Jo,
Hope the headache has subsided. Hopefully that’s it with the side effects for you. Good luck with the hair dying! Xxx
ps. The platinum was a bit goldie blonde at first but calmed down to a lighter shade after a few washes. A hairdresser recommended purple shampoo called “a touch of silver” to make it less golden.
Jo, did you have your op on 1st May? I had it in my mind as 17th but when I checked back through the thread looks like it was scheduled for the first. Hope you are ok. How’s the hair looking? I’m just psyching myself up to dye mine again.
My energy levels have been a bit low recently. Seem to have fallen back to caffeinated coffee in the mornings to get me going. My naughty sweet snack of the moment is dates dipped in slightly salted almond butter - yum, you have to try it!
Must get back on track once rads finish.
I finish radiotherapy tomorrow- at last! My poor nipple is red raw and swollen and oozing. Yuck! Cabbage leaves in the bra have been my saviour.
Fairy dust, have you started your trial now? I have a friend who has been recommended aspirin for reducing risk of her bowel cancer recurring. She has been warned of an increased risk of stomach ulcers so will be taking ginger and a liver ice extract to try to reduce that risk.
Hope you are all well,
Lots of love c x
Good luck with the phased return Fairydust. It feels good to be heading back towards the normal world again!
Fatigue is definitely an issue after all we’ve been through. I’ve been told to treat my energy reserves like a bank account. I have to pay enough in(through rest and relaxation) or there won’t be anything in there to withdraw. I know if I have a rest day I feel much more normal the following day. If I don’t take the time to rest I start to get aches legs, weary and grumpy again. Problem was I was feeling guilty about resting! I’m trying to be kinder to myself and giving myself permission to take time to rest every day…not just when the kids are in bed!
Jow, glad you are getting over the op. Your body will still be adjusting to the change in hormones. I think keeping slim is going to be an ongoing battle for us - I certainly feel like since chemo I gain weight easily and find it hard to lose weight. I started this journey at 58kg and now am 65kg! I want to get back to 60kg but not making any headway yet!
How did the x ray go Fairydust? Hope you’re feeling better.
I’m now 4 months post chemo and 2 months post rads. Where does the time go! I am managing to be pretty active but like you say you have to have quiet days from time to time to recharge. I’m having one today pottering about at home and currently sitting in a deck chair in the shade ?.
How was the X-ray, fairy dust? Hope all is well.
I’ve noticed my hot sweats have been calming down over the last two weeks. Much milder and no actual sweating now! Maybe yours will improve with time as well.
I was thinking of going back to work in July, but went for a nurse assessment at my local hospice and was told that it was too soon! September at the earliest! She does not think I’m ready at all - emotionally or energy wise. She said I must be kind to myself and rest. I’m going to be going there one day a week to try and get the support I need.
My lymph nodes on the back of my neck are still enlarged. A constant reminder that the fear of cancer returning will always be there. I think I will ask for a biopsy to be done even though the surgeon does not seem concerned. I just can’t stop myself from worrying!
Jo - how are you?
Chaffinch - enjoy these beautiful sunny days. No better way to recharge the batteries!
Lots of love xxx
Hi jo,
My work is also undergoing a restructure - we are losing half of our support staff. It looks like I am safe though - it seems that being off sick and coming back with a “disability” seems to give a lot of protection!
I went to see an ophthalmologist about my watery eye. Tear duct wasn’t blocked but the lacrimal duct was narrow. The overflow seems to be happening as I have dry eyes and in the wind my eyes need more moisture and overcompensate causing a flood. Nothing to be done about it!
Fairydust - glad the bones are clear.
Jo - glad you feel “cured”. Weirdly, I don’t! Might have to address that at my counselling sessions!
We have a little break on Anglesey planned this week. Need a rest as radiotherapy fatigue seems to be building.
Cx
Hi cathysid, I know I might sound a bit ???here but have you looked down the Botox route for that? It might be a solution, people have it for stopping excessive sweating so it might be an angle to investigate maybe? Anyway just a thought. 
To everyone ??
Shi xx
Hi there everyone!
How was kefalonia jo?
Fairy, hope you are enjoying this beautiful weather at home. How is the fitness plan going? Hope you are still enjoying it. I seem to have lost all motivation to exercise and I’m needing lots of rest at the moment.
I went to see my surgeon today. Lymph nodes have settled down again - phew! - and first post op mammogram will be booked in in about a month. My skin has healed well post rads. Bit tanned looking and freckly but that’s ok. Periods have come back with a vengeance. I’ve never had such a heavy period. The hot flushes have died down too so sleep is better.
I’m staying off work till September now to give myself time to recover,
Hope you are all well,
Cx
Oh that is good news about those nodes!
Lovely and sunny here in Kefalonia too.
Been a bit short of breath at times but hopefully just because I’m more conscious of it rather than a physical cause. I am on anticoagulants still. I read that book called Late Fragments by Kate Gross. Very readable but undecided as to reading about cancer is helpful or not.
Hope ur all ok- JX
Fairydust me and you in a similar position my stats were predicted on a 5 year and like you sweetie Tnbc so no blockers and no trials currently waiting for Braca results and 1st mammo fingers crossed ?
i really don’t know the answer to the question i would just say fo what is right for YOU and enjoy each new day ???
Ladybowler ? nice one and on that note i think I’ll put a lottery ticket on then i can do the same ?
Fairydust,
I vote for doing what you want to do in life now! No better time to do it. You could live to be 100 - all the more time to keep having fun! No regrets!
Fairydust ??I’m was tnbc too and you have to live, laugh and keep positive, think we’ve all been given different figures for our 5 years and we are already a year into that, so get that round the world trip booked and do all the things you want too and then live to 100 and let the state pay your home fees ???win win ???Shi xx
Fairydust, that’s terrific news, and when you are 100 we’ll all be there to celebrate and look at your round the world photos with you ???Shi xx
Hello ladies -Anyone on this thread exercised whilst having a PICC line - if so could you give some advice to this new member ? Cheers forum.breastcancercare.org.uk/t5/Chemotherapy/PICC-line-and-exercise/m-p/1222070
Hi ladies. I just want to see how everyone is. Radiotherapy kind of took over in March and I was quite tired from it. I still 4 Herceptins but am doing very well. I have since met a new man who is very understsnding about the past year and loves me to bits. I managed to raise up to £10k through treatment and my next event is on 30th September for Breast Cancer Care. In June I was invited to Buckingham Palace Royal Garden Party which I went with my daughter. I hope some of you see this and let me know how you are doing. All the best♥