Glad you’re having a good holiday @pinklilli3s
I’ve got really into exercise in last few months, very unlike me as before I got cancer I wasn’t that bothered. Now I love it! Am into running and have signed up to do a 10k at the end of June. Been doing weights and spinning classes too. Am convinced it’s helping with the hot flushes and aches and pains. After the battering my body has taken over the past year it’s nice to give it a treat.
Hope you’re all doing ok xxxx
Oh wow good on you! I’ve always liked weights as it gave me instead results and I have gone back into it slowly - trigger finger have appeared on other fingers (prematurely aged probably due to steroids doctor think).
Anyway 10k is awesome! Well done you for singing up to this run. Wishing you all the best in your recovery. Am flying back tomorrow evening but already thinking about coming back here!! 
Xxxx
Aww enjoy your last evening in sunny Cyprus!
thanks for the good luck with the 10k. I was struggling to run for 60 seconds back in January so feeling fitter is def making me feel more upbeat and positive about stuff xxx
@pinklilli3s Have a wonderful last night on holiday. So lovely to meet people who get where you are and what’s happened.
I had a moment with the plumber… not that way… he’s also had cancer and doesn’t share with all his clients.
@annemanc Well done for signing up for the 10k, I could probably walk it but not run. Having a well earned break in sunny Northumberland. Lots of walking, food, dogs and castles. I have also started using weight and stretching bands, not anywhere near as heavy as I used to do but it’s some progress. I have some chest wall/pectoral muscle pain and swelling. Waiting on lymphoedema referral, fingers crossed it’s not but breast care nurse could say for definite. Hope you got a good set on tunes to listen to on Spotify, I still listen to the lists you created.
Hope everyone else is good 
Hope you’ve had a fab break in Northumberland @naughty_boob 
. You picked a good week for sunshine.
I love doing playlists, glad you liked it. I’ll do us another one for the summer! Let me know of any tracks you fancy. 
Am having party next month with friends and family to say thanks to them all. My last chemo was on winter solstice, so having it on the Saturday after summer solstice to celebrate getting better. My husband and I got married overseas, so I’ve never really had a big party before. I came up with the idea while I was wired on dexamethasone after my last chemo! I’ll do a toast to all of you amazing women who helped me get through. Xxxx
Hi everyone,
Sorry for not posting for a while. Life just seems busy sometimes. Partly cancer stuff (appointments) and partly like getting a bit closer to normal. My hyperthyroid meds have very very slowly been getting me better. I can’t measure it in days but week on week there is an improvement. I can walk around again, get out of a chair a bit more easily and drive but can’t really get very far or exert myself very much. But hoping things will continue to get better.
I start radiotherapy next Thursday for two weeks so that will be another big hurdle out the way. I think I have had my last herceptin as I am on a trial that is half the treatments. Still torn about whether this is the right decision but my peripheral neuropathy has been getting worse so it probably is right decision.
Really lovely to hear about everyone’s progress in terms of treatment, holidays and exercise. Feels like people’s lives are moving towards their own new version of normal which is great.
I hope everyone is doing okay and has enjoyed some early summer sun. I have been gardening most weekends trying to get my back garden into some kind of shape for summer. Been nice seeing things growing and doing something small for the future.
Lots of love to all. S
Hi
So nice to hear from you and glad that the thyroid medication is working.
I found this about the 9 instead of 18 Herceptin and the results seemed really good. I have also heard on here there is a new trial called HER2 radical.
I’m at 13/18 Herceptin and just had my MUGA scan to check heart function, my ejection fraction from the left ventricle has reduced from 68% to 60%. Normal range is 55-70% so hopefully I will still be in normal range. I think the cardio toxicity is a big reason for having 9 as well as costs for the NHS.
I had a wonderful week away in Northumberland, visited Bamburgh castle and the dog had a lovely run on the massive beach. Also had a trip across the border to St Abbs in Scotland where they filmed a bit of Marvel Avengers End game. We are big movie buffs. Watched the film the other day and it was so lovely to see it on screen, although there was a bit of CGI. I love a superhero film, I had some T-shirts that I wear to all my treatments, the staff during chemo thought it was great.
Still waiting on the lymphoedema referral, 
Be thinking of you during your radiotherapy, make sure you start moisturising now and keep doing it. I had mine in January and the breast care nurse says to do it every day still.
There is a monthly radiotherapy group that you may want to join.
Take care
Hiya, Glad the Northumberland hols went well. It is a lovely part of the world. I didn’t know some Marvel locations were in the UK. Something to look out for on my next trip further afield than the next town! HER2 radical is the trial I am on. The headline is that it is the same outcome as 18 cycles but the original journal seem to say it might be slightly (<1% difference) less effective. But it is the numb fingers which have made me stick with it.
It sounds like your heart is holding up and well within the normal range which is great news. Sorry to hear your other referral is slow. Hopefully you will hear soon.
I’ll take your advice and start moisturising like a good 'un.
@naughty_boob @annemanc @copperycat @daffodil1 @frazzledmcsazza @plum1 @Shi, hopefully all goes well.
I am thinking of you all 
I am back to work from May, days off as I accumulate loads of annual leave from last year, and now I am back full time, and I am happy with that, I felt is time to leave the comfort of the house. I am tired but also happy to be back.
Mammogram came back clear, blood test results all good.
Hopefully you all done the treatment, if not I wish you all the best health and happiness. I am on Zoladex and tamoxifen, tolerating all, a bit rash on my arms( I got antihistamines), and pain on my joints and bones( I take magnesium glicinate) , tired at the second part of the day, hot flushes not to bad mostly on the night.
Take care and big hugs
PS: At the end of August I will run with a few of my colleagues work, to the Pink marathon in Kilkenny Ireland 
I will send you pictures,
I lost 10 kg from my weight, with intermittent fasting, eating only from 12am-6pm, carbohydrates out, my hair grows back🎉
for the pink marathon 
your doing fabulous 
Shi xx
Hi @Camy_Radika
So lovely to hear from you and that you are doing so well. Well done for losing the weight, I’m still struggling. I’ve increased some exercise like walking but feel rough after my Herceptin injections, luckily I have only 2 more to go. I still have some chest pain but I’ve seen a physio who said I have a trapped nerve in my neck and a lymphoedema who said I don’t have that. One of the nurse who does my Herceptin injection said it’s probably radiotherapy and could take up to a year to feel better😔
I find it hard to pick up weights, one shopping bag at a time takes forever. I wanted to get on with some weight training but it’s so sore.
I had my annual mammogram last week and they said it will probably 4 weeks for results due to holidays. A letter in the post if all ok and a phone call if they need to see me. I was warned there could be a call back due to scaring showing on the image which they want to do extra checks on.
I did a Moving Forward course a few weeks ago and eventually met 4 lovely ladies who live more locally and 10 others within 20 miles. It was such a great course, very flexible with lots of time to chat and share our experience. A breast care nurse came to answer our questions in the second week. I would highly recommend it if you haven’t done one already. (Virtual and face to face).
I’m on Letrozole and due another Zometa infusion mid October. I wa shaving so many issues with Letrozole, aches and pains in my joints, hot flushes (loads between 7pm and 7am and some so hot I just couldn’t cool down), my sleep was horrendous, I tried Sleepio app (free for cancer patients) but it didn’t take into account my medication! I intimate areas were sore and painful. I had been referred to a Menopause Specialist on the NHS but after 4 months waiting I decided to pay privately. I booked on Friday and saw her Monday. I was prescribed Fezolinetant/Veoza on a private prescription to combat hot flushes, within 4 days the severity had reduced and now 6 weeks on the frequency also. She also asked the GP to prescribe lowest dose vaginal oestrogen in the form of Imvaggis (internal) and Blissel (external). Eventually got them from GP who wouldn’t prescribe without a specialist letter. I feel so much better now.
I did a post
I’m also having some more counselling with a local lady who I spoke to during Covid. She’s so lovely, I’ve had 2 session so far and feel more positive than I did with all the session with the previous counsellor.
I had my leaving assembly at work and officially finish on the 31 August. (school year end). It was lovely to see al the children and staff, two others also took redundancy and early retirement, we’ll be meeting for coffee! When I sat in the hall, I thought I miss this then realised I couldn’t remember hardly anyone’s name, how on earth could I teach. I regularly volunteer at the local foodbank and on this forum which keeps me busy. I enjoy giving back and lucky to be in a situation where maybe I don’t have to work. In a year or so I may decide I want to work again but probably not in a school.
Off for a few days in Shropshire soon so something to look forward to.
I hope everyone is doing well.
Love to you all
I’m glad to hear from you, I understand you’ve been through a lot of hard days. I hope that soon you feel strong again and forget about everything.
Like you going back to school was strange as the staff were very welcoming and made me feel welcome, the children in my group were very happy to see me back even the parents even if they didn’t know what happened to me.
Now I work in preschool with the 2-3 year old group. I realized that I fit in better than school students. Try to see what suits you, we are not the same person who worked before, we tire very easily and we are emotionally sensitive.
We have to rediscover our body and understand what needs we have.The oncologist told me that I will always have bone and joint pains, they don’t go away no matter what I take, also the hot flashes, we’ll just get tolerate it.
I’m glad you meet new people and have a chat, I was lonely and didn’t want to see anyone around me😞But now I’m trying to integrate and socialise more.
I would have been happy if we were close to see each other and share our stories, but we never know Maybe someday you visit Ireland and see you 
@Shi the marathon will take a place on 1 of September, I received the email confirmation. I will send you pictures:heart_eyes:
. Hopefully you are doing well.
All my best dear pinky friends
Hey am good, lots happened and thanks for checking in. How are you? Been on holiday, riding, family, amazing.
Am good, but now really under the weather post immuno 3 weeks in , I’ve lost my voice, summer cold or whatever (not my spirit though lol) and whilst I still have some immunotherapy left, maybe 1 or 2, I think my body is done w it all and I will stop. It’s coming up to the one year anniversary of finding out and I want to stop all this and move one…focus on my next riding holiday and get my energy back.
The dog business is doing ok, I got scammed for a fence tradesman so that out my inspection wbthe the council sadly on hold -fencing is a priority and safety requirements.
I am teaching weekly at local yard and gosh the amount of drama is unbelievable.
Get your popcorn 
… Read only if you have time to spare haha
All clients are graded and this kid today has been over graded for some reason and couldn’t follow the lesson. Cut a long story short, it wasn’t safe, she couldn’t control the horse, I gave her instructions she didn’t follow, parents interjected in the lesson, then screamed in the lesson at me, called me patronising and the kid exited the lesson. There’s more to it but that’s the jist and that’s a LOT and bad enough! Parents are theirs and their kids worst enemy some times.
Anyway we all have a group chat where you report anything major but I wasn’t going in the details of it all on there, just said she was over graded and would benefit from more private lessons.
Thennn (get more popcorn!
) some b* atch is an instructor and belittled me in the group chat. She had nothing nice to say, thought she saw or heard what happened, or bit of it but bits of it does make the story, she didn’t mind her own business and felt the need to also message me privately at 9.30pm this evening to tell me off, how I was wrong and blah blah blah, and apparently there was a sreaming fit on the yard.
Am like b* tch you weren’t there, you stir sh*t, you weren’t in my lesson, don’t know what happened, and the best thing you can do right now dude, is at at least asked questions and support a fellow instructor not dig them in the ground! If anything is to be discussed it will be w the yard manager. I felt I had to remind her to stay in her lane. I’ll keep you posted if I am allowed back to teach next Sunday dam the horse world is rotten by entitled little people with misplaced big ego and low vag energy 
Great to know you are doing well and feeling the same as me that you’ve had so much treatment you need it over. At least it’s not too long now.
Sorry to hear about your horse teaching issues, yes parents can be the worst. Some only see one side and think their child is ‘special’ ‘gifted’ etc when they lack concentration, commitment etc. luckily within school I didn’t have to deal with the parents watching the lessons. You would think the stables have a policy that parents can watch but should not get involved while the lesson is on. All the staff should have your back and no belittle you.
Glad the dog business is doing well. Not missing HR then?
Take care
Funnily enough this lady apologised this morning.
I do miss HR, a bit, the nice side of HR, helping people and obviously the ££, but also being in a team. I do not miss, the corporate rigidity, the back to back meetings and the “no we can’t do this”. I am still in contact with my previous HR boss.
I think this month is going to be quiet -she hopes- and will allow me to regroup, reset (once more!) and get this garden fencing job done so I can get the dog licence and start earning money and have more than one dog boarding at a time. I also need to train for this next riding holiday. People are like but you don’t have to prove anything to anyone. Baaabe … Am doing this for me! Not for anyone else and I’ve always done this. People and their opinions sometimes, I just wish they stayed quiet
You took redundancy, how you enjoying retirement? I see you volunteer which is great. Any holiday planned? Big hugs xx
pinklilli that’s a shame to hear, you were trying to protect the rider if things are beyond their capabilities it is not safe for both them and the horse. Hopefully the parent will see that there are more hours required of lessons to ensure competency before progressing to a level their capabilities can handle. Money can’t buy talent and natural ability, it can buy lessons to teach it and even then that can differ from student to student Shi xx
look forward to seeing that, think your amazing doing that you should look at tge moonwalk in London next may too there are a few of us looking into it for next year already Shi xx
