skin still has some discolouring I assume from the bruising. I had severe bruising (apparently) where they moved the breast tissue about. I called the bcn last week because I did feel some bruising below my armpit to the side of the boob (although the skin wasn’t discoloured) just felt bruised to touch. I’ve started doing some gentle yoga again and thought it might be that. She said it could be or it could be the chemo affecting that tissue as everything’s still healing in that area. Don’t know if that’s a help to you or not. Sucks not to be able to drive though especially as you’re so reliant on it too! Hope you can get it resolved soon ?
Hi Meesh
The coconut wax is solid in rhe jar and then when we get sme out and rub it in our hands it turns to oil! If you Google Coconoil it tells you more about it.If we rub onto our bare head it potects our folliicles and also prepares the follicles for when our hair comes through again.
Its nice and smooth on rhe body too! I tend not to cook with it as it makes you gain weigjt, so for those who want to add on a few pounds then its ideal to cook with it.
I will see if I can share my Chinese version of Chi Gung for you on here…but you can YouTube Chi Gung exercises to see if English Version.xxx
Ali
Yes you are just like me, not too bothered yet our friends are. But I wear a wig to work ascustomers dont know and it just avoids comments like ‘Is it bad hair day?’ Sometimes dont want to cause discomfort.x
Thanks CK I have coconut oil I just wondered if it was different to coconut wax, but doesn’t sound like it. I use it for cooking and also for other homemade beauty products, like scrubs and curl cream. I’ll look on you tube for chi gung thanks again!