Ooh paulS I do love Turkish food! The link is great, thankyou, I’ll be making some courgette noodles with aubergines for Friday dinner!
Glad you’re feeling positive and just want to get it done, it’s the awful hanging about that really doesn’t help!!
I’m wide awake, but got a good 5 hours so could be worse, day 3 and mouth is getting slightly metallic, but lime and water has been nice this morning, off for a look around car yards for daughters first ride,?, the most terrifying bit of them growing up, in my book anyway, make it stop, there was nothing wrong with that trike she had at 3 ?, don’t tell but I’m secretly hoping she fails the theory for about 5 years, ?, naughty mum ? xxxx
Hope you all have a great day ladies, with your Percy’s buns, swede and carrot, new recipes and beetroot fish and vege, marmite on toast for me ?xxxx ps meant to ask do you count day 1 as the day of chemo, or the first day after? Xxxx
Morning Pam, like you I’ve decided against cold cap, and I did wear flipflops on Monday for my first, but it was a nice day,lol not sure we are going to get many more! My nurse said wear whatever the weather dictates then pop some flip flops in your bag and change when there, it’s quite warm generally in most chemo suites, so that’s what I’m aiming on doing, good luck to you and lots of lovey stuff, I hope you find it as much of a relief to get started as I did xxxxx Sam
Hi Sue456
You may get more answers to your questions if you post on the “surgery” section. I’ve attached a link for you:
forum.breastcancercare.org.uk/t5/Surgery/bd-p/4445
It might also help to talk to one of our Helpline staff. They will be open at 9.00am (9-5 weekdays and 10-2 on Saturdays). The number is 0808 800 6000
Very best wishes
Janet
BCC Moderator
Hi Sue, welcome!! I had redness around the lymph node clearance scar for the first few weeks, dr said normal, and the nurse drained off about 200ml off fluid, totally painless, which was heaven!! It’s come back, on and off but fingers crossed it’s been 4 and a half weeks since op and most seems to have drained away, the exercises are crucial to helping this I feel, unless your redness it very hot, and it does get hot under the armpit area naturally anyway, then go with your gut, you can never phone dr to much!!! Take care and lovey stuff xxxx Sam
hi Pauls thank for your quick reply even though I’ve posted in wrong place. did your gp drain fluid or at hospital. im still wearing passtionkillers lovely arnt they. lol. got chemotherapy and radiotherpy to come . sorry for moaning but I’ve really had enough already. sue.xxx
Hi Sunbeam crew! Feel very proud of myself because made watercress soup and stem ginger biscuits ( no flour or sugar) both turned out really well. Couldn’t take the pizza and bread anymore! Don’t think I slept well as lying so heavy on stomach LOL! PAULS nice to hear you sounding so chipper and having a good experience attending Maggie’s. Felt a bit drained again today but ok. Going into my low immunity days now so let’s see what that brings? Daughters dad having her tonight so no hauling self up and out on school run…yippee! Much love to you all and a huge virtual hug xxxxxx
Hi Jiordi same here have no motivation! Thought I was perking up yesterday. Now daughters dad has said he can’t have her tonight…the new thing is if anyone’s got a cold…LOL I have to laugh…I think he’ll have a cold all bloody winter! Looking forward to getting my revenge by planning some brilliant holidays next year! Cold my arse! Oh well no rest for me! Xxxxxxx
Jordi, i hope you’ve phoned the doc about your mouth. I did and immediately got mouthwash, nyastin and diflam spray.
If this is Thursday this is my day 14. Brain gone AWOL! Nosebleeds stopped and not nearly so achey. They are all away out playing on the boat just now but I got banned as it’s so sunny and ladies you are not allowed in direct sunlight…it’s the first time we’ve had sun here for ages…typical!!!
Everyone seems to be started or getting started with their treatments and I wish you all the best. I looked up the recipes and they look fabby. well done you for putting it up.
Ade xxxx
hi Pauls went to bc unit they said wasn’t enough fluid to drain it. he said it was small hematoma but it would b ok left to sort it self out. also said loads of bruising in she that hasn’t come out yet. also redness was infection gave me antibiotics. suexxx
Evening lovely sunbeams, quite a few SE popping up on here, and one male one eh Rachael ?, bet lots of deep breathing and grinding of teeth was involved!! You seem a very strong, humorous and intelligent lady, and that will get you through this, along with us and your family and friends, and a shed load of drugs are definitely helping ?!! Hope you got your phone sorted, and lady grey your se sound painful but you sound like your on it!! To everyone else get plenty of rest and eat what you fancy, my new pleasure is mash, mixed with chedder and mixed vege, yum 
, simple things eh!!
On a naughty note me and the girls have had an 80’s night booked at Whittlebury Hall for months before all this ‘madness’ began, anyway it’s tomorrow night, and as of this moment I’m going!! Spoke to care line and nurse, both said fine, as long as I take the chemo bag of bumf, my friends are over the moon, I said don’t expect my normal bottle of wine then dance for 8 hours solid ?, I’ll probably have the meal and collapse in the room by 7 lol, but I’ll be there in body if nothing else!! If I disappear for a bit you know I’m sleeping for a week,?, have a lovely, safe weekend girls, good luck paulS, Pam and all others on our journey, early night for me, think I’m gonna need it ?xxxxx Sam
Oh dear I’m still up! PAULS I completely empathise. I work in an environment which is a hot bed for politics and bullying behaviour. I also put up with such crap for a couple of years in my new job which I started 4 years ago. Too much stress. Not worth it. Why not say that it isn’t a good time? You can take control.xxxx The work thing is sooooo hard. I don’t think I can deal with it. I understand the pressure.
Pam…I know you’ve been stressed about the triple negative? Well I had a proper meltdown today. I am also non hormone BC. I had multifocal 3.5 a.nd 1.9. Didn’t know I had the smaller one. I knew that my pathology letter was negative to hormone receptors. My oncologist or surgeon didn’t seem at all concerned and I waited 5 weeks for my surgery. Nobody mentioned Triple Negative. I didn’t even know what it was until I researched today and had proper meltdown!!! I had two lymph nodes involved but I seem to be treated as a standard case on fec-t. Got a lot of questions for oncologist on 22nd Sept but don’t know if I can wait that long. Had a visit to hospital with a scare lump on Tuesday which turned out to be the expander port on my rib!!! Stress city. Think I’m coming down off the drugs which is making me feel emotional I think.
1852 I will try to keep the laughs coming but was a psycho mess today. Loved the tag on the wig! Knooooow scared of the hair loss again…Got to get a grip girl!!!
SAMPS you are not wrong. Made up with him later as although he’s lacking in the childcare dept as ever he managed to talk me down from my highly emotional state on the phone. You go girl at the party…you are GOOD!!!
Well it’s all been a bit emotional and dramatic…ie rollercoaster. Hope everyone’s enjoying their mash and Swede…yum? First day I didn’t want to eat my own body weight today or drink gallons. Can’t wait to meet you all and give you huge hugs XXXXX love Rachael xxxxx
Thanks Pam…have calmed down a bit today…all part of the acceptance process I suppose. Mum and sister coming to visit tomorrow so that will be good. Sleep completely eluded me last night. Was tired but just lay there. Still uncomfortable from surgery. Decided to put on dark glasses for school run and tied on a scarf for ‘practice’. Was nervous but so tired I didn’t care too much. My daughter goes to an inner city school which is a blessing…Nobody cares if I come to school in my Pjs and didn’t bat an eyelid at my scarf. Used to taking to breakfast club so this drop off is new to me. Will try and put a photo on. Think going LANDGIRL forties style might be the way recommended by my breast nurse! Oh well a nice distraction. Very different to the normal me but hey…we’re in the NEW NORMAL zone. Spoke to my sis for ages and got loads of feelings off my chest. Feel a lot better physically Day 10 but have been more emotional than usual. Chemo can affect the ovaries so maybe related? Hope you’re all well. Going to take daughter to cheap unfair after school. Can’t be parsed but I did promise!!! Catch up later peeps xxxxxx
LOL not taking her to an unfair but a FUNFAIR!!!
Ps beauty tip girls…I got a lavera ( organic) lip and cheek gloss which is really amazing for bringing life back into your face even if you haven’t slept all night. And you can eat it and it doesn’t matter. Highly recommended. Xxxx
Hi everyone been for wig trimming today and then came home after trip out and cleaned upstairs must be having a gud day after rubbish day yesterday hope everyone having up day have a good w/end entering low week next week I am really worried about eating out still is his normal or am I being over cautious love to know how you aall cope with this issue x
Hello everyone. Sorry to hear about all the emotional rollarcoasters you are going through but I think we all hit them and something as little as a song on the radio can spark off a complete meltdown.
I was out for the first time in 10 days. Bought a packet of chocolate digestives and ate the lot…boy do I feel sick!!!
Day 15 and hair still Ok’ish. SE’s have mostly disappeared apart from feeling a bit sad now and again.
I’ve tried uploãding pictures but getting nowhere fast. I also tried getting into the site froma different laptop but it wouldn’t let me sign in. Anyone else got that problem?
Ade xxx
Me too Whitfield. But I am determined to be fine! And do lots of nice things over the weekend. My hair is shorter than it has been for 20 years! Ho hum! P xx
The days has arrived and my hair is falling out! We are going to have a head shaving day when it looks obvious. We’re going to film it and have a bit of fun…with a mohican(if that’s how you spell it) which we’ll gel up into a spike. I’ve also got henna for my bald head. No point in being miserable…it is what it is and has to be dealt with.
Day 16 and I would say all the SE’s have mainly gone which is great.
Right girlies upwards and onwards, every day is a step closer to the end of this journey. Sun is shining and the birds are singing.
By the way, my veggie halo slipped big time yesterday and I ate my body weight in chocolate digestives!!!
Ade xxxx
Hello! I’m new. I’m 40. Had my first FEC last Weds 10 Sep following double mastectomy on 6 August. T to follow after 3 FECs.
So, day 4. Taking Domperidone regularly after bad nausea on day 1. Felt good today and had very busy day out with my 3 year old son (I’m separated from husband). Have woken up with heartburn. Taken Gaviscon; looking at other posts, this seems to be ok. Didn’t want to call anyone as it’s not urgent right now.
Other than that, not bad at all so far. What will tomorrow bring though? That’s the daily thought.
Hi to everyone xxxx all my love to those whose first session is Monday. It doesn’t hurt at all during drugs admin and I felt normal throughout. Felt steroids kick in on journey home where I couldn’t shut up talking!!! First few days for me on the steroids were weird but ok. Day 4 I felt more nauseous but kept stomach filled and drank tons due to raging dry mouth. Very much like hangover!!!.Felt so much better by day 8. Felt normal by day 10. However low immunity days for me have brought on sore throat cough and mouth ulcer but no sickness or druggy feeling. I’d rather this as didn’t like the in a bubble spaced out feeling. For me I had a very emotionally low few days day 8 and 9. Cried a shell of a lot as starting to process the enormity of the diagnosis, mastectomy and reconstruction and the future. Dark place. It only lasted a short while but I needed to come off here for a few days as I was obsessing terribly. Spoke to a gorgeous lady who had been through breast cancer two years ago…she’s sort of become my mentor…and she reassured me that it’s healthy to experience the dark days and accept them then move on as otherwise you may build up problems for the future. Like everything it’s a fine balance. Had a wonderful weekend. Been out to a restaurant with sister and mum and for a long walk. I’d say don’t be enclosed with crowds or near anyone sneezing or coughing. Am tied this morning as not sleeping for long enough. Got up in night and used difflam on mouth. Helped. Day 12 and got the telltale scalp itch! Also sore eyes. Going to rest and walk and get a nice takeaway from the street market down my road. Good luck everyone. I will be thinking of you Pam and Paul’s. You will be so relieved to get first one under belt and then just manage your life around it xxxxxxxxxxxx
I think the toilet flush thing is just at beginning when wee is red? Nobody mentioned this to me in hospital but my friend told me. Xxx