September 2023 Chemo Starters

Hey we all have our ups and downs đŸ©· and well done for getting it cut shorter. Got vag thrush day 2 of first treatment! I get it on antibiotics so sadly it wasn’t a surprise :frowning: I am on fluconazole for 7 days then hope it clears as can’t keep taking it, affects liver apparently.
I cut my hair really short. Don’t have kids and live alone, but social job (when I can get back to it) , HR and horse ride leader (guide) so am bracing for the comments when hair starts falling. I am doing the cold cap and it’s made me throw up but fine this afternoon :woman_shrugging:
Thanks for confirming the metallic taste! My cup of tea in morning is my only saving grace so hope it doesn’t go taste funny :joy:
I felt terrible last week and immense ups and downs. Times passes and should make us all feel better.
Do speak to doctor/nurses for sure.
I should start counselling next week and actually can’t wait to off load all those feelings!!! Big big hugs to you, your son and family and friends. You are not alone!!!đŸ©·đŸ©·đŸ©·đŸ©·

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@Craftyj I watched the new haunted house on Disney last night. If your son doesn’t feel it’s lame (no kids but eldest of 4​:sweat_smile::sob::joy:) he might like it!!! I did make me chuckle pre treatment :kissing_heart:

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@Craftyj sorry to hear you are feeling down. I think we are all going to have those days. After a trip to A&E last week I thought I was getting a bit better and then had a set back which ended up affecting me more mentally than physically. Some days are just really tough and you are not alone in feeling that way. But hopefully it is temporary and a different day with different symptoms and you might feel a bit better. If it gets worse though do ask your medical team for support. The mental battle is as important as the physical one and they should be able to help.

I hope you feel better soon and yes you are also not alone in having taste and possibly thrush issues. I got oral thrush after cycle one so I think it is just another side effect to add into the very long and seemingly ever increasing list of side effects. Your medical team should be able to help with the thrush if not the taste. Interestingly the taste issues for me seem to change day by day so might be worth trying your tea again in a day or two to see if it tastes better again.

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Sorry you’re having a tough time @Craftyj I feel for you. Anything to do with your kids getting upset is so hard to deal with, as are health fears. Hope tomorrow is better for you. Also sorry you’ve been having tough times @Camy_Radika and @pinklilli3s - it is massively up and down isn’t it?

Everyone’s experience of this is different, but I’ve found little treats are essential to see me through this. A nice moisturiser, doing some skincare stuff (which I’m normally awful at), pretty much anything to see me through it. Plus limiting contact with people who are a downer or without meaning to make me feel rubbish or awkward about what I’m going through.

@naughty_boob glad you like the playlist! I’ll do us all another one when we’re all halfway through :heart:

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@annemanc massively up and down last week but day and night between last week first 3 infusions and gcsf infusion and paclitaxel only today. Don’t want to jinx it, but I seem to perk up this evening (hopefully I’ll sleep too​:thinking:). I even fancy a pizza and was thinking of baking a cake and taking it to the yard. That will occupy a few hours tomorrow :crossed_fingers:. Who I am :joy::facepunch:
I am normally very careful w money because I live on my own but agreed, I’ve treated myself and didn’t care. Bought the expensive recommended cream/conditioner, the food treats. Don’t care. I hope you had a lovely walk. The weather was gorgeous :smiling_face_with_three_hearts: Lots of love to all and praying for a nausea free and uninterrupted night sleep and for us all to have a few good days pain free and side effects free :kissing_heart:

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Sorry you’re feeling down but glad you’ve reached out.

My first week I was sore down below and it was a water infection, so try to call helpline or GP as I needed antibiotics. I had bad diarrhoea they believe caused some dehydration which in turn caused UTI!

Yes metallic taste in my mouth. Water tastes horrible, need to add citrus flavoured squash as berries taste sickly. Don’t enjoy my decaf coffee :disappointed: and I loved my coffee!

As far as anything in your breast, try not to worry until you know. I originally went with a lump in my right and subsequent MRI for size to be determined found a second tumour in my left. Another primary but smaller and lower grade. Told only about 4% get cancer in both at the same time. My treatment was the same except for double lumpectomy.

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Just watching Haunted Mansion now as I feel more awake today after a rest mid afternoon.
Last few days I’ve struggled to stay awake, then go to bed and can’t sleep! So infuriating! Then the wind starts from below! or the hot flushes! It’s nice to watch something all the way through.

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Oh I can only imagine, I was in bed most days 9pm forcing myself to try to stay awake so I don’t wake up middle of night but still end up waking up anyway! Enjoy and it’s a really funny film :face_with_hand_over_mouth: Didn’t realise it was remake either! Rest up and hope it passes as fast as it can :pray::crossed_fingers::kissing_heart:

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Hi Camy, so sorry to hear you have a bad cough but delighted to hear your x-ray is clear. It’s horrible waiting for results.
Coughing is exhausting even without being on chemo. I wonder if you’ve tried raising to top of your bed a little, might help you sleep? Also I used bronchostop cough pastilles a while ago - expensive but good.
Hope the cough disappears soon. I seem to have caught the sniffles from my son, let’s hope it gets no worse


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Hi Craftyj, please don’t apologise for long message. Really hope you get to see your consultant soon and he or she can put your mind at rest. The good thing is you’re getting it checked out.
On the down below front, yes, everything feels more tender. Might be thrush or UTI or I am using ovestin cream frequently to help combat dryness. My mouth and thrust dlsi feel very dry.
Yes Pinklili definitely have the horrible taste, common with paclixatel and carbo I think. I’ve also gone off coffee and tea.

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Hi frazzled, sorry to hear you’ve had tough time too. Big hugs to all of us struggling in many different ways. I agree annemanc, anything to do with health concerns and kids are the most tricky to deal with.
We are trying to watch half hour comedies in the evening for a bit if relief - researching Miranda, Mum, Not Going Out. I think gir me the 4 to 5 days after paclixatel are worst. But probably about 11 to 12 days after the double whammy carbo/taxol.

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Another funny one to try @daffodil1 is Starstruck on iplayer. Comedy about an Australian ex pat living in London in a flat share who randomly falls in love/lust with a fit Hollywood actor. Each episode is 20 mins long and it’s really funny xxx

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Hi dear, thank you
I am trying everything possible but this morning was very worst, I am going now to hospital as they asked me, so I will see, I feel I have no power, I tested for COVID is negative, but this morning kids start coughing too
Hopefully everything will be fine, I will do all possible to be better, but after days I feel so week.
All my best to all ,:woozy_face::gift_heart::hibiscus:

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Good to get checked out @Camy_Radika am thinking of you. Coughing is exhausting. Let us know how you get on xxx

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Oh dear @Camy_Radika so sorry you’re feeling so rough. Fingers crossed the hospital will sort you out. Keep us informed.
Hugs :smiling_face_with_three_hearts:

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:heart:please check with your team if you haven’t already you might need antibiotics :heart::two_hearts::two_hearts::sparkles::sparkles:Shi xx

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I am back from the hospital.
Blood test are fine, Chest is clear, a bit the infection results are showing increasing, but they said is nothing to worried.
Finally they decided to prescribe antibiotic, that I be recovered till next Wednesday when I will have my chemotherapy session.
Hopefully I will see improved in my health next days, I am happy they checked me, still coughing and that’s makes me so tired.
Thank you girls :heart_eyes:, take care

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@pinklilli3s and @naughty_boob Yep same here on first cycle. Struggled to stay awake all day and then got 4-6 hours sleep max each night. Those steroids are a nightmare. My nurse advised taking them by midday each day but it didn’t make much difference. Glad you are finding good things to watch to keep you going. I listened to podcasts when I couldn’t sleep so maybe that is an option for those night time hours. Meant I could stay in bed with eyes closed even if I wasn’t asleep. I am currently off steroids for one more week before the madness starts again. Feeling relatively normal today and can’t quite believe I have to go through it all again. Hoping for better meds for constipation and then much better meds for subsequent diarrhoea which like you guys was ridiculously bad. Hope you feel better soon. You got this.

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Good that your chest is clear and that they gave antibiotics. You may just need a rest from chemo. All the best :smiling_face:

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Good luck for the week ahead. I take nothing after the week I am on paclitaxel only and I’ve actually slept. God it felt good to have some uninterrupted sleep. Took me a long time to fall asleep and once I was awake I was awake but had a lot productive day.
Do tell me about the constipation meds they give you. I am in movicol during my carbo/pacli pembro infusion but i don’t like the taste and it’s making me feel sick just thinking about the taste. They told me to get prune juice and prunes and eat lots of fibres. I was craving banana last week as is it turns out I was low in potassium, funny how your body tells you what you need sometimes.
All the best for all going through treatment in next few days. I have another week of pacli next week and so far so good :smile::grimacing::pray:it’s only the beginning ofc

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