So much about at the moment. I don’t blame you giving it a wide birth but as your family live with you they also need to be careful. Having children in school is probably your biggest risk of infection.
My in laws wanted to come and visit the other weekend but I said no. Two days later they were both ill. I hadn’t long been out of hospital and want to finish the chemotherapy. It’s hard enough without extra infections especially fro others who are ambivalent.
I will hope your family did not contract Covid and therefore you will be ok. My only suggestion is to ventilate your house as much as possible.
Thanks, feeling less annoyed today. Agree that in reality school is most likely place where we’ll get bugs. Irritated that someone close to us would stress us out and take that risk at this stage of my chemo. So thoughtless. But what’s done is done, fingers crossed all fine x
Annemanc it’s good to vent on here you’ll find lots on here who have had same frustration with friends and family they honestly just don’t think and all you are focused on is finishing chemo, it’s like a tunnel vision you go into the zone and just want to get them over we understand Shi xx
Sorry to hear family stressing you out. I don’t think anyone who hasn’t been through it and been told how dangerous getting ill can be really understands the mental stress that comes with chemo and being told to be hyper vigilant. Hopefully as you say nothing will come of the catch-up but I think most of us would understand your fears and frustration.
Hello pink girls
Hopefully everyone is doing as well. @pinklilli3s sorry you didn’t get the job. From my experience I know you will find your dream job when you will not expect don’t give up and keep searching.
Big hug to @naughty_boob , @Craftyj@annemanc@frazzledmcsazza@Shi and all from September chemotherapy.
Unfortunately you are right about our relatives, they don’t think how exposed we are during the chemotherapy, I have in-laws too that are thinking I am fine if I don’t complain and they can’t view in what situation we are , I am staying away from all, and my children have to change them clothes and washing hands immediately they arrive from school, I am afraid too about all possible I’ll of bugs spread in the school. I am also sleeping alone in the room but I trying my best, with low immunity, to keep me healthy.
Don’t worry about what family says, you girls do whatever you think is best for you
About nails, I had only one session of paclixatel, but immediately neuropathy installed, I still 5 weeks after, and I moisturiser my nail 2-3 times daily, but I observed them are very skinny and dry too.
As I said before, the team not gave me too to much information about preventing sides effects, they want to treat only if are in place
Lucky me with this forum, were I found lots of information and tips to deal more easily with sides effects. Thank you to all for sharing them experiences.
My treatment with steroids is almost done, 2 weeks left, cough almost disappear.
Had my scan with tattoos today for radiotherapy. They are happy with me on this stage to start radiotherapy on 20 December.
After they find my position on CT scan machine I had to hold my breath for 5 seconds, not to bad, I had to do that a few times, lucky me I didn’t cough. So all went well today. I just hope the radiotherapy will go well and will not affect my lungs .
Again I asked for a few tips, nothing from them, only that I don’t use anything in my skin on the day of radiotherapy, and that I drink water, about moisturising skin after chemotherapy they said that we will talk . I told them I heard E45 and avenoo are good, but no recommendations from them:disappointed:.
I will keep you updated.
Hopefully your chemotherapy is not bothering you girls to much, and all can have a easy treatment .
All my best wishes , lots of hugs
Sorry your in law family put you through this. They should know better. I hope no one is sick and you have a fab Christmas nonetheless.
I’ve had my brother for a week and I miss him tremendously. When my mum came I thought she’d “understand” and we did closer for a short while, but she still does keep asking how I am, worry about insignificant things or things she knows nothing (like will my port beep when I travel - what IF it does, who cares?! ) or got no control over and therefore annoys me. It comes across as she’s purposely failing to communicate w me and understand what I am going through. I don’t know if it’s because maybe it’s nearly the end of this treatment chemo cycle or because I’m at my width end with it all but I am so tired and have little patience these days and only dream of one thing is to get out and go away for a few days even if I’m the being sick I’m will still be better than just being in the same place all the time.
Having a transfusion tomorrow and hopefully I’ll perk up physically and mentally. The low Hb on my tough week has made me sleep a lot and I feel grumpy, crappy and emotional ALL the time!! Crying about 7 times today!! My hormones for sure must be enjoying the show
It was also my first time doing treatment on my own today. I got so used to have someone distracting me, every time a nurse asked how I was ofc I cried!!
Thanks for all your kind words on the job front. I can’t see anyone hiring me “like this” yet I’ve applied for jobs and will think about how to present it. Likely won’t be available properly full time till June or July considering op and RT after 2nd rd of chemo next year. So that just adds to the stress. This week has been really tough.
Anyone watching the real full monty. Some deep stories but also made me chuckle seeing them on stage like that! xxx
Pinklilli, I’m always up front and honest in interviews, they can take it or leave it, if they want you they will hire you you could temp for a bit while you get back into gear? Or do something completely new worlds your oyster Shi xx
Hi everyone.
Pinklili really sorry to hear you didn’t get the job. Hope you can be cheered up by the Dusseldorf Christmas markets.
Annemanc, no wonder you are cross about thoughtlessness if in laws. Really hope you stay well.
Camy, great to hear the steroids are helping and you feel much better, in time for Christmas too, that’s great.
Naughtyboob, you’re nearly at end of paclixatel, well done.
I think I have chemo brain so love yo each and everyone of you.
I’ve had only one EC and finding it much tougher than paclixatel. A lot of nasty side effects. Two weeks on, I’m still having palpitations and ventricular ectopy, we think, so they are going to do an echo to check things. I have to hope and pray now that it resolves and I’m still ok to have next chemo on 21. Trying to make the most of next three days to do nice things with our son for Christmas.
Did anyone else get sore nailbeds on EC? Mine are really quite sore.
Hope you’re all managing to enjoy the festive season.
Last chemotherapy today. yay! Unfortunately I have to travel 50 miles away and could be out for 8 hours. I asked if there was a cancellation on Tuesday clinic but not heard from them. I’m stressed enough and didn’t chase. They don’t understand that my husband works and takes half day for each chemo and like @pinklilli3s we go together. They had offered a taxi to take me but I said no. Didn’t want to be in a car with someone who mixes with many people and puts me a risk of infection and I didn’t want to go alone!
@Camy_Radika great you’ve had your radiotherapy planning and date to start. Great you only have to hold your breath for 5 seconds with that cough. I have to told for 30 seconds as they will do both breasts in every session so if I can hold longer it’s quicker! I’ve had to practise. Like you no advise to prevent anything just after it already happens. They really need to consider more prevention or advice so you can get on top of it quickly.
@annemanc hope you and your family are all ok. Thinking of you.
@daffodil1 i have had Paclitaxel alone and in the last few weeks have suffered sore nails, redness at the cuticle and a little lifting at the end. I have filed them shorter and paint. The one good piece of advice from Look Good Feel Better course was using Vicks Vaporub its antiseptic and has helped a lot. I spoke to the team on Tuesday and they just said moisturiser or coconut oil.
Hope everyone else is ok and those having chemotherapy before Christmas (some of you on 21st) are feeling well and ready. Hugs to you all. You are all fantastic.
@pinklilli3s sorry you didn’t get the job. There will be something with your name on it round the corner. As my mum used to say, ‘what’s for you won’t go past you!’ Enjoy the markets
@annemanc people are so insensitive. They just don’t think. I hope all good and no bugs picked up. Hope your last chemo went ok. I’ve definitely felt a the effect of the reduced dose this time and have had the same SE’s but for less time!
@naughty_boob sorry you have such a long journey for chemo but hooray for it being the last one
@daffodil1 hope you get the issues with the palpitations sorted and it doesn’t delay your next chemo. I’m still having them but they say not chemo related. Also not had many issue with my nails but I’ve been painting them with black nail varnish since the start which might have helped.
Gosh this month is flying by. I’m trying to get ready for Christmas super early as my last chemo is on 21st. With oncologist appointment on 20th. Then mri on the 28th. What a Christmas it’s going to be
Hi all
Last chemo done. virtual bell, I may ring the actual bell after last radiotherapy in January.
Out for 7 1/2 hours, so a long day. Had a grumpy nurse tell me to close the window it had opened been opened a tiny bit for a bit of air. CO2 was 1500 without window open which sets off the alarm, windows open 500. Several people in there coughing ( sounded very chesty/phelgmy and chairs were very close compared to the other two centres. I know some people get a cough with treatment but must consider if they are spreading to others) Especially people like me with asthma and heart condition on top of cancer and can easily become very unwell with just a cold.
PICC removed and no bleeding so will have my arm back in 24hours yay!
@copperycat Thank you for thinking of me. I will be thinking of you on the 21st and 28th, I think there is a few of you due for chemo that day. Hope you all are not to bad with side effects on Christmas Day.
Hi everyone.
Copperycat, interesting you’re still having racing heart too. My Fitbit showed my heart went up to 127 yesterday and I was just sitting putting some make up on and I couldn’t even feel my heart racing. By contrast, my palpitations/flutterings are ongoing when lying down. So it was another day in hosp yesterday. Echo on Monday. Really hope all is OK and I can still have remaining EC as I’ve only had one so far.
What was really upsetting yesterday was hearing a poor man, his wife and granddaughter being given terrible news about his prognosis by a very loud and seemingly insensitive consultant right next to me. It really shocked me and I wasn’t even related.
Naughtyboob, well done on last chemo, that’s amazing. Know what you mean re bugs. A lady (visitor) on the ward yesterday was coughing away without a mask.
Daffodil, that’s awful that they were not given that news in privacy how utterly insensitive not only for the family involved but also other patients. That would definitely be getting a complaint to the top of your trust if that were me, I’d not even bother with pals office, straight to the top and if it got ignored, I’d escalate higher. Shi xx
Thanks everyone. Just need to get over the side effects which have lasted longer and more intense over the past few weeks.
Be thinking of you all on the 21 Dec hopefully your side effects won’t affect Christmas Day too much. But remember it’s only one day (even if you’re religious) and it’ll be there next year. Don’t feel pressured to entertain, let others do the work and pamper you, you deserve it. Your bodies have been working hard for weeks and months to try to rid yourself of cancer. Be selfish for once in your life! Take a step back and enjoy what you can.
Hi everyone! Those last couple of weeks been hard… But finally got a breakthrough on Friday.
Latest MRi couldn’t pick up on any signs of cancer!!! Some good news i will greatly take it’s about time. Weekly chemo is the absolute worse as a result of good body behaviour, no chemo this week yeahhh meaning I can have a rest and proper break I went to reformer pilates god it felt so good and am going back tomorrow and will ride my grey muddy beast. My face totally flared up so am sooo glad to have a break its been so painful and itchy. It’s slightly better and my tastes buds are still all over. I don’t really like chocolate anymore but can have eggs again
Looks like everyone is looking forward to Christmas and have a bit of a break.
Back in hospital 2nd and no more cancer talk for a while…p*as cancer , by 29th but will squeeze as muuuch riding as poss, even on boxing day and taking a ride on NY day!
Much love
Ps: am already packed
So thoughtless. But what’s done is done, fingers crossed all fine x
Annemanc 
we understand 
when you will not expect 
don’t give up and keep searching.
and they can’t view in what situation we are , I am staying away from all, and my children have to change them clothes and washing hands immediately they arrive from school, I am afraid too about all possible I’ll of bugs spread in the school. I am also sleeping alone in the room 
but I trying my best, with low immunity, to keep me healthy.
as a result of good body behaviour, no chemo this week yeahhh meaning I can have a rest and proper break 
I went to reformer pilates god it felt so good and am going back tomorrow and will ride my grey muddy beast. My face totally flared up so am sooo glad to have a break its been so painful and itchy. It’s slightly better and my tastes buds are still all over. I don’t really like chocolate anymore but can have eggs again 
