Geordie good luck today. I am worrying about T too but lots of people find it easier than FEC so heres hoping.
The lump could be scar tisdue or fluid sfter your op so really hoping thatvits nothibg for you. All this worrying doesnt help does it. Sending you a big hug.
Cathysid -great news. Onwards and upwards.
CK hope your night went well xxx
Hello me ladies! I’m having a whole day of chillaxing today after a busy night of 80 ladies listening to Psychic readings and eating and drinking:) The first lady was in tears as Ann the medium got everything to a tee! She had just lost her dad recently and she had picked that up! Just dont know how they do it, it really baffles me:0
But the main thing is all enjoyed whilst enjoying a meal and raising for Prevent Breast Cancer!
Cathysid
Thank you for your experiences of Doxataxol and Herceptin. I am preparing for Herceptin and surgeon app Tuesday and Onc app and Chemo 4 Weds! Its gonna be a busy couple of days but the resting up afterwards will deffo we appreciated!
Reiki booked in for Monday!!!
Hope today goes well and will look out for your catch ups. Again thank you.xx
Jow
Enjoy your counselling session! I had mine on Tuesday and felt lots better, although I’m tslking to someone all of the time when Im on form!
I dont mind the dark varnish but its much more visible when it chips but hey, I have plenry time to fill them in. I do my toe nails too. Good luck for us next week.xx
Ali
It was a good night but tired today. Im sure you are also making use of your good days to do as many things as possible b4 Weds but dont overdo it.xx
Geordie
All rhe best for today! We do worry and get anxious even the most strongest of us. Chemo does lower tour self esteem and confidence and se feel more vulnerable but we sill get it back. Im sure we all at some point think the worse and has it spread and will it work but we just try to find ways to make SE as manageable as possible and get through our treatment and hope for the best and we will get through this.xx
Mrs Meow
It’s what I’ve always done but now I’m even more determined after seeing the help I’m receiving. I just do the organising and plugging in on my laptop and let the others do the running of it. The only thing is I get a bit emotional now and have to learn how to control myself when I’m talking to my customers. Enjoy your hols! Where are you going? And do ypu mind me asking what did you do regards insurance as I’m goping to go away hut not til after treatment. Any companies better rhan others?xx
Thank you all for your kind words.
CK - well done for last night! I’m in awe of you managing to do this stuff during treatment. I hope your compounded treatment goes well next week.
Cathysid - thank you so much for sharing your experience with T/D. It is good to know roughly when to expect things starting out on this new cycle and a shopping list helps me plan (I like to be prepared!).
Jow - Sorry to hear you also have worries on your scar. I also have some thickening and they said that was less to worry about as is probably fibrous scar tissue that just needs plenty of oil and massages. I hope yours turns out to be something benign like that too but definitely best to get it checked out.
Ali - Thank you for your kind words. If it helps put your mind at rest a bit, my T went well today and I’m back home now resting. I found the process was much faster than FEC and nicer going in - no weird tingly sensations, funny tastes or red wee! Guess I just need to see what happens when the double dose steroids wear off now but so far so good and hope yours is the same!
Thanks all. I massively appreciate your support xx
Have you been using Manuka honey Fairydust 14?
My white cells were borderline before chemo 2 last week so I decided to give it a go. I had been away visiting MIL in hospital and stopping at motor way services and stayed overnight in a hotel and eaten out the weekend before my bloods were done on the Monday so my immune system had probably had quite an onslaught but otherwise I had eaten really healthily for the whole time and tried to stay away from too many people. I did go into work too though.
I will be interested to see if they are better this time. Decided nothing ventured nothing gained.
Fairydust have you tried the life mel honey? It is a much thinner consistency and a nicer taste than mannuka. My friend who has been through chemo with no infections and no missed treatments recommended it. It is expensive but worth a try. I havent ended up in hospital this 2nd round xxx
Hi ladies - hope you are all having a good day today - some worries out there so thinking about you - Geordie, Ali, Fairydust, Jow. I had my first Hercept/Pertuzamab on Wed, followed by the Taoxtere yesterday. Steroid mania still a bit in system although took last ones yesterady. My only SE so far is a red face like a slapped ar** (sorry - what my mum would say!). So far so good. I’ve started brufen/ paracetamol just in case to ward off any joint/ bone pain, as recommeneded by my BCN, and have co-codamol at the ready just in case for the weekend!
Hope you are all looking forward to bommy night and the fireworks - best night of the year! Love that smell in the air!
Hugs, Jacqui
Chas n Dave
Hope red cheeks is the only SE you get, Aunt Sally:D and you are in control. My turn next week! Similar treatments! No need for blusher:0
Plenty rest and soaks.xxx
Evening all,
Day 4 here post chemo 4.
I’ve been struggling this round with a bit of a low temperature, 35.6c last night. Not I’ll as such, just tired. Slept 4 hours this avo and still sleepy! Temp is back to 36.2 c now so not too worried and haven’t called my team yet.
Any one else had a low temp post chemo?
Cx
That is very low Cathysid. I think you should call your team just to be on the safe side. It doesn’t hurt to check.
I’m on day 4 of chemo 4, first one of Tax, and I am feeling the Tax ‘Truck’ now. I was ok for days 1-3 but have found aches and fatigue have hit me today. I have been working from home through the last three rounds of FEC but there is no chance of me being able to do that tomorrow! I feel like I’ve been a chemo fraud until now as have managed the SEs fairly well. These are still manageable but definitely are harder for me than FEC was. Those of you who’ve already been Taxed - how long does this phase normally last for each of you? I’m hoping these SEs reduce with time before next cycle?
Oh well. 9 weeks to go and it could be worse… onwards and upwards! X
Hi Cathysid, Geordie and all our other ladies out there. Thanks for your advice. My Docataxol was on Thursday and it hit me Saturday! Just spaced and lethargic. Gutted to have missed bommy night, although had quite a display from my bedroom window! The diarrohea has been pretty constant but now taking loperamide and the taste/ mouth dryness is totally yukky! Earl Grey tea is the least vile liquid I can manage at the moment. I still feel more in control than I did on FEC though - think I’m just toughening up!
i’ve had no real pain but hace been on painkillers round the clock since Friday. I think I’ll do one more day of these and then see hpw it goes tomorrow if I lessen the painkillers.
I’m off for a belly CT scan today so they can check my veins/ plumbing/ blood vessells (eek!) for the DIEP surgery, and then I have a MRI on Wednesday to check on progress of tumours. It’s all go here!
It’s beautiful here in LIverpool - hope it is wherever you all are too!
Jacqui xxoo
Thanks for the advice Cathysid. I haven’t had any diarrhoea yet but am definitely finding my mouth feels much more weird than on FEC. Creamy and bland things seem to be nicer as you say, a big change from my normal spicy diet!
Jacqui - I hope your scan goes well today and the toilet issues clear up quickly too.
Fairydust - I’ve also started looking at Christmas lights. I feel like going totally OTT this year given I won’t be going to any parties so have even considered a 5ft inflatable penguin igloo outside the house which is not the understated tasteful approach I would normally take but seems like a hell of a lot more fun ?
I intend to go for full glitz this festive season. Last year we were all struck down with a serious bout of flu from Christmas night onwards and lost about 3 weeks so because all 3 of our adult children still actually want to spend at least some of the Christmas period with us and this might not happen again or at least not for some time, we’re going all out ?
You ladies make me smile so much! Yes Fairydust - love the thought of us all shining lights on the outside even if we don’t feel very shiny on the inside. The igloo inflatable does indeed come with penguins and light up disco lights (the clincher for me lol). amazon.co.uk/Inflatable-Penguins-Colour-Moving-Lights/dp/B01M248B2F
Loving the Xmas sparkle! It will really lift us to brighten up our homes and gardens and spread some love and joy this Xmas! Beware shopping on steroids - apparently they get rid of your inhibitions and you may impulse buy something crazy!!!
I will be cooking for 26 this year - it will be 11 days post chemo so hope I can face it!
?<️❄️??
Good day Cathysid, Fairydust and everyone else! Well, I’ve done it. I’ve ordered the penguin igloo with disco lights ?. I am blaming the steroids now, thanks to you ladies, for all my compulsive buying. It explains why I’ve had almost daily Amazon parcels arriving since I started chemo. Luckily most of them are things that only cost a few quid but I suspect my new Bose headphones were bought at the peak of steroid inhibition loss ?. As someone who always spends any money I have on my husband, step children, family or friends, it actually feels nice to buy myself something for once although I still feel a bit guilty about it but am enjoying the headphones too much to send back ?. It’s much less sparkly outside today but I hope you’re all managing to find some internal sparkle to compensate. Fairydust - you have got me talking about sparkle now, I like your style x
I love music and a decent pair of headphones is lovely to have. Hubby bought a lovely leather Senheiser pair for me a couple of Christmas‘ ago.
Enjoy your Penguin, are you going to be able to wait until December to put him out?
Thank you Cathy you have a great memory! I am all set for 3rd FEC tomorrow. I had a ‘normal’ week lastxweek which was lovely!!
I hope you are ok Cathy and hope everyone is ready for Chemo this week xc
I’ve been wondering that myself Chaffinch - I’m normally the sort of person that puts my tree up a week before Christmas but maybe it needs to go out on 1st December this year to get maximum usage!
Good luck for tomorrow Ali! X
Hi ladies! How frustrating it is when Im wide awake but my minds and eyes are tired! This is due to rhe start of steroids b4 tomorrows Doxataxol! Will have 3 days of these sleepless nights and so hyper maybe I will put Xmas decor up this week even though I put up works at the end of Nov:D:D I hope I don’t suffer too much of the bone pain, fatigue, sore mouth, breathlessness, diarrhea, skin rash! Im deading it if my nails fall off!!! Dry mouth and strange taste buds and tiredness I was able to control but will need to wait and see! Thats all we can do!
I had my 1st Herceptin today and so far so good!
Blood pressure/temp taken first! It took about 3/4 minutes in my right thigh (even numbers on right is good way of remembering) I was then monitored every 30 minutes for first 2 hours and then every one hour. Went for bloods in between which came back good! At first temp went higher and higher up to 37.3 so I took my bobble hat off, my top layer, and got my fan out (yes, prepared) it then went down to 39.6. Result!!!
I also saw my surgeon and have a date of next op 22nd January (4 weeks after chemo) to clear pre cancer cells on margin and take out all lymph nodes! Fingers crossed will be no need for another op if not clear!
Then 15 days rads and 10 years Tamoxifen which will hopefully suit me!
So another few hours tomo and will see my oncologist too! Hopefully shes happy with my progress and doesnt fire too much at me!
Had a few tears yesterday and was in a state of shock as my friend rang me to tell me her she found her husband dead in his sleep, so sad and even though it doesnt get any worse 2 months ago she told him things werent working out and wanted him to leave. She confided in me and I told her to think clearly and dont make any hasty decisions as they have been together for 17 years, so she listened and didnt push too much and didnt want him with nowhere to live (the house is hers and he paid towards rent)which showed that she still cared! I made the decision to ring him myself as I know he would need someone to talk to too but being a man he wouldnt just go to someone. I asked what he had in his mind and he agreed he needed to make an effort and instead of going to the pub after work to go home. They hoth work long hours! I tild him to send her some flowers and to tske her out more and he agreed. This is 10 days ago since I spoke to him and I will never see him again. Im so sad:( My friend is now really suffering with guilt and Im not in a goid position to help her. She does have 3 daughters of her own and grandchildren which helps but she is absolutely devasted!
Not to sound selfish but everyday there seems to be some bad news crop up and I do often worry whether this can trigger stuff off in our bodies! I appreciate my friend telling me and I would have been upset if she didn’t but it got my heart beating and I was down. But we cannot avoid coming across bad news iin our life as we need to live life as normal as possible if it lets us and when we have so many friends, family, colleagues, customers, there are bound to be things happening that we need to know. We cannot live in a bubble, yet they say stress is no good!
We really do need to cope with so much ladies, we need to give ourselves a big pat on the back and bortow Ladt Bowlers big pants es much as possible.xxx
The best of luck to this weeks chemoers.xxx