I’m sorry that you had to go through this procedure again, it’s very difficult for us already with the treatment I’m glad everything turned out well, you will have some discomfort on that side but try using perini under your hand to feel more comfortable We hope and continue day after day for the days when we will begin a carefree and healthy life I wish you good health I hug you 
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Hi dear, picc line you won’t feel any discomfort in a few days.Good luck with chemotherapy today, I’m sure you’ll feel better on the second one. All my best and lots of health Big hug:muscle:
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Hello lovely ladies…
Hope you’re all ok.
My turn for a cry now …
I’m in hospital for chemo. Each week so far, I have been given steroids to take home with me to take on days 3,4,5, 10,11,12, 17,18,19 of 21 day cycle and so on. This time (cycle 2, week 2) they just told me I only get steroids for days 3,4,5 and told me that I didn’t receive them for the other times. I felt they didn’t believe me and they kept saying there’s no record of it being prescribed on their system for weeks 2 and 3. I absolutely was given them and my husband also saw me get them and take them at home. The nurse was really quite rude and said several times that couldn’t have happened. But it did.
The consultant came round and said he believes me and needs to look into why this happened. He was lovely. But it’s really affected my trust and I just burst into tears in front of the consultant. Essentially I was given, and took, drugs I should not have taken on weeks 2 and 3.
This is all hard enough anyway without additional problems. Sorry for the moan xxx
I’d already had a bad hospital experience years ago and this is not helping
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So glad you’re ok now, thank goodness xxx
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Ah very good they are keeping an eye. I had an MRI guided biopsy during my diagnosis. It can hurt a bit …
I agree results and the worry are the worst
Xxxx
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Oh @daffodil1 , sorry to hear about your experience. I cant believe there was no record of you having been given the extra steroids. I cant understand why the nurse would argue with you instead of investigating what happened but its good that the consultant believed you.
We have to put our trust in the health professionals looking after us so when that trust is shaken, it makes us question everything. I hope this is soon resolved xx
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@daffodil1 I am so sorry to hear your experience. You have been so unlucky and your consultant is right it shouldn’t have happened. I have had a real range of experiences with nurses so far. Some have been amazing, patient, kind and have gone above and beyond to make sure I was okay. Others like the one you dealt with have been indifferent, rude and uncaring and have made me lose trust. In fact the one who gave me all my meds was the worst and got annoyed when i wanted to write on the packets what was optional and what was compulsory. But I am learning I need to channel my inner stroppy middle aged woman and stand my ground.
Hopefully the consultant said it wouldn’t physically affect you or the treatment in the long term which is probably the best you can hope for. Thinking of you and hoping you get one of the nice nurses next time.
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I have had a bit of a shocker this week. I got admitted to A&E on Tuesday turns out I had infection and very low neutrophils (I was on day six cycle one). I spent my first seven or so hours in the baby feeding room as the only place the could isolate me (better than the main area but…). Eventually made it to an A&E isolation room/ward late on Tuesday and after days of blood tests, fluids and IV antibiotics got discharged today with five more days of antibiotics. I am covered in bruises from cannula and blood tests as not yet had my picc line fitted (why oh why don’t they do that before first chemo). Feeling very sorry for myself. Whoever said chemo was tough had a real knack of understatement. I can’t quite believe how bad it has been and just don’t know how I will get through this mentally. I am not even halfway through cycle one of six.
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frazzledmcsazza sorry you are having casa nhs stay it can be a bit of a 
moment because it can make you feel out of control a bit your neutrophils will bounce back it will just take them bit of time and you might go nadir for a bit, hang on 
it can make you want to run for the hills and not look back but if you’ve not already read mountain lion by strawberry blonde on here please do it’s helped lots of us over the years I’m hoping Jill1998 can put the link on here for you to it 
Shi xx
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@daffodil1 I had an MRI as they weren’t sure about the tumour found after mammogram and ultrasound, it incidentally found another suspicious lump which turned out to be another primary breast cancer. Routinely, they would mammogram both breasts and if nothing found they other is left alone. Lucky for me the small grade 1 tumour was found, removed and now being treated, had I not had the MRI it would have been treated by chemotherapy but nobody would have known it was there. Had I only had the lumpectomy and radiotherapy it would not have been treated and probably wouldn’t have been found until next mammogram in a year giving it time to grow. Only about 4% of breasts cancers are found in both breasts.
If you are worried talk to your team. I hope they can put your mind at rest.
I just read on and heard about your experience today. My first week I wasn’t given any introduction about what would happen, what to take and why, when others I know were given a really good intro. The nurse’s surname was Searle and I described her way with me and what she said to another chemo nurse 2nd week who was lovely and a senior clinical nurse in clinic and she said she would follow up what I had said. All others for the following weeks have been so lovely and offered to help. The first week was about some medication or diarrhoea and she said you don’t get it with Paclitaxel when I’d been told by consultant and the clinical lead nurse it’s very common and they would prescribe for me, she said not prescribed and didn’t bother to follow it up when she should have. I read on here that so many were given steroids for three days, I only had then as premeds on them week 3 bad reaction and now I have them before each treatment, probably should have had them from week 1.
I’m sorry you had a cry, we shouldn’t have to chase and ask for things and definitely not be treated like we are making things up. I’m glad it’s all sorted.
Week 4 chemo of 12 for me today, that’s 1/3 done. 
Feeling good today. The steroid tablet given before chemo and due to take now 6 hours after can give you constipation so am hoping that will prevent the diarrhoea I’ve suffered the last few weeks. Had issues with cold cap machine not wanting to work so delayed by 1/2hour then someone had a reaction and stopped setting up my premeds. But all in all it went smoothly if a little longer. Consultant said to continue with co,d cap for all 12 sessions if I can as if I stop earlier I could just loose my hair and the weeks with it on would have been wasted. I had read about secondary cancer in the scalp and he assured me some chemo will get there and I have a sensitive scalp and can’t stand the wind blowing in it when I walk, he also said that scalp cancer is rare. So that’s hopefully for all us cold capping.
@annemanc well done for signing yourself up for the walk. I like others can do 15/20 minutes then mp end rest for most of the week on my two good days I can do more, not sure I’d do 100 miles.
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So sorry to hear you’ve had a bad week and been in A&E, the worst place for all of us. Maybe contact your team about a PICC line. I have one and had no more pricks apart from Covid and flu vaccines.
I hope you feel better soon. Remember you are strong, this chemotherapy is not easy but you’re doing it.
@milly156 glad you better and your bloods are all ok ready for your next chemo. What did your team say about your A&E experience? Were they able to offer a safer alternative if you need it again?
@Camy_Radika glad your chemo went well yesterday.
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That’s so true, I think that’s what upset me such a lot. So important to have trust and good communication. So glad you’re doing better now. How is hubby doing too xx
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Thank you Frazzle. I’ve had the same experience with nurses, some amazing and some who shouldn’t really be in the job…yes the consultant was reassuring thankfully.
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Frazzle, that sounds very tough. Really hoping that’s your extra tough time out of the way and that things improve for you from hereon in. Must be horrid going to A and E when you’re already feeling vulnerable. Big hugs xxxx
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Sorry to hear you had a bad experience, it’s definitely not what you want. I have bothered the nurses and pharmacy so much.
Am on cycle 1 of Pembrolizumab, Paclitaxel and carboplatin. Very achy yesterday after gcsf injection.
I also take steroids on 3 days post 24h Chemo in morning and Lunch time but it seems that’s it for that , also acts as anti sickness the dexamethasone.then I have metoclopramide 3 times a day for anti sickness but I struggle w sickness and nausea in evening and at night/during sleep so will be calling them back again today !!
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Hi Pinklili
Good on you for being on it.
I’m guessing that from the sounds of your regime, you have TNBC too? Great you have immunotherapy, I couldn’t have that unfortunately, as they only discovered it in my lymph node post surgery and I understand immuni has to be given prior to surgery.
Are you having the steroids weekly or once every three weeks?
Xx
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Hi Daffodil1
I have triple negative BC yes. Stage 1 grade 3. Lump in breast no allegedly in nodes but nodes are large (could be because of I had a hand operation in August)
I’ve had the steroid in IV on day 1, then for 3 days post chemo AM and PM.
New week next week, I can tell you when I go I suppose ll have them again but it’s different drug, EC I think but not sure xxx
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Hi Pinklili, me too, triple negative. I found a book by Michelle Solak-Edwards very helpful…
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Thanks for all that info, naughtyboob. Really glad to hear you are a third of the way through. I’ve had 5 so far out of 15 so the same I guess! Though timing wise I am only 4 weeks into 21 weeks …
Good you have feedback about the nurse too. I think some of them can’t be bothered and are in the wrong job, whereas others are very kind indeed.
My son’s feeling really poorly, has strep throat and a very high temp, so back off to give him a masked cuddle…
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