Sorry to hear you’re feeling rough. I changed from metoclopramide to Cyclizine with odanestron the day before chemo and infusion as premed and one tablet 8 hours later. Then cyclizine next few days. Always worth asking never suffer the nausea, something will fix it.
I agree with the frustrations associated with foggy brain and not being able to do what used to be simple things.
I’ve been sole executor for family estate for a year which is stressful enough without breast cancer and had really problems with the energy provider. The house is now sold but I had a complaint in August still not rectified, told them I had cancer recovering from surgery now chemo, please don’t phone just email. Well they ignored me, even email opening line ’ I hope this email finds you well ’ (screams at screen). Told the the calling was harassment, still continued and even said could be spam calls but have caller id & voicemails. Then some bright spark decided to give me unsolicited medical advice! Highly inappropriate, I asked for deadlock letter to go to ombudsman to complain,they then offered flowers which for months said they couldn’t send. Suffice to say I demanded deadlock letter and now reported to ombudsman. I asked for charity donation to breast cancer now as compensation. It took me ages to upload and record all the information with my brain not working but I did it. It’s not just about me but many others who get harrased when ill and can’t or don’t have the tenacity ( I just had to Google it to make sure I was thinking of the right word- brain!).
@daffodil1 sorry to hear you have been having a tough time. Hopefully once you get off the steroids and get more sleep you’ll start to feel a bit more normal. Agree it definitely takes extra brain power to do normal things. some days are just tough and need forgetting. Plus tonight we will both be watching strictly and forgetting about all this for an hour or two. Take care. S
@naughty_boob you sound so incredibly competent and tenacious. Well done for not taking any prisoners and making them do the right thing. If this is what you can achieve in the midst of this madness there will be no stopping you when you come out the other side.
Thank you annemanc, I think I need to do this, no point suffering in silence. Only thing is we’ve come away to a cottage about an hour away and I’m hoping to avoid hospital contact today, Sun and Mon! X
annemanc that great you’ve done this for your thread music definitely helped us Oct17 gang through keep adding and keep dancing if any of you are Derbyshire then check with your Macmillan if they are still funding 4 therapy sessions with spirit and soul it’s equine therapy with horses and Sarah who owns and runs it is a tnbc survivor just worth a mention if any of you wanted options rather than speaking to anyone in clinical environment you are partnered with a horse and there’s been quite a few of us it helped so just wanted to share if it can help anyone else Shi xx
This is great @annemanc
There are some fab blasts from the past. Love Boogie oogie oogie.
Making the most of a short break from chemo and got out on Helton Fell this morning. We’re close to the northern lakes. It blew off a few cobwebs.
Hope youre all ok this weekend xx
Ive been meaning to ask if you’ve all done the Look Good Feel Better courses?
I did the Skincare and Make up one via zoom and about 3 weeks later, a box of freebie skincare and makeup arrived, all free of charge.
I’m doing the Hand and nailcare session, also via zoom, this coming week. Not sure if ill get any more freebies but the courses are good for picking up tips.
The only downside is that the courses are all 2 hours and i find that a long time if its in the week following chemo.
Hey everyone. Hope it’s ok to ask here, as I’m an October starter. I just had my first round of chemo on Thursday and wondered if how I’m feeling is usual? Since yesterday, after which the steroids were wearing off, I have felt achey and fluey. Normal temperature but just horrible. Taking paracetamol but not really helping much. I’m not worried exactly as I imagine it’s part and parcel of the side effects, but did those of you who have been through it feel similar? Nausea and constipation also but anti sickness meds doing an ok job.
Hello @copperycat . Are you having the filgrastim injections? They can make you feel achey in your bones which is maybe not dissimilar to a flu feeling. I do sometimes slump after I stop the steroids too, I’m on 3rd Ec so only have 4 a day for 2 days after my infusion. Am on docetaxel next which is 8 a day so imagine slump feeling is more.
Hope you start feeling better, I’d go with your gut instinct and call the helpline just in case if you’re in any way worried. They are so helpful and will want you to check. But to reassure you, I do find I slump when the steroids wear off xxxx
@copperycat I agree with annemanc. Call the helpline. I was on it like the batphone after the first cycle. Your symptoms sound very familiar but we are all on different treatments and so the normal side effects for one person might be different for another person. Hope you get some good advice and feel better soon.
I’ve just booked a virtual one. My eyelashes and brows are very thin but I need some help with my skin. Already using fragrance free!
It would be a nice treat to receive some freebies! Looking online it tells you what you may need so assumed you wouldn’t get the freebies with face to face. I tried to book a local one but the next one isn’t until January!
Will probably look into the nails session as Paclitaxel can cause a lot of problems.
Like you I was worried about the length of the session, I can’t seem to concentrate for longer than 15/20 minutes before I get distracted or faze out. I suppose I can turn off the camera and take a bit of time out if needed. Did they follow up with any information?
@copperycat I’m on weekly Paclitaxel and have issues with diarrhoea and nausea, I get very fatigued, headaches and body aches for two or three days. I tend to just rest as much as possible. Have Epsom salt baths have helped, especially the added CBD oil or Sleep on with Valerian. As everyone else says give your helpline a ring, they can guide you. I’ve rang several times and they’ve been really helpful, sometimes advice on the phone, referring me to GP or asking me to come into have a look.
I went to a LGFB session at Maggie’s in Manchester @naughty_boob a couple of weeks back. So good, got a really nice of products (some v fancy make up like Nars and Armani, plus nice high street brands too). The part I enjoyed most was reminder of how to really cleanse your face… cleanse, tone and moisturiser w them providing all the stuff we could take home. Fun and a nice reminder to pamper yourself if you fancy it.
Am thinking of getting a mani and pedi before I start on Docetaxel but unsure if I should get gel nails . Heard conflicting stuff about whether it’s a good idea (unbudgable) v bad (infection risk) xxxx
I’d read something about wearing black or very dark nail varnish in Docetaxel/Paclitaxel as it can prevent some damage to the nails. Unfortunately I seem to bet allergic to anything in my nails, last time I wore varnish at a Christmas party I woke up with swollen eyes. The nail varnish was the only new thing I’d used. Had similar reaction to a nail strengthened as well. So I’m just using cuticle cream and hand cream.
Thanks! I bought some polish from Nail Kind (which I’d seen promoted as being good for us during treatment) but it was awful and chipped within a day but took ages to remove w nail varnish remover. Def one to swerve x
. I’ll start pulling it together xxxx
. Heard conflicting stuff about whether it’s a good idea (unbudgable) v bad (infection risk) xxxx