Great tunes! I’ve added them in 
3 Likes
Hello @copperycat 
. Are you having the filgrastim injections? They can make you feel achey in your bones which is maybe not dissimilar to a flu feeling. I do sometimes slump after I stop the steroids too, I’m on 3rd Ec so only have 4 a day for 2 days after my infusion. Am on docetaxel next which is 8 a day so imagine slump feeling is more.
Hope you start feeling better, I’d go with your gut instinct and call the helpline just in case if you’re in any way worried. They are so helpful and will want you to check. But to reassure you, I do find I slump when the steroids wear off xxxx
2 Likes
@copperycat I agree with annemanc. Call the helpline. I was on it like the batphone after the first cycle. Your symptoms sound very familiar but we are all on different treatments and so the normal side effects for one person might be different for another person. Hope you get some good advice and feel better soon.
3 Likes
I’ve just booked a virtual one. My eyelashes and brows are very thin but I need some help with my skin. Already using fragrance free!
It would be a nice treat to receive some freebies! Looking online it tells you what you may need so assumed you wouldn’t get the freebies with face to face. I tried to book a local one but the next one isn’t until January!
Will probably look into the nails session as Paclitaxel can cause a lot of problems.
Like you I was worried about the length of the session, I can’t seem to concentrate for longer than 15/20 minutes before I get distracted or faze out. I suppose I can turn off the camera and take a bit of time out if needed. Did they follow up with any information?
@copperycat I’m on weekly Paclitaxel and have issues with diarrhoea and nausea, I get very fatigued, headaches and body aches for two or three days. I tend to just rest as much as possible. Have Epsom salt baths have helped, especially the added CBD oil or Sleep on with Valerian. As everyone else says give your helpline a ring, they can guide you. I’ve rang several times and they’ve been really helpful, sometimes advice on the phone, referring me to GP or asking me to come into have a look.
3 Likes
I went to a LGFB session at Maggie’s in Manchester @naughty_boob a couple of weeks back. So good, got a really nice of products (some v fancy make up like Nars and Armani, plus nice high street brands too). The part I enjoyed most was reminder of how to really cleanse your face… cleanse, tone and moisturiser w them providing all the stuff we could take home. Fun and a nice reminder to pamper yourself if you fancy it.
Am thinking of getting a mani and pedi before I start on Docetaxel but unsure if I should get gel nails 
. Heard conflicting stuff about whether it’s a good idea (unbudgable) v bad (infection risk) xxxx
3 Likes
I’d read something about wearing black or very dark nail varnish in Docetaxel/Paclitaxel as it can prevent some damage to the nails. Unfortunately I seem to bet allergic to anything in my nails, last time I wore varnish at a Christmas party I woke up with swollen eyes. The nail varnish was the only new thing I’d used. Had similar reaction to a nail strengthened as well. So I’m just using cuticle cream and hand cream.
3 Likes
Thanks! I bought some polish from Nail Kind (which I’d seen promoted as being good for us during treatment) but it was awful and chipped within a day but took ages to remove w nail varnish remover. Def one to swerve x
4 Likes
Hi @copperycat I felt absolutely awful (sorry!) after my first week, triple negative, Pembrolizumab, carbo and paclitaxel and gscsf injection. Nauseas were paralysing for me lots of constipation no temp. I am on cyclisine now and next week will be telling if it works. I try to stay away from any meds unless I need it to give me body a rest when I have one paclitaxel. Défi get headaches mostly in evenings 
. Do talk to your medical team and explain how you feel then can help w some of your symptoms. Well done, you’ve done the first one 
sleep when you can, eat what you can and feel like it, exercise if You can. I slept so much that first week, my body was aching so much after the gscsf injection and didn’t eat much but made in the last 2 weeks. Back to the 3 infusions Tuesday xxx
5 Likes
Hi @annemanc @naughty_boob nurse advised to get water based nail polish and avoid gel. I haven’t needed yet to do get nail polish and kept my nails short. So far so good. I moisturize multiple times a day! Xx
2 Likes
Hello copperycat, sorry to hear you’re feeling bad. I have not had the aches except in the general surgery sites and close by, but this time after paclitaxel and carboplatin, like Pinklili, I’ve felt pretty awful with constant nausea and constipation but no vomiting Not sure whether constipation is causing nausea, and what us causing constipation. Possibly the steroids? I’ve heard the filgastrim type jabs can cause body aches too. Hopefully your helpline will be able to assist …
On the nail front annemanc and Naughtyboob I’ve used a dark nail varnish throughout so far. I’ve forgotten the brand as the lady puts it on during chemo but know the shade is called wine o’ clock. Much lovxxxx
5 Likes
Milly a lovely walk to blow away the cobwebs sounds amazing…xxx
3 Likes
Frazzled hope you enjoyed Strictly? Loved Ellie this week. Fab Amy was there, looking amazing xx
3 Likes
@daffodil1 Yes took my mind off things for a bit and yes Ellie was very good. I like a bit of escapism.
Bit of a tough day yesterday but mentally feel a little better today. Really sick of nasty taste in mouth. Candyfloss grapes today seem to taste okay but really looking forward to end of week when taste seems to get better as I get further away from the chemo. For others future reference the prunes had zero effect. Spoke with helpline and they advised Senna! Which has worked. In retrospect I am quite annoyed with the nurse who suggested it (not least because I hate prunes). I suspect it might work for non-chemo constipation but not chemo. Think sometimes it is hard to sift out the nurses’ anecdotal advice from the real deal. Anyhow more prepared for next time…
3 Likes
I love candy floss grapes, they are so sweet. I’ve used lactulose for constipation. As always everyone has their advice but sometimes you need something that will work quickly. I hate prunes, with everything else you don’t want to eat something like that if you don’t have too! I find that conference pears can help a bit, they taste nicer than prunes!
4 Likes
Thanks so much @annemanc @frazzledmcsazza @pinklilli3s and @daffodil1 . So helpful to hear your experiences. I did call my team yesterday and ended up spending last night in A&E. they wanted to check my bloods etc and eventually decided it was a reaction to the filgastrim jag that was causing the bad side effects. Yes and Doxetaxal with 8 steroids a day finished on Friday contributed also . Think it’s a matter of riding it out and hoping it’ll feel better soon 
4 Likes
@copperycat A&E is not what anyone wants but it is better to be safe than sorry. Glad you got checked and have been sent home. What is your treatment cycle? I am on three weeks. The first cycle I had a hard time for first week but by week three felt pretty normal and was back working. I am only on cycle two of six but so far seems similar to last time. Although it has definitely helped knowing what is coming this time. Good luck and feel better soon.
4 Likes
Copperycat it’s good they checked you out, sorry to hear you ended up in a and E though.
Horrible to be told to have prunes if they are not going to even work, not the nicest thing to try and eat on chemo.
I rang the hotline too and will need something better for nausea next time but which also doesn’t constipate. I’m wondering if the nausea was caused by the constipation. Still constipated but a little relief! X
3 Likes
@frazzledmcsazza I am having 4 rounds of Doxetaxal and Cyclophosphamide (TC) - 1 every three weeks too. Good to hear you felt better by week three, gives me hope. 2 down, you are ticking them off! hope all continues in a positive way going forward.
I felt rotten today but fell asleep this afternoon and definitely feel a lot better this evening. Fingers crossed that’s the worst over for a bit , but just taking one day at a time xx
3 Likes
Sorry to hear you had to go to A&E 
hopefully you’re on the other side of it now and feel better XX
@frazzledmcsazza I tried psyllium husk it somewhat work for me, but you gotta take 6 tablet a day w food (it’s extra fibre) and I do forget. @annemanc thanks for the tip about lactulose. Am lactose intolerant so will ask tomorrow if it’s ok for me to use, as it’s the beginning of my 2nd cycle 
I just hope one thing is that I am better than the 1st week. Not expecting to ride which would be a bonus, yet I doubt given the gcsf injection, last time I could barely bend down to pick stuff of the floor but I’ve made up in the last two weeks. Apparently it means it’s working and my bloods are good so shouldn’t complain. At scar from port has healed now so will be able to take bath 
@daffodil1 Nauseas, constipation and stomach cramps are the worst for me. If constipated, I do get nauseous, it’s a different kind of feeling sick cause I feel "full " .
Alright better sleep, can you tell am trying to prolong this evening as much as I can?! 
5 Likes