Bit about me: first dx age 30 in 2001, triple negative, grade 3 IDC. Mammoplasty and level 3 axillary clearance. No node involvement. FEC chemo x6, radiotherapy x30. (The lovely Rachel Rawson ex-Breast Cancer Now was one of my breast care nurses )
Recurrence 2019 age 48. Same breast and same location in breast. Triple negative IDC, grade 3 again. Bilateral mastectomy. Weekly Paclitaxel chemo x11 (last one oncologist advised too risky to go ahead as coincided with peak of pandemic in April 2020 and immune system was in poor shape).
What I really joined this forum for is to ask has anyone had a SNPs test done? If so, how did you go about finding a reputable place (private clinic etc) to have it done? I’m London/SE based. Been doing some Internet searches but it’s difficult to know who/where to trust. Also, how much did you pay? I’ve seen anything from £100 to £550+.
Thanks in advance for any guidance offered,
I hadn’t previously heard of SNP testing so I did a little bit of research. It’s understandable that you are interested in the chance of a recurrence and have been looking at ways of getting more information on this. SNP testing looks for a change in a person genetic code. This then gives a risk score for getting cancer in the next ten years, compared to a population without this genetic variation.
All the sites I found suggest that it isn’t suitable for people who have had a breast cancer diagnosis. It may be that there are other tests that can be done, but I am not sure this is the right one for you. You could ask in the Ask Our Nurses section as they may have more information on this.
Welcome to the forum, it’s a very supportive place and I’m sure you’ll find it helpful
Please do have a look through the various boards and topics to find those going through similar experiences or for places you may be able to share your experiences and knowledge. I couldn’t find any previous posts relating to SNPs testing myself, but hopefully someone will be able to share their experience with you.
All the best,