I am still very impressed Frazzled, working from home or not xx
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Coppery, I agree with naughtyboobās assessment of that individual
xxx
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Thank you @naughty_boob , definitely agree heās an arse! I was made to feel bad for even asking . But I have every right to ask why and expect a reasonable answer 
sorry youāre having radio SEās. Hope they donāt give too much trouble and they disappear soon xx
So sorry to hear youāve been in hospital and have Covid @daffodil1 . Hopefully youāre home now and you make a speedy recovery 
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Hi all
Just wondering, has anyone else had COVID whilst on chemo? I feel so much worse than last time I had covid-19. This time I cannot get warm, goosebumps and aches, shivery and headache. Feels like flu.
Hope youāre all going on OK
xxxx
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@daffodil1 I havenāt had it whilst on chemo but had it just before chemo in September last year. Was second time of having covid and was definitely worse than previous time and felt exactly like having flu. I hope you feel better soon.
Sorry you have Covid. Iām assuming you feel worse as you are immune suppressed. Did the doctors offer anti virals? During the main few years of the pandemic they were giving them to the most vulnerable.
I havenāt caught it as I tend to mask in busy areas. I get unwell enough being asthmatic without bc.
Hope you feel better soon 
Thanks naughtyboob, pretty sure my son passed this to me, heās at secondary school where bugs are rife.
No offer of antivirals but weirdly Iām on strong antibiotics as a precaution for my chest. Doxycycline which makes me feel very sick. Honestly, just after chemo nausea was passing!!!
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Thank you frazzled, useful to know that. It was good you got it prior to the start of chemo I guess. Iām not sure whether I will be able to/should have radiotherapy on Wednesday now. Think itās likely to be postponedā¦
Thanks coppery, and good luck for you scan on Tuesday too xxx
@frazzledmcsazza glad you connected w your manager eventually. Hopefully that continues!
@naughty_boob how are you feeling after your injection now?
@copperycat anymore news from MRI or oncologist?
Mine apologies when I saw him face to face on Friday and I reminded him not to pack his bags next time he speaks to me in the phone 
@plum1 how is the 
? 
@daffodil1 sorry to hear you have COVID 
thatās how I felt when I had my jab and 3 y ago when we didnāt know what it was. Wiped me out in 4 days then was ok. But when I got it last year, I ended w some long term COVID, most breathing issues, and sinusitis and COVID insomnia. It went , lungs were clear, sinusitis I did rinse to help inflammation and still do, and insomnia went but obviously cancer /hormonesā¦ Itās back
This week treatment was delayed for me due to low grade fever and rash/allergic reaction to either EC or Pembrolizumab the immunotherapy drug. Mouth thrush or mycosis, take your pick 
Been on 16 mg steroids per day 
now on 12mg per day, mad hippos doseā¦am still itchy but less blotchy. Very bloated though and swollen.
Rested this week, but no pain apart from being tired waking up from itching and not sleeping from steroids. First time on 16mg I was speaking out loud to myself until 2am 
I managed to go to bed reasonably ok yesterday 23.30 and only woke up once a twice. I managed a little ride on my 
to blow cobwebs over and had my first borrow my doggy walk in Friday which was much needed after 2 h at hospital seeing oncologist and waiting for meds as they got prescription wrong! Iāve also registered on dog /cat walking sitting app so hopefully some booking comes through 
Anyway going forward lots of potential/unsettled changes ahead which could well explain my stress/allergic reaction but am not unhappy, quite content that things come to an end. We keep going w treatment next Tuesday onco said. Give it another go. My job ends on 31st, I should have been āfineā to go in but they are going to have to wait till am better to return equipment. I want to go in and say goodbye. My boss is traveling anyway so no big deal.
If body rejects treatment again, theyāll drop EC, I would have had 2 out 4, fine by me, try to keep immunotherapy which is more important from what I gather (every 3 weeks for 6/8 months as planned but w more steroids ) , and will consider bring operation forward.
Anyway I managed not to buy anything crazy of the internet 
please congratulate me!!! however I am treating myself to a little last minute trip to Cirque du soleil on my own in London. Sunday I would usually see partner (disappointed not heard from him) and didnāt fancy mopping around, riding again might have tired me, so since am free as bird and wanted to see the show for a while, am going 
Nothing or no one to hold me back now Iāll wear a mask I think though.
Have a lovely weekend ladies xxx
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You have an up and down week. At least the doctor apologised to you!
Iām glad you feel content with your decision, itās a shame you havenāt heard anything from him, no matter what has happened you are still going through treatment and I would have thought he would at least check up on you.
Enjoy Cirque de Soleil, I thinking masking is a wise decision with so many bugs about.
I feel like Iāve got the flu after my Herceptin, achy all over with a dodgy bum 
.Hopefully just a few days.
Take care
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You would think and you took the words out of my mouth, and was about to write it and donāt want to paint him as a bad guy, cause heās not, however especially he wouldnāt know treatment was postponed, you would think out of kindness heād check in and drop a text. That would show maturity. Confirms sadly my right decision to move forward in life. You, I canāt stand still. Goes to show and reinforce my thinking that heās got some growth to do. He also now got to pick up his stuff. Iāll go through treatment next week, will be a shock after a month off 
heāll unknowingly have another week to make contact . Am not storage box so if he doesnāt manifest, Iāll message and then āoustā out. Heās got to pick up his shit!!
Feel better w the injection and bum bum. Heard herceptin take a few weeks to settle in body. A friend husband had a breast cancer and he had hot flush for a while lost some hair but it came back amd hot flushes disappeared eventually xx
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Hi Pinklili
Well done on making a decision with your partner.
Did you get to the theatre and have fun?
When is your next treatment due? Hope you manage without the allergic reaction. Must be tricky being on so many steroids tooā¦
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Also a good luck message to annemanc as I think you were possibly having your op today? Hope all goes well. Let us know how youāre doing if you get chance
xxx
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Hi @annemanc Good luck with the operation today.
Take the painkillers they prescribe, if co codamol, you may need senna or lactulose as they can block you up. Do you exercises they give you, donāt get frustrated and rush them, to as much as your are able. The exercises will help with radiotherapy.
Thinking of you
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Hi naughtyboob
That doesnāt sound pleasant after herceptin either, are those effects meant to get better as your body adjusts?
Thank you @daffodil1 And to you too @naughty_boob . I mixed up my dates (chemo brain!) itās actually tomorrow.
Will take your advice and have all the drugs (and the Senna!) and will do my exercises. Will let you know how I get on. Thanks so much for checking in, it means a lot.
Hope youāre all ok. Am getting so tired of all this cancer stuff nowā¦ it does drag on doesnāt it? 
But am trying to stay positive, Iāll be one step closer to the end of treatment. Xxxxx
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Hi @daffodil1
The flu feeling is supposed to be within a few hours of the treatment, not sure if itās radiotherapy or Letrozole side affects either. I looked through the paperwork on side effects and some are similar!
Hoping to feel a bit better tomorrow but itās 2 weeks since last day of radiotherapy so who knows what Iāll be met with when I wake it or during the night as Iām not sleeping well.
How are you doing?
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Good luck @annemanc for your op tomorrow . All good advice from the ladies above! Also take all offers of help and be kind to yourself
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