Thanks @Shi yes I gave them a call earlier. They were quite reassuring and just said to get back in touch if it got worse. Been relatively stable since late morning so I am hoping that a day or two of plain food will sort it out as am keen to up vegetables next week to try to boost my bloods.
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Thatās good you checked with team 
just do whatever you want to do your own way that gets you through tick them off as you go through in the trust I was in there was a bell and every time I had a treatment Iād say as I went by it, Iāll be ringing you, our trust whenāre we heard it being rung everyone would clap and cheer and there were different cancer treatments happening and people were at different stages of their treatments but everyone would clap and cheer anyone ringing it everyone having treatments just pulled together 
Shi xx
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Dear @milly156 so sorry youāve been through this, hope you get some rest tonight. Like @Shi says, take care and keep checking your temperature to stay safe. Weāre all thinking of you, it must be hard Mr Milly needing treatment too. I really hope next week picks up for you xxxx
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Dear Milly156
So, so sorry for your rubbish experience at the hospital, completely understand you leaving. Iām shocked as I thought immunosuppressed patients would be dealt with separately to A and E. It must have been against every instinct to stay there.
Iām hoping that you can rest and recover at home and regain strength and perhaps speak to your oncologistās secretary today?
Please keep us posted on how youāre doing. Hope your hubby is also OK.
We are all sending our love xxx
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Hi Camy_Radika
Thank you for explaining your experience, helpful that the physio told you that.
Going to chemo is never nice is it? I always worry about them getting a good vein now for the cannula as last time was more tricky. The nurse was strongly encouraging me to go for a PICC line but Iām not still not keenā¦I know I will probably have to soonā¦
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I think the way you have been treated is terrible. I am a lot further down the line than you (been through chemo, surgery and radiotherapy). The whole thing has been totally traumatic.
I did a report/feedback to PALS. They listened and gave me a meeting - didnāt make much difference - but it is SO important that women complain when they have bad experiences - it could HELP other people, in future! Do not be afraid to ācomplainā if your treatment is bad.
The peopler who keep it all to themselves and pretend everything is āOKā are not helping anyone. I think itās called ātoxic positivityā in psychology - not allowing yourself to admit that what you are going through is awful.
BTW I am, supposedly alright now - yet Iām not - I have ongoing pain and problems with my implant. I am following all avenues in order to try to get it sorted. Having problems with implants/reconstruction is NOT uncommon. Be aware of this. Do not put up with bad treatment.
All the best,
Kate
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I have a picc line from the beginning, I would advise you to get one, first week you will feel the stitches but is tolerating, after a week you will not even knows is there, I have on the top of my arm.
No more needles and is used for blood test and chemo too.
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I agree with @Camy_Radika about the PICC line. Iām having 12 weekly treatments so now they use the PICC for bloods and all treatment. No more needles also reduces risk of Lymphodema.
Itās not totally comfortable having it fitted, they numb you but you can feel some pressure. It took two weeks for mine to settle, the district nurse changes the dressing and flushes weekly.
Have a chat with your team. @daffodil1
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Thank you ladies for your views on picc lines, very helpful.
The fatigue from chemo is really starting to set in now. Is anyone else losing their sense of taste?
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I opted out for port fitted as I donāt like needles
I am also quite sensitive as was worried that the picc line would be there annoying me. Whatever you chose I think itās best then to be pricked every time š©·š
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I had a pic line and hardly felt it at all- as they could only take from one side it stopped any worry about problems with my veins over the 12weeks of chemo.
And yes I lost my taste sensation too, but itās come back very quickly after finishing Paclitaxol.
Iāve just ordered some Phyto v- I really hope it works for me too!
Keep strong ladies xx
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Hi everyone, I had my chemo today, felling not to bad, my head is banging on, tired, but nothing else intolerably.
I developed a light cough after the first session of EC , today I had the third one, I told the nurse from the beginning, is like a fake coughing morning and evening, do finally today before I start chemo they sent me tto hospital for X-ray, to my lungs and picc line checks, with little radiation effect, so it doesnāt affect me, came back clear so Iām relieved now.They said it could be from the chemo or from stomach acid I had on my first day, so irritating cough. If anyone else is in this situation please ask your nurse and they will guide you in the right direction Hopefully you are doing better as you can, and no side effects on the September topic. But will share here any experience and support during treatment and it will be very informative for all. I am happy I found this forum, I donāt know if Ireland has one, I couldnāt find one. All my best health wishes for all, hopefully tomycome a sunny day here. 
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Hi @Camy_Radika so glad your scan came back fine . I had a biopsy under mri the other week on other non cancery boob as theyād spotted something. But like you was all fine. So relieved.
Am finding walking and movement is helping with my fatigue and other side effects of EC, if I force myself out for a walk (even a mile or two) I feel better. So Iāve signed up to walk 100 miles during October to raise money for Breast Cancer Now, and am roping my friends to come on wanders with me.
Not being too ambitious (the longest Iāve walked in one go isnāt that far!) but it is giving me a boost and also a reason to see my mates, plus it feels like something fun during the boring old hard yards of chemotherapy. I know everyoneās experience of this is different, but if anyone fancies a virtual walk one eve give me a shout. Xxxx
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Hi Annemanc, great idea to sign up for that walk, well done!
I try and have a little walk each day too, though itās probably no more than a mile. But I think even 5 mins is better than nothing.
Great news about the MRI guided biopsy. Out of interest, how did they spot something on the other breast? I havenāt actually had any tests on my other breast at all and it does worry me sometimesā¦
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Hi Camy_Radika, so pleased to hear your news, thatās great.
Great you have another EC out of the way.
Iām going in later for another paclixatel, but my hubby will be coming home as our son has a sore throat and feels a bit sick, so heās staying off school today.
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Hi Artylady, thatās all really useful to know re the PICC line, thank you so much.
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Hi all, thank you all for your support earlier this week. Had my bloods done on Tuesday and all ok so Im off for my 2nd EC today.
Ive got a Picc line. It sometimes hurts a little but i often forget its there and its much better than a cannula.
Thinking of you all and hoping today is a good day for everyone xx
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Well done dear, itās important that you feel good, Iām glad you committed to doing this. With other boob probably always we will be worried, hopefully we can manage in any situation Take care and be strong
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@daffodil1 just after my diagnosis they did an mri scan and spotted a little suspicious lump on my āgoodā boob, nestled right at back near my breast bone. It didnāt show up in ultrasounds or mammograms, but they wanted to keep an eye on it.
The only way to biopsy it was during an mri (having both together is the strangest trippy procedure). Had that a week or so after my first chemotherapy which was grim as had to contort into odd positions in order for the mri to find it as it was so far back. But getting the results that itās nothing (just wear and tear) was a nice boost and felt like another milestone done. Chemo is no walk in the park but for me I find the wait for test results the v tricky bit xxxx
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Ah dear, the children will catch all the bugs and is season of sore throat to, I am afraid to stay near mine too, poor them they want hugs and kisses but will understand.
Take care dear and let me now how is working the paclitaxel, I am worried about too.
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