Daffodil, I know some of our oct17 gang delayed their chemo around Christmas so worth asking your team 
Shi xx
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Hi @Camy_Radika
So glad you finally have the diagnosis and on the road to recovery. Will be thinking of you on Tuesday when they advise what will happen next.
Feeling so much better today, first Friday I’ve cooked dinner for so many weeks. I’m looking forward to having a side effect free weekend as well.
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Really glad to hear it @naughty_boob . Hope the dinner was fun. Those extra few days so help you bounce back xxxx
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Glad to hear you have a diagnosis finally and they’ll discuss next step w you. Am half way through this round but have another 2 big weeks coming up,one next week, my mum is coming and first week of Dec, then 4 rounds of EC in new year.
Big hugs. Will enjoy my last weekend of “freedom” before next Tuesday xxx
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Hi Annemanc, fingers crossed doclatexal is not too bad for you.
Thank you for the advice re EC. I’m really pleased to hear you didn’t feel too nauseous. That’s the bit I’m really dreading. That and constipation.
At least I have the 30 Nov cycle to see how I do. I’d love to think I’d be able to continue walking, like you.
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Hi Camy, that’s also really super helpful, thank you. Will see how I go on the EC. Hope you’re doing OK and the cough is starting to ease a little now with all the drugs.
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Thanks Shi, will check …
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Thanks @daffodil1 . I had my first docetaxel on Thurs… found today and yesterday more challenging (but doable). It feels v diff to EC, on EC I felt drugged up while this is more achy/tingly. I had a lovely hot bath with Epsom salts which helped last night but annoyingly our boiler has packed in today (great timing!). Hopefully will be fixed tomorrow.
Anyway, walking again seems to be helping so I’ve roped in a mate to take me out for a walk tonight… pounding the streets in the dark and rain at 7pm. 
The wet weather is due to stop in Manc by then so hopefully will be ok. Have been in bed a bit today but know I’ll feel better getting out.
Hope everyone holding up ok xxxx
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Back from my 3 infusions, mum.arrived lat night gcsf injection tomorrow I will try loratidine and my hemoglobin is low, dropped to.81 should 100 to 120 so need to have transfusion on Thursday 2.bags… explained the tiredness and.shortmess of breath and, dizzyness and headaches
Hope everyone is well 🩷
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I was back in hospital on Sunday with another temperature and I was still on the antibiotics. It was 38.5 so was told to come in straightaway. Put in a side room which is nice, I catch so much being asthmatic ( had StrepA last Nov/Dec then in New year back to work (school) two weeks for pneumonia) add to that the being immune suppressed on chemo/Herceptin am not sure I want to think how bad I would be. Even inside my room I can hear so many coughing.
Had another load of bloods taken and my inflammatory markers are up but nothing specific, they still think it’s a UTI so had sent sample off for cultures to be grown to see what antibiotics would be best, unfortunately it takes 2/3 days. Started off broad spectrum IV antibiotic, obs every 4 hours temp was up take paracetamol the temp goes down, no more paracetamol and temp back up. Last night they changed to two different IV antibiotics and I feel so much better today but can’t go home until I have 24 hours no temperature. Fingers crossed be tomorrow. Hardly sleeping with 4 hourly obs and IV antibiotics at 10pm until 11:30 by the time they flush.
Downside I told them several times I had a clinic appointment today and they said all the right things but didn’t do anything. When doctor eventually came at 2pm she said she wasn’t told. I also now have oral thrush probably from 4 different antibiotics and a massive cold sore. I was told I could pop out for a walk in the grounds or hospital, so I went to outpatients and explained that I wasn’t a no show and that the ward hadn’t told them I was admitted. Also needed to get someone to fill in a form for ESA as my statutory sick pay finishes next week and I had a deadline to get it completed. Nobody could see me but by the time I’d bought a take out coffee from the cafe and got back to ward I had a visit from one of the breast specialist nurses. We had a good chat so she could update my records and completed my form. So that’s a relief. Think my treatment will be delayed for a second week.
It’s not what I thought staying over a few nights in Cardiff would be! 
Hope everyone else is doing ok?
@annemanc hope you are ok with Docetaxel now it’s been a few more days?
@pinklilli3s hope you have a nice time with your mum and your side effects are manageable
@Camy_Radika how you doing?
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Gah. That’s really tough @naughty_boob, particularly as you had a few days rest planned between infusions for once. I really hope you get home soon. When’s your next cycle due?
I’m alright thanks, have found the last couple of days (days 4 and 5 post infusion) the hardest of all my chemo to date. The nights have felt tough… docetaxel is proving to be hard for me. Think it’s the achy limbs, peripheral neuropathy, change in taste buds and also crashing after 16mg of dexamethasone a day. Steroids are weird powerful drugs. But it is doable and I’m already perking up a bit, so am planning lots of nice stuff to do in a few days’ time.
Sending you all love xxx
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Thanks, hope they can sort it out for and you’ll hopefully get a week rest to recover. It’s nice to have someone around to argue and laugh w injection is tomorrow so the roller coaster of pain will start then
@annemanc all the best to you too and it seems dox is hard on you. How many have you gone through and how many left? xxx
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Two more to go @pinklilli3s so the end is in sight. Feels harder for me now I can see the end oddly, had to dig into my resilience last few days. Hope you’re doing ok? Xxxx
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Gosh my dear, you are suffering 
, God gives you strength 
, I can’t believe they are like that with you, hopefully you will be better soon and you will be able to do you treatment 
.
@annemanc all my best with your treatment too, hopefully everyone is getting better.
My news today from the oncology department:
My lung inflammation, pneumonitis, have to be treated, that’s mean chemotherapy I am not allowed to do anymore. So done chemotherapy, they are happy enough with 4 EC and 1 Taxol I done.
Next step after lung treatment is scans and radiotherapy, and tamoxifen, hormone therapy and menopause induced.
They are happy with my evolution, cough is start to be improved but stil I have bad sessions of coughing, but one month I amone high dose of steroids.
I will take everything step by step, and hopefully will be better soon.
They congratulated me and all both doctors and nurses hug me, but sincerely I can’t be happy yet, I suffered to much with this cough, that I am afraid now for anything else could happen.
So from oncology team great news, hopefully I can done with treatment under the plan.
I will keep you updated and I will read all your post here.
Thank you for all your support 
and big hugs 
.
Good luck to all your treatment girls.
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Dig deep is the only way
It’s hard when you’re in pain to be strong mentally I get you. This is my big 3. Perhaps the worse is yet to come w gscsf injection tomorrow but hopefully blood transfusion will help perk me back up a bit. Been so out of breath all the time and dizzy/headaches. So fingers crossed after this one, Abraxane twice every Tuesday then another cycle like this 3 1 1 and am some w this cycle then on to EC in 2024.
Hoping to hear back on news for a job I applied internally.
Great news @Camy_Radika well done for tackling this one
Take care everyone xxx
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@Camy_Radika that is brilliant news, you’ve been through so much. It’s good the docs are letting your body have a rest to recover, particularly before Christmas too. That lung condition sounds v hard. Hope you feel better soon.
@pinklilli3s best of luck with your next infusion. Being in pain is horrid. And good luck with the job… you’re an absolute superstar applying for something while going through all this! Got my fingers and toes crossed for you xxxx
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I hope you will manage better with the new infusion, is hard to not feel well and try to live with all sides effects and work in the same time. Seems like you are a strong person , all my best, and good luck with job and treatment.big hug
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Hi Naughtyboob, a difficult time for you. Very much hope you’re able to get home to your own bed soon. Sounds promising that you’re feeling better after the double IV antibiotics. Sickness wise I’m using metoclopramide and those little wrist bands though still a bit nauseous. The ondanestron was what made me really constipated and therefore sick - I found out further down the line that they had given it to me for an infusion and I think that’s why I felt awful afterwards. Fingers crossed for you xxx
Pinklili really surry to hear you need a blood transfusion too. At least haemoglobin level explains why you’ve been so tired and breathless and hope you feel much better afterwards. How lovely to have your mum over. And well done in job application.
Annemanc, hope you pick up soon as it sounds like doclatexol is really tough. Is that every three weeks too?
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Hi Camy, hope you’re ok, it’s difficult when goal posts keep changing. I really hope the steroids kick in to help your lung inflammation very soon. Have you any idea when they’d like you to start radiotherapy? Huge hugs
Xxx
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Thank you all for your messages. I’m feeling so much better and have now had 24 hours with no temperature.
Unfortunately an elderly gent across from me is really poorly and I think he’s got pneumonia (I have my windows open and mask as soon as my door opens as that’s the last thing I need to catch) love him he can’t help his coughing and phlegm unable to catch it kill it bin it. I’ve had it twice as an asthmatic and it’s horrendous never mine after chemo.
Had more antibiotics this morning but was left hooked up for 2 hours for a half hour infusion, I rang bell someone came in and said nurse be with you shortly. 45 minutes later I rang again.
Fingers crossed I’m home this afternoon
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