September 2024 chemo starters

Oh well I was sick as a dog with morning sickness so that makes sense ! Oh the joy that keeps on giving :joy:

Iā€™ve been given a constipation tip by a friend who had BC 3 1/2 yrs ago grind 2 tablespoons of linseed in a coffee grinder and add to 300ml of water and drink straight away. Do not leave as it goes gloopy. The linseed holds the water and dislodges and pushes blockages through.

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Me too, allergy to dressings. My skin blisters up itā€™s awful and itchy so weā€™ve switched to a different one and all good.

But now Iā€™ve got to go into hospital tomorrow as Iā€™m having so much pain with my shoulder and back they want to do an xray and tests. They donā€™t think itā€™s a clot but have to check but theyā€™re concerned about my picc line as I canā€™t lift my arm hardly any, itā€™s just like spaghetti there is NO strength. So will see what they say/do tomorrow.

I wasnā€™t offered a port so I canā€™t help on that score.

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Hi, i just wanted to say that you are doing so well.

People keep telling me I am so strong - I donā€™t feel strong. Iā€™m on day 8 of cycle 1 and feel I am getting worse not better. I know that i am fortunate as iā€™ve not felt too bad so far, a bit nauseous and slight bowel issues and heartburn so i havenā€™t really ventured far from home. However, now the chemo acne has started on my face and iā€™m really conscious of it and iā€™m waking in the night and struggling to get back to sleep (hence my post at this time)! Does anyone else struggle with sleeping?

Iā€™ve also said that iā€™ll go back to work next week (head teacher of a primary school) but starting to regret that. The thoughts of work are already filling my mind and i know that i need to focus on my recovery but i am worried about how long my journey will be (chemo, operation then radiotherapy)

Sorry for the negative rambling post - i yhink i have poured out what i have been holding in. Hopefully i will get back to sleep and tomorrow will be a brighter day.

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Donā€™t apologise, itā€™s what this forum is for. Weā€™ll support you. We all have a moan no biggy and quite honestly if you canā€™t do it here wellā€¦ā€¦ā€¦.

Work - say youā€™ve changed your mind. At this moment you are number one priority. Theyā€™ll cope and when you go back fitting fit and ready to rock and roll theyā€™ll be so happy.

Umm I donā€™t like the youā€™re strong comment I also donā€™t like the ā€œyouā€™ve got thisā€ comment either I cannot relate to either and like you I donā€™t feel strong Iā€™m just rolling with the bloody punches and youā€™ve got this makes me want to scream what cancer???

I havenā€™t even heard of chemo acne and Iā€™m not sure what you would use. Maybe look at a company called Fierce Nature all their products use tallow (if youā€™re veggie/vegan then itā€™s a no) but itā€™s suppose to really work. Because itā€™s animal fat (I know it sounds gross but it isnā€™t) your body wonā€™t react to it as itā€™s all natural. Maybe take a look and see.

Sleeping I havenā€™t had a full nights sleep since my first round. Wake up 1 or 2 times every night but thatā€™s predominantly down to something going on with my shoulder (Iā€™m off to hospital today for X-rays tests etc) maybe ask your oncologist? I did think I might start taking night nurse as that always works. I donā€™t know how many rounds youā€™ve had but having a Kip in the day is always good too.

Today will be marvellous apart from the weather. Xxx

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I am up and down with sleep, some nights I sleep like a baby, other nights Iā€™m lucky if I get three hours. Tiredness just makes everything feel worse, doesnā€™t it.

Iā€™m in a similar position work-wise, after my first cycle I thought, oh I feel fine, I may as well do some work from home to keep me from going stir crazy. This cycleā€¦itā€™s 8 days since my second EC and today is the first day Iā€™ve felt almost myself. Thereā€™s no way I could have worked over the past week. Iā€™ve spoken to my boss and weā€™ve agreed to put it on the back burner for now whilst we see how things progress over the next cycle. I know that may not be possible for you given your role but hopefully you can come up with a plan that works for you?

Hope you managed some rest xx

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Hopefully @warrior1 is fast asleep and cosy toasting. :crossed_fingers:

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If one more person tells me ā€˜you got thisā€™ we donā€™t need to worry about the cancer cos my head is gonna pop off :woman_facepalming:

Other cancer cronies are allowed to say it though :rofl:

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This is a nightmare! Iā€™m exactly the same - I had an unplanned hospital stay when they needed blood - four different people tried before they had to call the vascular access team who found a vein on ultrasound! Thank the Lord Iā€™m having a PICC line for my chemo!! Hope youā€™re ok xx

Funny how such simple words can make you want to punch someone!!! And, positive thinking!!! Keep busy!!! Be kind to yourself!!! Oh F**k off!!! :rofl::rofl::rofl: xxx

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:rofl::rofl::rofl: love it. A kindred spirit.

Oh my god I know. It just isnā€™t helpful is it. Iā€™m starting to wonder whether I should educate and explain how their words impact me, what do you think?

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Iā€™ve talked about language to my family and close friends to be honest. I really struggle with the whole ā€˜youā€™re so brave and strongā€™ thing. Iā€™m not brave or strong, Iā€™m just doing as Iā€™m told. I mean I had a total paddy yesterday and said thatā€™s it! Iā€™m not doing it any more! Itā€™s NOT FAIR!!! Hardly the actions of a heroine :rofl:

Everyone was great about it, they totally got where I was coming from. And I get that itā€™s hard for family and friends to know what to say. I think the worst phrase throughout all of this for me has been ā€˜youā€™ll be fineā€™. It irritates the bajeebas out of me :grimacing:

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Morning all. So day four from cycle one and feeling like I have been run over by a bus
I got in an Epsom salt bath and then someone asked if that was allowed!
Anyone know the answer? Itā€™s too late now as have already been in the bath but just in case I need to avoid it moving forward :see_no_evil:

Thank you @nicnac17 and @sharlou. I helps so much to know i am not alone. I managed to stay in bed and so typically when i needed to get up, I had nodded back to sleep so then had to drag myself out of bed :rofl:.
Iā€™ve contacted my boss to reconsider my return.

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Hi @galdiolus, I hope you start to feel brighter soon. I havenā€™t used epsom salts in the bath but if you search it on the forum, lots of other have posted about using them. If you are unsure, give your bcn a ring, they will know.

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Iā€™ve not tried epsom salts before, are they good?

@sharlou they have eased my aches this morning but could have just also been the warm bath :eyes:

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Oh I think Iā€™ll get some, worth a try, thank you! :heavy_heart_exclamation:

Iā€™ve been using Epsomā€™s for years - great for aches and pains. Just realised I have to start injections tonight . Eeeek. Not looking forward to that . But positive is I slept all night last night. :pray:

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