Hi @copperycat I felt absolutely awful (sorry!) after my first week, triple negative, Pembrolizumab, carbo and paclitaxel and gscsf injection. Nauseas were paralysing for me lots of constipation no temp. I am on cyclisine now and next week will be telling if it works. I try to stay away from any meds unless I need it to give me body a rest when I have one paclitaxel. Défi get headaches mostly in evenings 
. Do talk to your medical team and explain how you feel then can help w some of your symptoms. Well done, you’ve done the first one 
sleep when you can, eat what you can and feel like it, exercise if You can. I slept so much that first week, my body was aching so much after the gscsf injection and didn’t eat much but made in the last 2 weeks. Back to the 3 infusions Tuesday xxx
Hi @annemanc @naughty_boob nurse advised to get water based nail polish and avoid gel. I haven’t needed yet to do get nail polish and kept my nails short. So far so good. I moisturize multiple times a day! Xx
Hello copperycat, sorry to hear you’re feeling bad. I have not had the aches except in the general surgery sites and close by, but this time after paclitaxel and carboplatin, like Pinklili, I’ve felt pretty awful with constant nausea and constipation but no vomiting Not sure whether constipation is causing nausea, and what us causing constipation. Possibly the steroids? I’ve heard the filgastrim type jabs can cause body aches too. Hopefully your helpline will be able to assist …
On the nail front annemanc and Naughtyboob I’ve used a dark nail varnish throughout so far. I’ve forgotten the brand as the lady puts it on during chemo but know the shade is called wine o’ clock. Much lovxxxx
Milly a lovely walk to blow away the cobwebs sounds amazing…xxx
Frazzled hope you enjoyed Strictly? Loved Ellie this week. Fab Amy was there, looking amazing xx
@daffodil1 Yes took my mind off things for a bit and yes Ellie was very good. I like a bit of escapism.
Bit of a tough day yesterday but mentally feel a little better today. Really sick of nasty taste in mouth. Candyfloss grapes today seem to taste okay but really looking forward to end of week when taste seems to get better as I get further away from the chemo. For others future reference the prunes had zero effect. Spoke with helpline and they advised Senna! Which has worked. In retrospect I am quite annoyed with the nurse who suggested it (not least because I hate prunes). I suspect it might work for non-chemo constipation but not chemo. Think sometimes it is hard to sift out the nurses’ anecdotal advice from the real deal. Anyhow more prepared for next time…
I love candy floss grapes, they are so sweet. I’ve used lactulose for constipation. As always everyone has their advice but sometimes you need something that will work quickly. I hate prunes, with everything else you don’t want to eat something like that if you don’t have too! I find that conference pears can help a bit, they taste nicer than prunes!
Thanks so much @annemanc @frazzledmcsazza @pinklilli3s and @daffodil1 . So helpful to hear your experiences. I did call my team yesterday and ended up spending last night in A&E. they wanted to check my bloods etc and eventually decided it was a reaction to the filgastrim jag that was causing the bad side effects. Yes and Doxetaxal with 8 steroids a day finished on Friday contributed also . Think it’s a matter of riding it out and hoping it’ll feel better soon 
@copperycat A&E is not what anyone wants but it is better to be safe than sorry. Glad you got checked and have been sent home. What is your treatment cycle? I am on three weeks. The first cycle I had a hard time for first week but by week three felt pretty normal and was back working. I am only on cycle two of six but so far seems similar to last time. Although it has definitely helped knowing what is coming this time. Good luck and feel better soon.
Copperycat it’s good they checked you out, sorry to hear you ended up in a and E though.
Horrible to be told to have prunes if they are not going to even work, not the nicest thing to try and eat on chemo.
I rang the hotline too and will need something better for nausea next time but which also doesn’t constipate. I’m wondering if the nausea was caused by the constipation. Still constipated but a little relief! X
@frazzledmcsazza I am having 4 rounds of Doxetaxal and Cyclophosphamide (TC) - 1 every three weeks too. Good to hear you felt better by week three, gives me hope. 2 down, you are ticking them off! hope all continues in a positive way going forward.
I felt rotten today but fell asleep this afternoon and definitely feel a lot better this evening. Fingers crossed that’s the worst over for a bit , but just taking one day at a time xx
Sorry to hear you had to go to A&E 
hopefully you’re on the other side of it now and feel better XX
@frazzledmcsazza I tried psyllium husk it somewhat work for me, but you gotta take 6 tablet a day w food (it’s extra fibre) and I do forget. @annemanc thanks for the tip about lactulose. Am lactose intolerant so will ask tomorrow if it’s ok for me to use, as it’s the beginning of my 2nd cycle 
I just hope one thing is that I am better than the 1st week. Not expecting to ride which would be a bonus, yet I doubt given the gcsf injection, last time I could barely bend down to pick stuff of the floor but I’ve made up in the last two weeks. Apparently it means it’s working and my bloods are good so shouldn’t complain. At scar from port has healed now so will be able to take bath 
@daffodil1 Nauseas, constipation and stomach cramps are the worst for me. If constipated, I do get nauseous, it’s a different kind of feeling sick cause I feel "full " .
Alright better sleep, can you tell am trying to prolong this evening as much as I can?! 
Pinklili I know what you mean about the heavy constipation feeling. It’s horrid.
How’s everyone doing? Had various app’ts yesterday. As a result, tomorrow (and last week) I will have a reduced dose of paclitaxel due to blood results. It was also interesting to hear about the cumulative toxic effects of chemo. Normally by a Wednesday I’m feeling more back to normal, but not so much this time. Oncologist has prescribed lots of different anti constipation and sickness drugs for tomorrow’s round.
Wishing you all love and strength and hugs
xxx
Had the three infusion yesterday and gcsf will.be later. Didn’t sleep was making list after list of things I supposingly needed to do!!! But but… Mild nausea so far so good. Will probably go back to bed for a hour or so to catch up on sleep. Psyllium husk helps w constipation and am going to try to be really good at taking it regularly.
Hi @daffodil1 
I’ve gone with my bloke Dan and the kids to North Wales for a little break. Am feeling ok but like I can feel the cumulative effect of the chemo more each time. Had my final EC on Thurs (docetaxel next time). Dan said it seemed for a few days after this one I was a bit “high”/wired which is interesting to hear from outside perspective. We walked up a hill yesterday and I could feel my blood pumping through my veins in my wrists which is v strange sensation! Aside from that I’d say side effects similar to last time, but dialled up. It’s all v strange isn’t it? Xxx
Hi all,I read your posts every night, I sleep well for 4-5 hours and then the coughing starts.
The first days after chemotherapy how long do I have steroids, three days, the cough stops, but then it installs again, oncology team can’t find a problem,
Constipation is in the first days, then diarrhea intervenes, I ended up juggling the medicines, and this cough makes me tired and makes me feel crazy,
I yell at everyone around the house and then I feel bad I did EC infusion, starting next week I’m on paclitaxel, I honestly feel exhausted, and I’m afraid of the next chemotherapy, I notice that Paclitaxel is not very agreeable and I’m already afraid My dear children look at me when I scream for no reason, 
and they don’t know how to react either, my husband tries to keep me from getting angry, but I still go crazy around the house, I love them, I am lucky they understand me, but still is long way…
Hopefully you are doing better every day, sometimes we just need little things to make us happy, I want to get rid of my cough now:grin:
Lots of hugs 
Take care and good luck with the treatment
@Camy_Radika I think with all the side effects of all the drugs we are all on mood swings are to be expected. Not least to say the mental challenge of knowing how hard each cycle is but you have to keep going. I am sure your family know this is temporary and as long as you apologise if you realise you went overboard I am sure they will understand its not really you.
Like you I am finding chemo so incredibly tough (who doesn’t?) with a long way to go. One day at a time eh and this time next year hopefully we’ll be looking back going WTF, I can’t believe I got through that.
@frazzledmcsazza and Camy I don’t feel great on Paclitaxel but I am not too bad on it 3 either and could exercise on first cycle and do a couple work out a week, rode my horse Thursday to Sunday and managed to sleep ish mostly. I did have a reaction but recovered from it and didn’t panic cause had read it could happen on this forum (Thank you my warrior lady friends). I had some effects ofc but chose to ignore them (manageable ) and get on w my life cause I knew I’d be back to 3 this week 
and I feel 
I wouldn’t worry too much about Paclitaxel…go w an open mind. Apparently it can make you loose hair doing the cold cap and 4 weeks touch “scalp” I have a full head of hair . Great due to moisturizering it but on !! Gwen xxx
Thank you for your words