Aw sorry it was tough on you but glad the third one is ticked off! I used a surgical cap, but the nurses at the unit sorted that for me. Maybe some gauze dressing would work? I still can’t think of the cold cap without gagging, SO weird 
All glamorous people should be banned immediately! My sister is coming over from Newcastle on Saturday, she is one of these said glamorous types. I’ve promised I’ll go out for food with her but I’ll need to find a corner where I can hide from the public eye 
Someone’s just sent me a newspaper article about the use of goat placenta to prevent hair loss for chemo patients instead of cold capping. 
I don’t think it will be rolled out any time soon which might be a good thing.
I’m feeling like I don’t want to start chemo again after missing 1. I said won’t it keep happening ie. Have chemo neuts go down and chemo is cancelled. I was then advised I will have pegfilgastrim on Saturday and the nurse will come to do that. I said I didn’t think they worked on Saturday but they offered as a 1 off! I’ve had alot going on as my parents house was supposed to complete and exchange on Friday but didn’t until late Monday due to funds not arriving! Also the grant of probate has arrived for my Dad so we’ve asked the solicitor to deal with everything now rather than me. My bro lives in Australia and my Mum is in a home with mixed dementia aged 92. Dad was 91 when he died.
I’m sure I’ll be fine when back in the routinue. Also I’m still not happy re a full clearance when not in lymph nodes. Level 1 needs removing to get clear margins. I have arranged to speak to an oncologist at Bristol on Teams as mine said it’s in your lymphatic system so you need a clearance. I’m not sure if I should speak to another surgeon though. How have people found having a full clearance?
@Linda_Corinne I had a full clearance & SMX on my left side in July, it was very painful to begin with but having done the physio exercises fairly regularly the side it’s on is more or less back to normal (possibly because the PICC is on the other side so I’ve had to revert to more or less normal usage on my left side!). I have had one seroma type complication which they drained. Clearly there is ongoing risk so I don’t want to speak too soon but that is my experience of it so far
I had a full clearance on left side but unlike you there was proven and visible HER2+ in the lymph nodes. My left breast is still heavy and pinker than it ought to be and I have a rock hard lump under my armpit that will have to be dealt with. I’ve currently got six weekly appointments with the lymphoedema nurses for “taping” starting in December to try to get the lymph fluid moving. In the meantime it’s no big deal and I can live with it. All these decisions are a gamble as far as I can see. You can gamble on having treatment that might do you harm or you can gamble on it not coming back again with no treatment. So far I’ve gambled on the treatment and I’m doing OK.
It’s only as that area is small and she may not be able to remove them if it came back or it may be harder. I feel like Im damaging more than is needed as it’s not broken. I also wonder what another surgeon’s opinion on it would be. I may get a 2nd opinion from a surgoen like I did last time. She also said if it bleeds alot I would need a drain. I have read the Marsden don’t use drains where I had my op last time. I didn’t have a drain and I had a lift done on the right then on the left 7 months later. He told me there was alot of scar tissue where I had 2 sentinel lymph nodes removed. Of course they may find cancer and then it would be different although I have read if in 1 or 2 nodes and its early cancer then they leave them now.
Apparently they’re embedded in a layer of fat that in my imagination looks like tripe. So they don’t pull them out one by one like a string of sausages. They cut out the layer of fat.
Sorry about the unappetising food references.
I didn’t have drains.
Yes that sounds right as I saw some being removed. They arn’t visible and can just be a dot sometimes so they wouldn’t know how many you have as I said I wish I’d asked how many I had.
Perhaps there are small one but mine were visible on mammogram and ultrasound. One was so big he could feel it.
Www.coldcap.com is the Paxman website for users. You should be offered gauze or a surgical cap to cover any bald patches to protect your scalp from the cold cap.
Please ask for it, it will improve your chances of continuing and improve re growth. 
Galdiolus thinking of you and hope the scan went okay - it is unnerving waiting for results that are so important.
Sunshine and Unicorns hope they will sort some scalp protection for you asap ! - sounds bad. I share cold-cap dispise. I drank lots of hot Roibush tea first 15 minutes and listened to my favourite music on headphones 
but still struggled with the pain, induced headache and cold. Despite taking two paracetamols half an hour before. The third one is done for you now and I had the second done now…
And thanks for sharing your thoughts Sharlou and sunsh/unicorns and feelings about glamorous people. I feel to it can be a bit difficult to watch and cope with at the moment - the same goes for me for some people who seem to expect us to be super- positive all the time and strong, and seem disappointed when one feels sometimes just sad, bruised, fed up and overwhelmed with the whole c diagnosis shock - and don’t understand that tbis is a battle and trauma too. I try to manage emotions as well as possible and not to worry anyone close to much and keep string, but that can be tough on some days when feelings of sadness compete with our determination, hopes and strength.
And all those feelings should be ok, and acceptable, as we are going through so much rough and tough and trauma, with hair shedding and kind of semi poisoning our bodies for the greater good.
But I feel we will all stay beautiful inside and out and will get through this. To ring that big bell !
I have now with a heavy heart made an appointment for a wig fitting on Friday and that will be a bit emotional. The place is in a nice marina on the way to Sutton Coldfield, so will try to have a coffee and noce Italian cake outdoors as avoiding the indoors and socialising after cycle 1 bad neutropenia hospital experience. Will be thinking of you all and it is so good to be in touch and together here. Much love, rose 
xx
Do you have over the ear headphones and just stick them over the top for the cold cap @rosegarden1 ? I only have in ear ones & they definitely don’t work with a cold cap but might invest in some over the ear ones!
The - feeling so far from glamorous - thing is really getting to me, I’m struggling with being on any form of social media anymore. I think @sharlou you said something like this previously but my husband went out out with the lads Saturday night (a rareity) & my mind went all over the place, at one point I was tracking him on findmyiphone to see where he was 
Good luck with your wig fitting @rosegarden1 I finally found one I love last week but it’s £370!!! My voucher would take it down to £220 but it’s still a lot more than I wanted to spend!
Would anyone mind sharing what their haemoglobin levels are? Mine have gone down to 87 this week after being on an extremely heavy period (due to blood thinners). I’ll be going on Zoladex in 2 x weeks time to switch my ovaries off but in the meantime a) wondering if anyone has any tips other than the usual to bring myself up from being pretty anaemic and b) how bad 87 is comparatively speaking?
Because I know chemo has an affect on this too.
I’m getting paranoid because the words blood transfusion have been mentioned a couple times now (im not there yet but I don’t think I can go much lower)
Or if anyone in the know can enlighten me any more on what this all means and if anyone else has suffered with anaemia
@rosegarden1 thank you. Yes good news on the scan front, the area has shrunk from 7cm to 3cm in two cycles which is brilliant. He said he couldn’t measure the actual tumour something to do with calcium but he was very positive about how much the area that was affected had shrunk by so I am very relieved 
Thanks everybody for all of your positive thoughts and well wishes 