Hi all
Left a similar message in the secondary breast cancer area but feel that this is a better place actually to ask the question …
Started taking tamoxifen and bondronat a couple of weeks ago and then a couple of days ago started to come out in a horrendous red rash which spread to cover my entire body and is incredibly itchy. Has anyone else had this? Which pill? What were you put on instead?
I’ve stopped taking both pills while my body settles down again and am taking antihistamines as well to try to ease the itch.
Any similar experiences will be read with interest!
Alison
I’m on tamoxifen since Feb and came out in a rash about a month or so ago …probably not related to the pills but the GP put me on anti-histamines and it cleared after a couple of days. Only suggestion I would offer is once you have got the reaction under control start one pill and see if you react, if not add in the 2nd and see what happens … logically it should show which pill you are reacting to.
Good luck
Hi Alison, I’ve been on both pills, still am on Bondronat, I’ve never had this side effect…maybe it’s something completely unrelated to both treatments.?.? Hope the antihistamines help.
Hi Alison - I was only on tamoxifen for 2 months when my Onc switched me to Arimidex but didn’t have any side effects from the tamoxifen. Arimidex has been awful, severe bone pains, and I stopped it 2-3 months ago. Just got aromasin, so will see how that goes. I haven’t taken bondronat, I am on alendronate for bone loss and thought I was tolerating it well until about 6 weeks ago when I got severe nausea, loss of appetite, weight loss and gastric pain. I had a gastroscopy last week and my gastro thinks the alendronate has caused the oseophagitis so I have stopped it.
Some 6 yrs ago I was prescribed a new drug, azathioprine, for Crohn’s, and within 24 hours had a purple rash all over my body, fever, diarrhea and vomiting at the same time - didn’t know which end of my body to put over the loo! A neighbour came to see me - I was in bed - Saturday afternoon and said if I didn’t ring my GP, she would! I rang the out of hours service, 50 miles away in Truro, but a doctor did come to see me within 2 hours, took one look at me and gave me an anti-nausea shot in my leg and told me to stop the azathioprine immediately. Other Crohn’s patients can tolerate that drug - I couldn’t.
Perhaps you can see your Oncologist and see if he/she can prescribe different meds.
Liz.
Hi all
Thanks for your comments. I’ve seen my doc and we’re still trying to contact my oncologist for his opinion. In the meantime I’ve an appt at the dermatology dept this afternoon to see if they can shed some light on it. Our game plan is to put me back on tamoxifen as soon as the rash has gone down to see what happens and then if that doesn’t set me off again try the bondronat. Don’t you just feel, though, that things are bad enough and that you could do without these added complications!
Alison