Hi, I was diagnosed with mets to lung, liver and bones in march this year was on taxol but had to come off due to side effects was then put on capecitabine and recent ct scan after 5 cycles showed lungs and liver now clear and bones improving which am amazed at as had multiple lesions in both lungs and liver, my question is has anyone had this and if so how long did you stay clear for? Is it unreasonable to expect years with clear results in these areas ??
Thanks xxx
if the treatments working I don’t think its unreasonable ,I had taxol and had to come off it ,now on herceptin alone last scan showed my liver was clear ,I was diagnosed in March also ,so if treatments working brilliant xx
How long is a piece of string, when it comes to remaining NED (No Evidence of Disease)? For some it can work for years, others for months … there is just no telling with BC. NED is the chap everyone dreams of dating, but he can be a fickle partner. His brother LEON (Less Evidence Of Nasties) is not quite as dashing as NED, but is a more stable partner.
Try not to worry about what might happen, instead live in the moment where things are going well right now. It takes practice, but is worth the effort. Look at Mindfulness Based Stress Reduction.
Vicki xxx
Loving the NED/LEON analyolgy Vicki.
Take a look at my profile, notbreastfriend. I too had good first results, but it’s early days. Blondie’s 10 years on thread on here is very inspiring.
Sarah.
Hi, I was on Capecitabine for 4 and a half years, a friend was on it for 8 or 9 years. It can work wonderfully for some patients.:smileyhappy:
There are some other threads here about dealing with any side effects but I’ll add the main ones here. The main side effects are usually to the hands and feet, painful heel cracks was my main side effect. But Udderly Smooth cream, you can buy it on Amazon and other places is the most popular cream. I’d add Eucerin cream, with urea, from Boots too. I used to swap between the 2.
Silver plasters are more expensive than the normal kind but they do help any painful cracks in hands or feet heal faster. Any tummy troubles, Imodium (sp?)
You keep your hair on this one too. I was never clear of cancer but the cancer didn’t progress at all. I was very happy to stay stable. Good Luck…x