Haven’t had a pension money yet! Not even sure when I’ll get it, probably end of September as I officially finish 31 August.
As I’m still having Herceptin, I feel that I’m still in treatment. I had an injection last Thursday and feel very achy, tired, need to rest more after a walk and even falling asleep mid afternoon. I could suggest I’m just resting my eyes but I’m really tired and do take a nap. I’ve learnt to listen to my body. I’m fatigued most of the time and struggle to get out of bed before 8am, some days it’s after 9am. I wouldn’t be able to work as I had to be in by 8am.
Hoping with my new medication my sleep will improve and hopefully the fatigue will reduce. I remember the Moving Forward course mention cancer related fatigue and that everyone reacts differently.
We are away for a short break soon and hoping to book something end of September after my Herceptin finishes, not sure where yet.
Hope you get your fencing sorted soon and you can enjoy more dogs. Having our dog has been great, he snuggles when I feel rotten and we play when I’m well. He seems to know what I need.
The menopause and cancer charity are doing an event in September at Coworth hotel and spa in September, I looked where it is and it’s not so far from Windsor Great Park (I think you mentioned you’d ridden your horses there) so it made me think of you. Unfortunately for me I would have just had my last Herceptin and don’t think I could drive the 2 hours.
What date is it in September? I have a small spare room (one single sofa bed) but you’re welcome to stay at mine or we could simply meet up for a coffee, if you feel like it. Let me know. I have a holiday mid September xx
Hi Pinky girls, hopefully you are all doing well.
I am feeling well, as I told you I am back to work full time, from May, not bad at all, tired at the end of the week.
Is anyone else on tamoxifen and Zoladex injection? How you feeling about hot flushes and bones pain?
I went on yesterday in Kilkenny, Ireland, for fundraising breast cancer Very Pink Run, we did 4km. Lovely day, and great archives.
Hugs to all and best health wishes
Lovely photos ! Congratulations on doing the 4k. Good to see you are getting through this next phase despite the side effects of the meds
I’m doing ok. Have good days and bad days , mostly good . But anxiety rears its horrible head unexpectedly. I did a moving forward course, which was really helpful. And met some lovely women in similar circumstances and we are going to meet up next month.
I still have back pain but my MRI isn’t showing anything has changed with my tumour. They are going to review it again in a years time . In the meantime I have gone privately to see a pain specialist who has recommended a host of things to try , including physio and some meds to help block the pain. All working so far
Hope everyone is ok. This after phase is so tricky. I didn’t expect it to be this hard. Totally lost my confidence . Time will help I’m sure. I have three counselling sessions left so I’ll make good use of them .
Hi dear, I am sorry for you, I can understand you how you feel.
I had been on the similar mood and is horrible to have no power to stay alive, mental or physical.
Ask your doctor if you are allowed to take Magnesium bysglicinate, I start on the same time with tamoxifen and Zoladex and I can say that everything changed, I am happy, I am full of life, I want to be more active, and my feelings to, I am very optimistic.
Hopefully your group meeting will be beneficial for you, sharing our feelings with someone else is good for us.
Please keep your head up and don’t give up.
I am looking at the back and I am impressed how better I am after all.
Big hug take care
Hello girls
How everyone is doing?
Hopefully all of you are getting better and back to normal life.
Let me know how you feel @naughty_boob , @Louise07@annemanc@copperycat@daffodil1@frazzledmcsazza@pinklilli3s@plum1@Shi
I got COVID, I am home from yesterday, looks as a mild flu, hopefully will not get worse, a bit coughing and headache, and muscle pain, sore throat and sweating a lot.
Hopefully you are all good.
All my best wishes
Lovely to hear from you . So sorry you’ve got Covid, hope you recover swiftly! It can be nasty but fingers crossed it’s not too bad
I’ve been ok. I’ve had a year end check by my breast consultant. I had to insist because my health board has changed the policy and doesn’t do them anymore! Glad I did because he has said I need an operation on my mastectomy side to remove my chronic seroma and a layer of fluid that lies right across my scar. So I’m not flat, it’s like I have a small boob! He says it needs to be removed so that it makes it easier to spot a recurrence which might grow behind it. So I have that coming up .
I’ve been on the Moving Forward course which was useful , and I met some really nice women . We are having our first lunch date this coming weekend. Then I’m
Off to Kos on holiday . Looking forward to doing lots of swimming .
Hope everyone is doing ok. I’ll be honest and admit I’ve found this bit after treatment quite hard. But I’m working on it , and things are definitely getting better xx
Hi @Camy_Radika so nice to hear from you but sorry you have Covid. There seems a lots around. I’m having my booster this weekend with my annual flu jab (been having since I was 18 and diagnosed with asthma). A family member in their 20s had it 6 weeks ago has asthma and they were floored for 5/6 weeks, returning to work on reduced hours. Some people seem to say it’s just a cold others it’s really bad with long term issues. I hope you get the milder dose and recover quickly. Are you still running?
@copperycat Glad you enjoyed the Moving Forward course and organising a lunch soon. I met some lovely ladies on mine, some met up to do a Look Good Feel Better session at Maggie’s a month ago and nobody has been on the WhatsApp group since. I will have to give them a nudge and arrange a meet up. I get what you say about finding it a bit hard, it can’t be easy knowing you need more surgery. I finished Herceptin mid September but I’m back for a Zolendronic acid/Zometa infusion in 2 weeks, at least that’s only 6 monthly. I had a panic as a filling fell out and my NHS dentist can’t see me until February and suggested I but temporary filling from Boots. What has happened to NHS dental services? They were quite happy for me to pay private but I’ve paid my taxes and national insurance for years so why shouldn’t I have it on the NHS. The receptionist said most train in the NHS then go private so something needs to be done that they have to work for 5/10 years in the NHS before going private. Hopefully something will,be done by the new government.
I’m just back from a Nordic Walking course I’m doing at the Penny Brohn centre near Bristol. It works over 90% of your body compared to 40% with just walking. Only a small group and it’s fun. I’m also enjoying yoga and Tai Chi. Even though I have taken redundancy I seem to be kept busy with the dog, gardening, jobs around the house, volunteering on here and at a foodbank. I’m still quite fatigued.
How’s everyone doing? It’s been a while
Since I posted. Just getting on with things. I’ve been prescribed Pregabalin for my spine which is helping with the pain. And I have a physio to help with shoulder pain, caused by holding myself incorrectly post mastectomy. Letrozole side effects manageable. Have mostly good days. Then totally unexpected, ive had a Dexa scan and it’s come back saying I have Osteopenia bordering osteoporosis! Such a shock as only been on Letrozole since February this year. Onco referring me to my GP and I can’t get an appointment for a month. So annoyed he has washed his hands of me . Says he doesn’t have the knowledge or capacity to treat me .
Anyone else had their Dexa scan ? Hope it was good news . I’m going privately to see a rheumatologist. But can’t see them for a month either
xx
