My sister had mastectomy, DIEP reconstruction and auxiliary node clearance early February 2026.
6 out of 7 nodes positive for HER2 +
She’s got on really well post surgery. Helped I think because she is fit and healthy apart from this. She had problems with a seroma under her armpit though post surgery.
This was drained a couple of times, then got infected and she had another 5 day stay in hospital.
I think she’s handling everything brilliantly. Her mind races though.
She begins chemotherapy tomorrow and I’ll go with her.
Must admit I’m feeling daunted at the prospect of what she’s going though. Think I seem calm and supportive on the face of it but inside I have the fear some days. The what ifs. I read the surgeons notes on the screen at the last appointment. Then I Googled it when I got home. Not a good idea because my mind told me it is far worse than the doctors are making out. This is likely a lie in my head.
anyway, I’ll be the best support I can possibly be. I am learning so much about the drug names and the medical terminology.
I guess it’s the fear of the unknown and the just not knowing how she’ll be and if she’ll be sick or get infections or will she be one of the lucky patients who I’ve been told can handle chemo unbelievably well.
I’m also learning that every single patient has a different diagnosis. Different starting health, different age and family and job responsibilities and different prognosis and no two journeys are exactly the same.
I’m learning that there is a role as a carer and a support person and I’m up for this.
Onwards we go. All the best to you all.
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Sending you both big hugs
the first chemo is the worst with so much unknown ahead of you. Even walking into the unit is nerve-wracking. Once you are in though you will be swept up by all the nurses, they take such good care of you. My only advice is for your sister to do as she is told haha if they give you a pot of pills to take, take them. When she is given a bag full of pills to continue at home, write on the packets the days and times for her to take them and make sure she does. The antisickness medication and steroids make all the difference. I try not to take medications usually so the thought of all the pills was daunting but I see all this as medicine now. Everything they give her is to treat her 
I have a different brand of cancer but I dont think it makes much difference in regards to chemo. I have had 2x EC so far and its been managable. I’m having dose dense so every 2 weeks. And then I go on to 4x Paclitaxel every 2 weeks. I cant lie, she will feel the effects. For me my first EC felt like a few days of a bad hangover mixed with covid. A very heavy head. And the first day, chemo day, she will unlikely be able to sleep much. Tell her not to fight it and just get up and have a cuppa, put on some tv or read, plenty of time to sleep over the next few days once the steroids where off.
I dont dwell on the side effects too much, I keep seriously hydrated, eat when I can and I made myself go for a small walk every day. I do believe movement is key at flushing your body out. So if she is able to keep her moving.
They might give her a little booklet to fill out to log her side effects, make sure she does because from what I’ve been told there will be a pattern and they can change her medicine to keep up with them.
Wishing you all the best. Ive had 2 chemo days and honestly they haven’t been my worst days 